The "Disability Dongle": Why Silicon Valley Hates Me and You

A classic in the genre of misunderstood agents. This is such a common thing these days I really wonder at it.

"Why do we have to build Electric Vehicles? Why don't we just build more trains?"

There's no 'we' here. 'We' are not doing anything. 'You' are sitting writing a blog. 'I' am writing a HN comment. 'They' are building EVs. You might as well say "Why do we want to build a dumpling store here? I never asked for that. I wanted Thai food" when someone else is building a dumpling store. It's not a 'we' decision.

The fact of the matter is that you can't redirect my money and effort to your goals. You can maybe find alignment between my objectives and your objectives, and when I try to find such alignment you can work with me or you can reject me. But we're free individuals. I'm not going to make you your Thai food. I'm going to make Chinese food. And if you want some, you can eat some by paying me, and if no one wants some I go out of business and it sucks for me.

I neither hate you nor love you. And you neither hate me nor love me. We are strangers to each other and where our interactions align we can work with each other; and where they don't we can't. The world is full of other people with other objectives. Some are opposed and some are aligned.

In the words of the Spiderman antagonist Sauron:

> I don't want to cure cancer. I want to turn people into dinosaurs

And no matter what, I'm not going to try to work with anyone who's going to jump my case the moment the cosine of our vectors is not precisely 1. It never surprises me when all these perpetually angry people find themselves with no allies, because a desire to coordinate is fairly built-in to human nature and people recognize defectors from that framework easily and stop attempting coordination with habitual non-coordinators.

> I’m disabled and became disabled as an adult and, in my experience, after becoming disabled I’ve faced rampant discrimination that wasn’t there before. I’ve been fired twice in the last 10 years due to disability-related issues. I have no recourse, anything I could do would risk torpedoing my career. This is life under the medical model. You’re expected to live a smaller existence.

For what it is worth, I'm probably in different countries to you, and "me too". I fractured T8 and spent some time unable to walk at all and in a wheelchair -- I can now use a crutch some of the time and have a fairly complex medical history.

You never notice how much [en-gb] pavements / [en-us] sidewalks camber towards the road for drainage until moving your pelvis is excruciating, or driving a manual wheelchair on a camber means that you're constantly working twice as hard with one hand compared to the other. Nor do you notice what a bin on the street does when kerbs are difficult. Low hanging vegetation, normally pretty, over a neighbour's wall becomes incredibly annoying if you literally cannot move yourself to avoid it inevitably hitting your eyes. So many minor annoyances, from booked assistance on train travel forgetting you exist halfway through, right the way through to outright discrimination from your colleagues. And don't get me started on the bladder management!

Everyone could be disabled, and as said earlier at some point in life everyone probably would be. Inclusive design is just that -- inclusive -- and done correctly it costs nothing to little extra. I don't really understand why we don't build it into society, rather than try to get people to (as I increasingly want to) fork out thousands to tens of thousands for electric wheelchairs. Sure, they're great, but sometimes I miss taking long walks or cycling ('normally').

Since the Hyperloop time, China built an entire HSR network starting from nothing. Since the Hyperloop.

> it's hard, impossibly so, to construct a world where nobody with wrist mobility problems will ever encounter a round doorknob they'd like to open.

its not that hard to get to 99.999% though.

stop selling door knobs, or doors that accept round knobs. add incentives to swap or return round knobs. include checks for round knobs both for building inspections and insurance.

you wont wont get the last couple people that build their own doors and machine their own knobs, but thats gonna be a really small segment

> He’s been mayor of New York for, what, 8 months?

> Give that guy a chance to properly fuck things up before you pass judgment.

I really, really, urge you to try seeing the hypocrisy between this statement and your previous comment.