141–150 of 234 posts
I’ve long been watching ‘physics girl’ on YouTube and what’s happened to her with long Covid is awful. When you hear those stories, you can’t help but think of all those affected.
can you kindly link a sample of some of her material that intersects with this topic that you've watched. I'm curious of that data point.
I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…
If your cardio capacity drops enough you get all the same symptoms as long covid. This probably happened to a lot of people from being less active over the pandemic or from getting covid or both.
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I cannot comprehend a position of total long COVID denial, though I have encountered it online. Every virus you can think of that causes acute illness, can cause long term or even permanent damage. Sometimes rarely, sometimes often. Even the mildest common cold viruses, can, in very rare cases, be severe enough to cause pneumonia which causes scarring which leads to permanent loss of lung function. Hepatitis A is usu…
> For COVID to cause severe illness in a few % -- enough to kill in rare cases -- but to not cause permanent lung or heart or kidney damage etc. in some significant percent who got very sick is implausible, even incoherent with all other theories about how viral diseases cause disease. So then why do we never talk about long flu? Long meningitis? I don’t think people are in disbelief COVID can cause long term damage…
I myself still have long-term issues from a non-Covid viral infection a few years back, probably RSV.
I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…
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What risk do you perceive from being vaccinated that makes it at least as risky as covid and long covid? You feel like shit for a day, true.
The fact that mRNA based interventions have never before been deployed and as an individual it’s sensible to be cautious about using them until there is long term safety data?
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I cannot comprehend a position of total long COVID denial, though I have encountered it online. Every virus you can think of that causes acute illness, can cause long term or even permanent damage. Sometimes rarely, sometimes often. Even the mildest common cold viruses, can, in very rare cases, be severe enough to cause pneumonia which causes scarring which leads to permanent loss of lung function. Hepatitis A is usu…
> For COVID to cause severe illness in a few % -- enough to kill in rare cases -- but to not cause permanent lung or heart or kidney damage etc. in some significant percent who got very sick is implausible, even incoherent with all other theories about how viral diseases cause disease. So then why do we never talk about long flu? Long meningitis? I don’t think people are in disbelief COVID can cause long term damage…
With both RSV and influenza, infection as a baby or toddler seems to increase the likelihood of asthma in later life. Do we talk about asthma?
I think it is just so ordinary, an accepted part of life, and often not thought of in terms of being caused by an identifiable pathogen, that it's not really remarkable. Sort of like the fact that viral pneumonia is what kills the very elderly -- if nothing else gets them first -- the older someone is the more likely viral pneumonia will be the cause of death, rising to around half of all deaths in the 90 yo+ demographic. RSV, rhinoviruses, influenza. We're used to it. And short of getting our influenza shots and washing our hands, there's not terribly much we can do about it.
> currently present case of COVID
Well, that's just people abusing terminology. Technically, COVID is not the virus; it's the illness caused by the virus SARS-CoV-2. Same sort of distinction as between HIV/AIDS. A person with severe AIDS who hypothetically was cured of HIV, would still have severe AIDS until/unless they manage to recover some immune function.
It is poorly named I guess. People still mix up AIDS/HIV today and I don't even bother to correct them; can't really blame them for conflating two closely related concepts.
Anyway. A popsci article from 2018: https://www.cnn.com/2018/12/31/health/flu-body-effects-partn... And if you want to dive in to it, the relevant search terms are: influenza pulmonary fibrosis
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The risk from being vaccinated against covid isn't "you feel like shit for a day". That's not a worry for most people. Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't? In 2023 that information is not available. Not true or false, but simply unavailable.
> Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't? Aren't you getting the same spike protein when you're infected by COVID, which is more likely if you're not vaccinated? That would mean the vaccinations reduce your exposure to the spike protein.
That's the entire goal. But is it the same spike protein? Does it end up in the same tissues as COVID? Does the mRNA delivery & creation vector matter?
I rolled the dice and got triple-vaxxed, on the assumption that I'm better off than getting covid with a naive immune system, but I wasn't under any illusions that it's anything but a some-unknown-%-loaded-in-my-favor dice roll.
There wasn't enough time to wait years and see what the outcomes are, and also most people on the planet were guaranteed to get covid soon anyway.
There's a popular opinion I've seen on HN that "long Covid" isn't a real phenomenon but it's pretty easy to reject that out of hand. There have been several studies, including a recent quadruple blinded one (where participants, care providers, investigators and outcomes assessors are all blinded to treatment/control groups) that show some interventions have statistically significant benefits to treating it; https://w…
There are some major qualifiers to this study: 1) The ages and BMI: > The median age was 45 years (IQR 37–54) and median BMI was 29·8 kg/m2 2) The diagnosis of long COVID-19 was done by survey — this has been shown to be an unreliable method of assessing persistent symptoms of disease. This is in part because people will tell you they have symptoms if you give them a cause and ask. The diversity of the claimed presen…
> > The median age was 45 years (IQR 37–54) and median BMI was 29·8 kg/m2
Not sure what the problem is here? The age seems nicely representative without being too young (deal with COVID better) or too old (deal with COVID worse; and higher liklihood of comorbidities). The BMI is a little high, but then we know that larger people have a higher COVID risk, so maybe this makes sense? Either way, given this is a study of treatment effects, and the BMI was well-balanced between both groups, meaning it's reasonable to assume that it didn't affect the overall findings.
> The hazard ratio 95% confidence interval extends to 0.99 when treatment is started within three days. This is not a strong result. 1.0 is no effect.
The hazard ratio itself is 0.37, which is a pretty strong effect, and the effect is statistically significant. (Also, slight correction: the upper bound of the hazard ratio is 0.95 when treatment is started within three days.)
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What supplements have you been taking and what is your diet?
I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial…
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This was very different; prior to that I used to do 1-2h of strong cardio or lifting activity a day, was studying at multiple universities and worked multiple consulting gigs. This was like being hit by a train suddenly, going from hero to zero. I've noticed that positive thoughts helped but I attribute it to brain being low on processing power and negative thoughts taking more processing power/energy, causing even m…
Yes, was just trying to comment on the overall broader critique of the medical sphere you were providing. Your story sounds very personal to you and I am not commenting on that.