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Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

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Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#41
> Even before this finding, my team had ordered five biopsies to be taken from three regions of my stomach.

This is really invasive and I definitely hope there were solid grounds to order this. If not, his team has a pretty gung-ho approach.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#42

Earlier quoted context omitted.

Ehhh, not really, I have been loosely following him for a while and he is overall pretty genuine (i.e. laser focused on his health experiment above all else) He was the founder of Braintree which sold to paypal for $800M. He then was divorced and listless with near infinite money, so decided to see what would happen if money was no object and you tried to live a perfectly healthy life as dictated by current medical r…

"he's rich therefore he has no incentive to scam anyone" is not a good heuristic, though it will help you get a degree from Trump University.

In fact, I think a good heuristic is probably the opposite. The type of person who becomes that rich is probably more willing to scam than the average person.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#43
post #5

my 2 cents 1. try taking Saccharomyces Boulardii asap, it is a very different kind of probiotic, a yeast actually, that tends to push out the bad and promote the good 2. JAK-STAT inhibitors are the only known drug to get the body to stop attacking itself from autoimmune diseases, but not a cure and unfortunately they cost an absolute fortune without insurance but importing from Canada and India is possible

I would normally be inclined to jump in and top your recommendation with other, spore forming probiotics, eg Subtilis, Coagulans, etc.

My old friend in Aussieland has been struggling with a multitude of ailments, gastrointestinal among them. After doing a few hours of well-intended research, I gave him a list of things I thought might help, all with disclaimers and contraindications noted. He chose to pursue the Coagulans. It nearly killed him. At first I was skeptical and insisted it was something else, or perhaps a tainted batch (which it may have been). He nearly lost consciousness, became weak, turned red, and swelled with difficulty breathing. Neither of us have an official professional evaluation of the cause, but it seems he had a severe allergic reaction to that strain, possibly as a result of microbial conflict, endotoxins, who knows, but it sure did scare the hell out of him.

That did not change my perspective on probiotics, but it was a reminder that each individual is, well, individual, and much of what we do experimentally is a gambit.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#44
post #18

It's kinda disgusting how many people seem to enjoy his misfortune. Even though he never hurt anyone and has been an overall positive, if peculiar, person. I hope he recovers or at least contains this and continues with his mission

How positive would he be if instead he had spent a bit of his wealth in improving the world, like curing a disease instead of just trying to live forever?

To me he reminds of those stories of wealthy medieval ladies bathing in the blood of virgins. You just know this psychopath is one capitalistic stepping stone away from doing it.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#45

I really appreciate how the author dramatizes hypothyroidism, which I've also had since 25, and in the modern world, it's like the most treatable, easy to live with condition on earth. Taking a tiny pill once daily, with the lone drawback that as soon as you take the pill you have a 5min timer to taking a dump. I was reading this and didn't understand the point until I got to this: "I overhauled my medical team earli…

Ehhh, not really, I have been loosely following him for a while and he is overall pretty genuine (i.e. laser focused on his health experiment above all else) He was the founder of Braintree which sold to paypal for $800M. He then was divorced and listless with near infinite money, so decided to see what would happen if money was no object and you tried to live a perfectly healthy life as dictated by current medical r…

Ehh, you’re giving the guy a lot of grace cause he’s rich. I believe the GP was correct and have anecdotal evidence to support that he may be deceptive.

I followed him very loosely 3 years back and he was touting the effectiveness of a hair dye that he claimed permanently restored hair color at the follicle level if you followed their prescribed routine. As in no more greys, permanently. The company was called Mayraki and nobody had ever heard of them before Bryan’s videos and while I’m not saying he was scamming, I find it likely something dubious was going on with a high likely hood of him being paid for this advertising.

He went as far as saying he had his medical team biopsy his scalp and found the hair was not grey below the skin line so therefore was 100% true. It was quite a convincing narrative at the time to try this $100 hair dye.

The internet, especially Reddit, is now full of angry people with grey hair (and less money) that claim this product didn’t do anything beyond a regular dye but for 5-6x the cost. I can attest to this myself.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#46
post #2

First part of the very long tweet: Bad news #1: I have an autoimmune disease. My stomach is eating itself. Bad news #2: 2–5% of people have this, too. Likely more, because it hides. Good news: I'm going to try and solve it. Will share all. As a kid, I ate sugar cereal, drank sugary soda, and gobbled down fast food. I had a few healthy years in my early 20s but then became a young father of three and began building a…

Have you done iron infusions? My wife has to get these once in a while. She had gastric surgery years back and has issues with absorption of oral supplements.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#47

Earlier quoted context omitted.

"he's rich therefore he has no incentive to scam anyone" is not a good heuristic, though it will help you get a degree from Trump University.

I think a better take would be "He publicly shares everything about his lifestyle and routine rather than paywalling them, so if he is running a scam, he probably needs some pointers" Even his supplements are just concoctions of stuff anyone can buy, the ingredients are fully transparent. Anyone can follow what he does without giving him a penny.

> He publicly shares everything about his lifestyle and routine rather than paywalling them, so if he is running a scam, he probably needs some pointers

Disagree. What he does is run a YouTube channel that appears to do that. That makes it an ideal vehicle to advertise supplements with little research or scientific backing to an uninformed and trusting audience.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#49

Earlier quoted context omitted.

Ehhh, not really, I have been loosely following him for a while and he is overall pretty genuine (i.e. laser focused on his health experiment above all else) He was the founder of Braintree which sold to paypal for $800M. He then was divorced and listless with near infinite money, so decided to see what would happen if money was no object and you tried to live a perfectly healthy life as dictated by current medical r…

I used to buy his act too but once he started doing psychedelics and live streaming it, it became clear it was all just a scam

Yes, that was it for me too. Because anyone who understands neurobiology understands how psychedelics work and wouldn’t bother with them.

Re: Bryan Johnson: I have an autoimmune disease. My stomach is eating itself

#50

In medicine, if you look hard you will likely find something . That part that confuses me about his story is: not once does he mention the symptoms or side effects. Unless I somehow missed that part, or he's leaving them out for private reasons, his evidence and symptoms are entirely lab-based. Bodies are weird and do "abnormal" things in reaction to the environment, stress, physical activity, nutrition, etc. -- not…

> But I'd bet that if he hadn't been tracking his labs, he would've lived a pretty normal life.

Well I mean we have a control group consisting of just about every other person diagnosed with this disease, right?

The wikipedia page [1] suggests you're probably right, especially given that he is male.

[1] https://en.wikipedia.org/wiki/Atrophic_gastritis#Signs_and_s...

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