Earlier quoted context omitted.
> the same label can have remarkably little overlap in terms of observed behaviour.... You diagnose autism based on how people act, not who they are. I'm able to mask until I'm alone. My meltdowns look exactly like the observed behavior you see in other people, I just hide it better. I'm also verbal mostly, until I'm not and I'm dissociating. Then I look a lot what you're used to seeing, except i don't let you see th…
From the DSM-V-TR: "Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life)." "Core diagnostic features are evident in the developmental period, but intervention, compensation, and current supports may mask difficulties in at least some contexts." "Individuals who have developed…
Metabolism of autism reveals developmental origins
181–190 of 358 posts
Re: Metabolism of autism reveals developmental origins
#182Earlier quoted context omitted.
How would you prove or disprove this theory?
The gut hypothesis hype is trendy right now. There is some correlation but when things settle down, some of the effect will be attributed to "picky eating". Proving that the source of mental disorders is the brain and not the gut (as it was believed in the distant past) is easy: 100% of patients show brain damage while a fraction of them have an abnormal gut
Re: Metabolism of autism reveals developmental origins
#183Earlier quoted context omitted.
Indeed, my ex wife was incapable of living on her own or holding a job. I have a whole social circle of autistic friends of different abilities. Some still live with their parents. Men in their 40s living with their parents. Women who left home for the first time at 30 only to have to move back within months. My one friend is a sex worker because she can't hold down a real job. She sells her meds and her body to get…
> My ability to type this message and read is not a constant. There are times when I am non verbal. There are times when I cannot read because the letters are all jumbled in my head. When I'm able to read and write and speak, society values me. When I'm not, society devalues me. You want to take autism out of the equation so that I can be valuable to society. > What I'm saying is that society needs to be reoriented s…
It's not that autistic people cannot communicate, it's that we communicate differently.
For example, I cannot talk on the phone. I just can't. I could explain all the reasons why, but I feel very dismissed here so I'm not going to be vulnerable anymore, but suffice it to say it's something I cannot do, and a lot of autistic people cannot do.
This means people like us can't have jobs which require a lot of phone communication. Accommodations that would allow autistic people to communicate in their preferred way would lead to greater employment of autistic people, but such accommodations are rarely offered for various reasons.
It's other things too. For some people it's lights. For others it's a uniform. For others its noises. For instance, I can hardly go into grocery stores because they play loud music, there's a lot of noises from beeping registers, and the lights are bright and garish. All retailers are like this, and that's where many entry level jobs are. If I can hardly shop there without wearing sunglasses and headphones, then I could never work there because workers are not allowed to wear noise canceling headphones.
Then there are people who require service dogs. You'd think that would be a solved issue, but my friend was just denied entry to a place because of her legit service dog, not even an emotional support dog. They said she couldn't have one because she didn't look blind. Then what, she has to explain to some putz about her autism, expecting he'll understand? No, she backed off and went home and now she won't go out again. It took her that much just to go outside and she was turned away by some busybody, so it's back to being a recluse for a bit.
And that's another thing, is the world could be a lot more accepting of how ND people identify, that would go a long way too. My friend I just mentioned says that her experience as a transgender person is inextricable from her autism. I'm not sure what she means 100%, but also I do, autistic people have a complicated relationship with gender and sexual identity, and a lot of people are very very against those feelings. Autistic people who are transgender (there are many) have a hard time existing in public life because they are shamed, ridiculed, vilified, beaten, and even murdered for who they are. Do you think it's easy for someone who faces those dangers to be employed? There are many transgender homeless people who suffer as a result.
I could go on and on, but all of these things I've listed are ways in which autistic people are marginalized in society, and they don't necessitate "curing" autism to fix, or even really reorienting society as a whole. It's not because they cannot communicate, it's because they cannot participate fully in public life. The solution is to just let them participate in public life. To make things better for everyone involved, we can just be accepting of people's differences and not force them all to be one way, and support them when those differences mean they need help to survive. We can afford to do that as a society I think, why not, isn't that the point of the whole exercise?
Re: Metabolism of autism reveals developmental origins
#184Earlier quoted context omitted.
Of course society should become more accepting and accommodating of differently-abled people of all types. But can you really look at the extreme end of the Autism spectrum and say that isn't a disease or disorder? One reason we need this fundamental research is to disentangle the different types of afflictions and give them different names.
You don’t even have to go to the extreme end. Ask people with milder presentations, and they’ll be able to tell you about all sorts of confusing interactions and frustrating situations they’ve experienced that wouldn’t have happened if they were neurotypical. Hard to say that doesn’t impact their quality of life.
But as you said, we should ask people with milder presentations, and listen. While they may impact quality of life, I don't see any autistic people here or in my communities calling for a "cure" to deal with such problems.
We made a big deal of Autism Acceptance and Awareness Month, which was April. There is no autism prevention movement, unless you count Autism Speaks, which is considered a hate group within the autistic community.
Re: Metabolism of autism reveals developmental origins
#185Earlier quoted context omitted.
I think they meant "people who didnt die before 25." I don't know much about autism, but I had three friends who died before 30 in accidents that were almost certainly related to ADHD. Two of them were doing behavioral therapy but didn't believe in pharmaceutical treatment. One of them was generally medicated but wasn't taking their medication on the day they died (due to medication shortages for ADHD drugs). That la…
I knew someone in high school that had ADHD. He totaled many cars when he wasn't on meds for things like game day for sports (not sure if that's a performance or health thing). What baffles me, is how someone diagnosed with a condition that affects driving is allowed to drive without the condition being treated - especially if they are under a prescription and just not taking it, and also if they have multiple accide…
But then you have the same problem against something which is much harder to measure.
Many people have glasses even though their vision is mostly fine and it's perfectly reasonable to drive without them, the glasses just make things slightly more focused. Other people are effectively blind without corrective lenses.
ADHD is the same way only you don't have a nice mathematically precise lens prescription to tell you the degree of it, and with no objective way to measure the severity, just asking people a question that everybody knows can cause you to have a restriction placed on you is pointless and only invites people to lie. Which in turn may make them less likely to seek and receive medical treatment -- the thing you want to happen if they are a hazard without it.
This is further complicated by what the treatments for severe ADHD are. Can you imagine the headlines? "Government forces drivers to drive on meth."
Re: Metabolism of autism reveals developmental origins
#186Earlier quoted context omitted.
There are two ways that something can lead to needing help with daily living: - society rejects the trait without good reason, so then someone needs help to deal with this rejection - the trait leads to an inability to do something that the person wants to do, irrespective of any societal concerns I am okay with calling the latter a disorder, but not the former. The traits that are recognized as part of autism (socia…
Do you always reply with definitions you invented on the spot to justify your view of reality?
Re: Metabolism of autism reveals developmental origins
#187Earlier quoted context omitted.
> And that many common chronic disorders/illnesses (including ADHD, Autism, weight gain, etc) in our generation are actually attributable to a disfunctioning microbiome All of those things have existed for ... ever
They have. But I do not believe they were as common prior to the 1960s as they are in the 2020s.
Re: Metabolism of autism reveals developmental origins
#188Earlier quoted context omitted.
I understand the sentiment, but there's a reason it's called the autism spectrum. I work with several software engineers with autism who are as capable as their peers. Sure they may have behavioral quirks, but not significantly more so than the normal variation in human behavior. Their brains don't seem to work in an inferior or problematic way, just different. On the other hand, I have a close relative with more sev…
Indeed, my ex wife was incapable of living on her own or holding a job. I have a whole social circle of autistic friends of different abilities. Some still live with their parents. Men in their 40s living with their parents. Women who left home for the first time at 30 only to have to move back within months. My one friend is a sex worker because she can't hold down a real job. She sells her meds and her body to get…
Re: Metabolism of autism reveals developmental origins
#189Earlier quoted context omitted.
Of course society should become more accepting and accommodating of differently-abled people of all types. But can you really look at the extreme end of the Autism spectrum and say that isn't a disease or disorder? One reason we need this fundamental research is to disentangle the different types of afflictions and give them different names.
I can. When I look at extremely functional autistics like Elon Musk, the idea he has a condition which makes him diseased and disordered is absurd. I think the natural reaction to that is that either diagnostic criteria should be narrowed and/or it should be possible for people to lose their diagnosis if they achieve Elon Musk levels of functioning. -OR- Autism should be viewed more neutrally, as people of a certain…
Re: Metabolism of autism reveals developmental origins
#190Earlier quoted context omitted.
You don’t even have to go to the extreme end. Ask people with milder presentations, and they’ll be able to tell you about all sorts of confusing interactions and frustrating situations they’ve experienced that wouldn’t have happened if they were neurotypical. Hard to say that doesn’t impact their quality of life.
It's true, miscommunication and misunderstanding, as well as stigmatization can lead to situations where autistic people are hurt or even killed. This happened recently with Ryan Gainer, who was killed by police after he charged at them with a gardening tool during an autistic meltdown. But as you said, we should ask people with milder presentations, and listen. While they may impact quality of life, I don't see any…
Then you should step a bit outside of your bubble. It's very common in the autistic community - and the neurodivergent community at large.