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My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

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171–180 of 209 posts

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#171
My sympathies. My brother has this condition. His is manageable, thank goodness, but he went through a lot early on.

Charlie Rose had an interesting program about this topic and its biological causes:

  http://www.charlierose.com/view/interview/12269

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#172
post #166

Earlier quoted context omitted.

An interesting study highlighting some of the problems with diagnosis of schizophrenia was the Rosenhan experiment ( http://en.wikipedia.org/wiki/Rosenhan_experiment ) essentially it showed that doctors working in mental hospitals were unable to reliably tell the difference between those with schizophrenia, and those without it who reported a single hallucination. Albeit, the study is now close to 40 years old, and t…

Thanks for your article - a couple of questions. My background is that in the dim dark past I studied neuropsych and then worked as an EEG tech (mostly epilepsy screening with infrequent psych patients) for 4 years (2000-04) before going to work for the company that makes Synamps 2 :) Now, I've only skimmed your method and results as I'm a bit flu-ridden and hence vague, but a couple of things popped out. The first i…

The no control for medication is primarily based on the conclusions of Boutros 2008, a summary of spectral abnormality studies of schizophrenia. I reproduced a table from the paper in the appendix. What type of psych drugs were you working with?

As an aside drugs used to treat schizophrenia have especially nasty side-effects, such as weight-gain, reduction of white blood cells, and--ironically--some of the "negative" symptoms of schizophrenia when given to healthy people. In fact the Soviets used to use antipsychotics to torture political prisoners.

I concur that active EEG could lead to a much more accurate diagnosis, however we had access to quite a bit more resting data, and it does make the math easier (stationarity for one). Standardization of other factors would also probably increase accuracy, but once again, I was limited by my data. Since I'm no longer in academia, I won't be continuing the research, but hopefully further studies address these questions in more detail.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#173
post #114

Earlier quoted context omitted.

My state provides extensive education and training to some people, so they can become doctors. My state provides hospitals and funding for treatment. Imagine a person with full thickness burns to 75% of their body - "Why are ppl so apt to think that state employees are miracle workers?" - because they've been educated, trained, and provisioned to provide the help that other people need.

are you making an argument for state-employees, or just anyone that gets this type of training? you're off point - I'm saying that you can't look to the state +first+ for your family's needs - it is important to take a primary stake in your own well-being. btw, ask the folks affected by Katrina how they would rate the training of all the emergency response state employees .. probably not so good. My point is : don't…

> it is important to take a primary stake in your own well-being.

How does this translate into care for a severe, long term, mental health problem where the patient is non-compliant with medication?

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#174
post #90

Earlier quoted context omitted.

> it's very unlikely that his son would have ever been a contributing member of society. I'm having trouble getting past this comment. I don't wish to malign you debacle - I'm sure you're not being malicious - but it seems like a very unkind & privileged mindset. I hope this isn't representative of the community. Paul Gionfriddo certainly doesn't consider his son to lack contribution.

> but it seems like a very unkind & privileged mindset. You think being of sound mental health is a privilege? In Europe we think health is a right, which is why we have public health systems. It may sound a bit strange at first, but it works quite well.

In this context, privilege is being used in the sense of, "he was a child of privilege."

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#175

Earlier quoted context omitted.

The author is arguing that his son would not be homeless if institutional care had not be shut down, not that his son would be a productive member of society. It's practically tautological.

" The author is arguing that his son would not be homeless if institutional care had not be shut down " Actually, he isn't . The only institutional care he mentions in the What I realize now section is "supportive short-term and long-term community housing and treatment", which doesn't sound like institutional care, in the sense of "When he was in jail, with its regular routines and meals, Tim usually stabilized". Th…

> "supportive short-term and long-term community housing and treatment", which doesn't sound like institutional care

But it is. The housing/treatment he is referring to covers a range of facilities from supported housing to crisis centers to residential and secure residential treatment facilities based in the community. The goal of these facilities is to provide the stability necessary for a person to compensate and, ideally, re-enter society.

Some folks need to enter a crisis center for a short stay during a time of instability. Some simply need a place to live (supported housing) with just a little more structure. There are also people who are chronically ill and do well (some not so well) in a residential or secure residential treatment program, but will never leave because they are unable to function without the stability of an institution.

Mental illness is a spectrum, hence the array of different support tools. The programs the OP was if'ing about exist, and are progressing. For instance, there is new legislature in my state that expands these programs to include general medical and dental care.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#176

Earlier quoted context omitted.

" The author is arguing that his son would not be homeless if institutional care had not be shut down " Actually, he isn't . The only institutional care he mentions in the What I realize now section is "supportive short-term and long-term community housing and treatment", which doesn't sound like institutional care, in the sense of "When he was in jail, with its regular routines and meals, Tim usually stabilized". Th…

That's a good point. The article begins with him discussing the shutdown of institutional care in favor of integrative approaches. But you're right, the solution he's promulgating at the end isn't really the same thing.

It's actually not a good point, see my reply above.

Upvote for using the word 'promulgating' though. Good show :o)

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#177

Earlier quoted context omitted.

That's a good point. The article begins with him discussing the shutdown of institutional care in favor of integrative approaches. But you're right, the solution he's promulgating at the end isn't really the same thing.

And that's what shocked me as well. He made the right diagnosis with the right title and the right observations, but jumped to the wrong conclusions :-/

He made the right conclusions and these programs have already been implemented. (at least in my state)

There are many community-based mental health providers. They are private-sector companies, usually nonprofits, that provide treatment paid for by state funding (medicaid, etc.).

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#178
post #66
post #30

Earlier quoted context omitted.

Anti-psychotic medication isn't like taking Tylenol. It can completely change a person's personality, and people have likened it to living in a fog.

What is your point? Schizophrenia already horribly changed the patients personality, medication just helps them deal with the symptoms. Before we had these drugs, schizophrenic patients were basically tortured (e.g. Lobotomy) because there was no way to help them.

Given that those suffering from the illness so often hate the medication (I say this based on having 2 or 3 people tell me this, which is hardly data), doesn't that indicate how bad the medication is? If the disease is felt to be better (by some) than the treatment then we aren't doing very well.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#179
post #66

Earlier quoted context omitted.

What is your point? Schizophrenia already horribly changed the patients personality, medication just helps them deal with the symptoms. Before we had these drugs, schizophrenic patients were basically tortured (e.g. Lobotomy) because there was no way to help them.

Wasn't MDMA (ecstasy) once considered for schizophrenic patients? It was supposed to not affect the patient as much. I never head the results.

MDMA is currently being tested (in sessions combined with therapy) for treating PTSD. I've heard nothing about its consideration for schizophrenia but it wouldn't be surprising.

Re: My son is schizophrenic. The ‘reforms’ that I worked for have worsened his life.

#180

Earlier quoted context omitted.

" 25% of prisoners are there because of ADHD " Source?

ADHD has a lot to do with poor impulse control. Most prisoners have low impulse control and are stupid.

That's rather narrow minded. If a country has a large prison population there are more people to blame than just those in the prison.
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