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The burden of Long Covid “so large as to be unfathomable”

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Re: The burden of Long Covid “so large as to be unfathomable”

#91

Post by whimsicalism »

robnado wrote: post #75
monero-xmr wrote: post #28

There is a lack of hard scientific evidence definitively proving this. However you may know in your bones that this is real, from lived experience or from people you know. Please keep that in mind when you dismiss other things that lack definitive scientific evidence. We as humans seem to pick and choose which currently unverified things to believe and which to dismiss.

Following my first infection with COVID, I developed mononucleosis as the infection reactivated the Epstein-Barr virus in my body, which gave me many of these symptoms. I have since found many scientific articles that discuss a link between the Epstein-Barr virus and long COVID. I'm always surprised that the Epstein-Barr virus is rarely talked about in popular news media when long covid is brought up.

It's the CFS-ization of the long covid research, which is not a good thing.

Re: The burden of Long Covid “so large as to be unfathomable”

#92

Post by treprinum »

LudwigNagasena wrote: post #68
treprinum wrote: post #57

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

What supplements have you been taking and what is your diet?

I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial stuff like nattokinase, serrapeptase, aspirin, diosmin:hesperidin, aescin, curcumin, quercetin, K2, ginkgo, pycnogenol/OPC, omega-3, kyolic, hawthorn berry. I ate 1 non-sweet chocolate a day (100% Lindt) to raise adiponectin and PQQ. I took like 5g of magnesium bisglycinate and potassium citrate a day. Daily workout was important even if it sometimes went to painful headaches which I controlled by ibuprofen and tylenol (the first two weeks were particularly horrible). Lately I added stuff like astragalus, artemisinin, dandelion root, boswellic acid, trans resveratrol, red beet, PEA + luteolin. I feel 1000x better than in February when I thought I could die at any moment.

Re: The burden of Long Covid “so large as to be unfathomable”

#93

Post by Timon3 »

unsupp0rted wrote: post #63
unethical_ban wrote: post #37

Earlier quoted context omitted.

What risk do you perceive from being vaccinated that makes it at least as risky as covid and long covid? You feel like shit for a day, true.

The risk from being vaccinated against covid isn't "you feel like shit for a day". That's not a worry for most people. Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't? In 2023 that information is not available. Not true or false, but simply unavailable.

> Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't?

Aren't you getting the same spike protein when you're infected by COVID, which is more likely if you're not vaccinated? That would mean the vaccinations reduce your exposure to the spike protein.

Re: The burden of Long Covid “so large as to be unfathomable”

#95

Post by billjings »

ck2 wrote: post #36
thebooktocome wrote: post #5

Long COVID pretty much obliterated the career of a mentor of mine. She went from being a competitive athlete in her late sixties to a home-bound invalid in her early seventies. You know a health condition is grievous when it makes a mathematician give up lecturing.

It has ended dozens if not hundreds of elite athlete careers but also Olympians. Newspapers and specialty websites are full of these stories over the past few years but the public is either willfully ignorant or feel like denial is some kind of superpower. Has nothing to do with lack of fitness, anyone can get it. One big risk factor though to be clear is not the ONLY risk factor is literally genetics so that much is…

Could you share some links of these newspaper articles and specialty websites?

Re: The burden of Long Covid “so large as to be unfathomable”

#96

Post by pstuart »

dsab wrote: post #87

I am sceptic to long covid since I dont believe in big pharma good intentions. Years have passed since one pharma company knowingly sold infected drugs to 3rd world countries [1], but the nature of human didn't change. Big companies are run by people with black triad personality traits and who are incredibly greedy [1] https://www.theguardian.com/world/2003/may/23/aids.suzannego...

> I am sceptic to long covid since I dont believe in big pharma good intentions.

That doesn't make any sense.

Re: The burden of Long Covid “so large as to be unfathomable”

#97

Post by 1over137 »

giraffe_lady wrote: post #66
retrac wrote: post #48

Earlier quoted context omitted.

I cannot comprehend a position of total long COVID denial, though I have encountered it online. Every virus you can think of that causes acute illness, can cause long term or even permanent damage. Sometimes rarely, sometimes often. Even the mildest common cold viruses, can, in very rare cases, be severe enough to cause pneumonia which causes scarring which leads to permanent loss of lung function. Hepatitis A is usu…

It makes sense to me unfortunately. If some small but significant portion of people will be disabled by this then what are we doing going to work, eating in restaurants? What does it mean about me if I stay home working but still get food delivered? Do gas station employees get sick days? If repeated exposure as children risks disability in adulthood then what are we doing sending our kids to school? In a world where…

>If some small but significant portion of people will be disabled by this then what are we doing going to work, eating in restaurants?

We are living life. Driving your car is doing much more damage to your fellow man than someone eating at a restaurant.

Re: The burden of Long Covid “so large as to be unfathomable”

#98

Post by CommieBobDole »

mikeyouse wrote: post #3

There's a popular opinion I've seen on HN that "long Covid" isn't a real phenomenon but it's pretty easy to reject that out of hand. There have been several studies, including a recent quadruple blinded one (where participants, care providers, investigators and outcomes assessors are all blinded to treatment/control groups) that show some interventions have statistically significant benefits to treating it; https://w…

I think it's real, I just don't think it's a particular Covid-specific thing. Infections and the immune response to them cause cellular damage, and that damage is different for different people because of a lot of factors - random chance, genetic predisposition, etc. I think this has always been a thing, but it wasn't always as noticeable because this happened to people sporadically as people got 'a cold' or 'the flu' which could have been any number of viruses. Now millions and millions of people have been infected with a fairly nasty coronavirus and the effects of this damage are showing up in large numbers.

Anecdotally, I came down with probably-not-Covid a couple of months back (fit a lot of the symptoms, but never tested positive) and I've only recently gotten my normal energy levels back, and my sense of smell, which disappeared entirely for a few days, is still wonky.

Re: The burden of Long Covid “so large as to be unfathomable”

#99

Post by henearkr »

giraffe_lady wrote: post #66
retrac wrote: post #48

Earlier quoted context omitted.

I cannot comprehend a position of total long COVID denial, though I have encountered it online. Every virus you can think of that causes acute illness, can cause long term or even permanent damage. Sometimes rarely, sometimes often. Even the mildest common cold viruses, can, in very rare cases, be severe enough to cause pneumonia which causes scarring which leads to permanent loss of lung function. Hepatitis A is usu…

It makes sense to me unfortunately. If some small but significant portion of people will be disabled by this then what are we doing going to work, eating in restaurants? What does it mean about me if I stay home working but still get food delivered? Do gas station employees get sick days? If repeated exposure as children risks disability in adulthood then what are we doing sending our kids to school? In a world where…

You get food delivered but the delivery staff keep their mask on, you put your mask before seeing them, and all is perfectly fine.

Mask is underrated. Everybody wanted to get rid of it. But why.

Re: The burden of Long Covid “so large as to be unfathomable”

#100

Post by gizmo »

pfannkuchen wrote: post #47
unethical_ban wrote: post #37

Earlier quoted context omitted.

What risk do you perceive from being vaccinated that makes it at least as risky as covid and long covid? You feel like shit for a day, true.

The fact that mRNA based interventions have never before been deployed and as an individual it’s sensible to be cautious about using them until there is long term safety data?

Only if you believe that the risks of mRNA vaccination is higher than the (extra) risk of covid. In my estimation taking the vaccine is the prudent and cautious choice, and the scientific consensus has to be wrong by a large margin for your position to turn out to be more prudent.
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