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The burden of Long Covid “so large as to be unfathomable”

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101–110 of 234 posts

Re: The burden of Long Covid “so large as to be unfathomable”

#101
post #72

There is a lack of hard scientific evidence definitively proving this. However you may know in your bones that this is real, from lived experience or from people you know. Please keep that in mind when you dismiss other things that lack definitive scientific evidence. We as humans seem to pick and choose which currently unverified things to believe and which to dismiss.

I think it's less "this is bullshit" and more "this is receiving far more attention than long influenza or long any other infection". We've fixated on long COVID to a degree that might not be productive and which - if it has a psychosomatic component in some cases - might be causing more long COVID.

> We've fixated on long COVID to a degree that might not be productive and which - if it has a psychosomatic component in some cases - might be causing more long COVID.

Very charitable phrasing.

Re: The burden of Long Covid “so large as to be unfathomable”

#102

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

I think it is certainly true, but I also think that lay people significantly underestimate psychosomnia and the power of placebo and having a more active lifestyle.

This was very different; prior to that I used to do 1-2h of strong cardio or lifting activity a day, was studying at multiple universities and worked multiple consulting gigs. This was like being hit by a train suddenly, going from hero to zero. I've noticed that positive thoughts helped but I attribute it to brain being low on processing power and negative thoughts taking more processing power/energy, causing even more problems. I had a stroke-like experience where I could no longer read text, locate symbols, follow visual clues which told me there was some problem with visual cortex VC2 or VC4 and I could perfectly see delineation between different "algorithms" running in my brain for visual processing and they seemed to be running low on fuel. Quite amazing experience for a Deep Learning researcher but would never wish it to anyone.

Re: The burden of Long Covid “so large as to be unfathomable”

#103
There are over 50 long term effects[1] of long Covid, with the top 3 being fatigue, headache, and attention disorder.

To me it sounds like long Covid is just a series of various ailments caused by various reasons but all blamed on Covid.

[1]: https://en.wikipedia.org/wiki/Long_COVID#/media/File:Long-te...

Re: The burden of Long Covid “so large as to be unfathomable”

#104

Earlier quoted context omitted.

What supplements have you been taking and what is your diet?

I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial…

Wow, thats quite the list. Saving this in case I know anyone with similar problems.

My dad lost his smell sadly

Re: The burden of Long Covid “so large as to be unfathomable”

#105
post #48

Earlier quoted context omitted.

I cannot comprehend a position of total long COVID denial, though I have encountered it online. Every virus you can think of that causes acute illness, can cause long term or even permanent damage. Sometimes rarely, sometimes often. Even the mildest common cold viruses, can, in very rare cases, be severe enough to cause pneumonia which causes scarring which leads to permanent loss of lung function. Hepatitis A is usu…

> For COVID to cause severe illness in a few % -- enough to kill in rare cases -- but to not cause permanent lung or heart or kidney damage etc. in some significant percent who got very sick is implausible, even incoherent with all other theories about how viral diseases cause disease. So then why do we never talk about long flu? Long meningitis? I don’t think people are in disbelief COVID can cause long term damage…

That’s not what LongCovid implies, that’s possibly referring to persistent spike proteins but that a separate thing. LongCovid specifically refers to post covid sequelae, as in not a chronic infection but the after effects from an acute infection.

Viral impairments were called ME/CFS, the main difference now is that such a large number of people got it at one time which is making it more difficult to ignore.

Re: The burden of Long Covid “so large as to be unfathomable”

#106

I’ve long been watching ‘physics girl’ on YouTube and what’s happened to her with long Covid is awful. When you hear those stories, you can’t help but think of all those affected.

can you kindly link a sample of some of her material that intersects with this topic that you've watched. I'm curious of that data point.

Re: The burden of Long Covid “so large as to be unfathomable”

#107

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

Between the supplements and the rowing, do you have a sense if one or the other had a greater impact?

Asking because "take a multivitamin" and "exercise daily" seem to be very standard pieces of medical advice. "Take 50 specific supplements", not so much.

Re: The burden of Long Covid “so large as to be unfathomable”

#108

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

What supplements have you been taking and what is your diet?

I had success with the ingredients listed here: https://detoxthespike.com/#ingredients

You can find most of those quite easily, although I had a bit of a hard time getting my hands on some of those enzymes. Been taking that recipe for a couple months now and my sense of smell has returned to full blast. For reference, I got COVID two times.

Re: The burden of Long Covid “so large as to be unfathomable”

#109

Earlier quoted context omitted.

I think it is certainly true, but I also think that lay people significantly underestimate psychosomnia and the power of placebo and having a more active lifestyle.

This was very different; prior to that I used to do 1-2h of strong cardio or lifting activity a day, was studying at multiple universities and worked multiple consulting gigs. This was like being hit by a train suddenly, going from hero to zero. I've noticed that positive thoughts helped but I attribute it to brain being low on processing power and negative thoughts taking more processing power/energy, causing even m…

Yes, was just trying to comment on the overall broader critique of the medical sphere you were providing. Your story sounds very personal to you and I am not commenting on that.

Re: The burden of Long Covid “so large as to be unfathomable”

#110

Earlier quoted context omitted.

It makes sense to me unfortunately. If some small but significant portion of people will be disabled by this then what are we doing going to work, eating in restaurants? What does it mean about me if I stay home working but still get food delivered? Do gas station employees get sick days? If repeated exposure as children risks disability in adulthood then what are we doing sending our kids to school? In a world where…

>If some small but significant portion of people will be disabled by this then what are we doing going to work, eating in restaurants? We are living life. Driving your car is doing much more damage to your fellow man than someone eating at a restaurant.

Ya that's why I don't do that either.
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