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Fake Bus Stops For Alzheimer’s patients in Germany (2011)

theiacp.org

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Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#91
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

The only "tragically sad" part is the fact that most people in developed nations end up in institutions, rather than being cared for by their families. If you want to see "tragically sad," volunteer at any nursing home in the US with a dementia/Alzheimer's ward. It's a prison where everyone's on death row, the only difference is the food sucks. What they're doing by going along with their delusions is offering these…

My grandfather had Alzheimer's for over a decade. It was always the goal to give him the best care. When possible, the family took care of him. But it's taxing. Eventually, my grandfather--not a violent person at all--started to become violent. (I've heard this is common for people with his condition.) That's when we know that he needed professional care. There are times when its in everyone's best interest to seek help from an institution.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#92
post #85
post #33

Earlier quoted context omitted.

"Tragically sad?" This is brilliantly creative, and much more humane than keeping them under lock and key or in restraints.

It's a treatment, not a cure. It's for their good, but it's still deception. I find it creepy. A true solution would be making them not forget. I think it's tragic because it's an indication of a) how terrible some diseases can be, and b) how powerless we are to stop them.

Yes, the best solution would be cure the disease, but the nursing home staff are not going to be the ones working on a cure. They have a different set of responsibilities than the noble goal of finding a cure for Alzheimer's.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#93
post #90

Earlier quoted context omitted.

The only "tragically sad" part is the fact that most people in developed nations end up in institutions, rather than being cared for by their families. If you want to see "tragically sad," volunteer at any nursing home in the US with a dementia/Alzheimer's ward. It's a prison where everyone's on death row, the only difference is the food sucks. What they're doing by going along with their delusions is offering these…

Looking after someone with dementia is a full time job which is very emotionally draining and people can live many years with dementia. A lot of people could not afford to look after their loved ones, economically or mentally. I imagine you'll quit your job when the time comes to look after your parents? If I ever get dementia I'd like to be euthanasied, rather than have my children suffer through it.

> I imagine you'll quit your job when the time comes to look after your parents?

One of my dad's coworkers did exactly that. He gave up his high paying six-figure job to go back to India to take care of his dad.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#94
post #54
post #7

They also have these in the US. My grandfather was in a home that had a whole 1940s small town-type setting in the backyard area complete with bus stop, sidewalk, and a little bit of fake street.

That sounds beautiful. Can you give us a link with more info?

I can't seem to find a link. It wasn't very large. Maybe 8 feet by 20. But it was just enough to make it feel like the way things used to be.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#95

Earlier quoted context omitted.

It appears that most of the directories that appear between the domain name and the final file name are optional. The following URL points to the same page: http://www.theiacp.org/This/Is/Something/That/Does/Not/Exist...

The /By is also unnecessary. This certainly makes it easier to submit a story to HN multiple times.

It's not too difficult to trick a filter on any page. I assume you can append a garbage query string for the same effect.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#96

I guess this is what goes as a "psychological hack". Definitely interesting to see how you can play the same tricks on people as you can on machines as long as you know enough about how they work internally. Interesting and scary I guess. We all know how big corp is going to be spending billions on this to manipulate us all.

We all know how big corp is going to be spending billions on this to manipulate us all That's more than a little hyperbolic. No matter how much money someone spends, while I'm sane I will not (cannot?) be manipulated to stand next to a fake bus stop. Back on topic, my girlfriend works at a nursing home and she has often spoke to me about the residents being eager to go home, and just as in the article the residents o…

  "No matter how much money someone spends, while I'm sane I will not (cannot?) be manipulated to stand next to a fake bus stop."
I'm sure this doesn't apply to you specifically (nor anyone in the HN crowd), but your statement really made me think of this article. http://www.nydailynews.com/new-york/video-man-pranks-times-s...

But to add some substance to this comment, let me add something. Be it marketing drivel or just the flurry of advertisements we see every day, we are being conditioned and manipulated. To a society where we need to buy to be happy, where you need Tide for clean clothes and McDonalds for happy children. Where brand names matter, and showing wealth is more important than fulfilling interests. Not to sound all hippy dippy, but I think it's naive to say that we aren't being manipulated.

I do want to also agree with your last point though. I'm amazed that in our current society that we have no "right to death". I too hope this changes by the time I start to turn.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#98
post #90

Earlier quoted context omitted.

Looking after someone with dementia is a full time job which is very emotionally draining and people can live many years with dementia. A lot of people could not afford to look after their loved ones, economically or mentally. I imagine you'll quit your job when the time comes to look after your parents? If I ever get dementia I'd like to be euthanasied, rather than have my children suffer through it.

> I imagine you'll quit your job when the time comes to look after your parents? One of my dad's coworkers did exactly that. He gave up his high paying six-figure job to go back to India to take care of his dad.

I know that some people can do this and good on them for doing it, but not everyone will be in the position to do it.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#99
post #39

Earlier quoted context omitted.

Sadly this only works in places where public transportation is effective and has been so for a long time.

There was a nursing home in my home town that had a rural American analogue: a car that didn't start in the nursing home's back yard. The anecdotes I heard weren't about rushing home to their families, but rather, using the car for things like getting groceries. Apparently it was a very successful tool.

At first I was going to say "what a sad reflection on American culture" (the fact that the car is the enduring anchor of the Alzheimer patient), but then I realized they could use the same single car for all their patients, so it is, in a way, mass transit.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#100
Given the number of people on here who appreciate a good life hack, has anyone got any ideas for other solutions? My family's currently going through the to home or not to home question. Arguments for standard solutions are essentially:

- A care home offers full time protection, but displaces the person from their familiar environment. Some care homes also don't attend their patients but focus on making a profit; though we hope that by visiting often and looking at existing patients we can get an idea of which ones are suitable. It costs money, but the money in this case comes from my Nan's savings, and she's not going to be spending it on anything more than basic living costs anyway. My family don't need the money, so though in some cases inheritance is a concert (i.e. people save up through their lives to provide for their family even in death), that's not a concern for our situation.

- Leaving the person in their own home seems the nicest but least practical option. Having family members or carers visit frequently to keep an eye on the person adds in some security, but family can't be there all the time (we're talking a 90 minute drive there in good traffic; so 3 hours round trip) and carers aren't immediately recognised so can seem an intrusion to the sufferer, often leading to stressful confrontations.

- Having the person move in with their children gives full time protection by people who know and love them, but strips their children of freedom (their lives essentially becoming that of full time carers with the added depression of watching someone they love fade away).

On top of the above there are also internal family conflicts; for example my aunt is pushing for the state to fund any care solution (by not doing anything to help ourselves so the state acts as a catch statement) whilst my mum feels we should do all we can as well as taking what the state offers - but both working together (i.e. my mum & aunt have been given responsibility over my nan's care and assets on the condition they use those assets to my nan's best interest - trying to squeeze more out of the state isn't in her best interests, but may mean that my mum & aunt would lose their rights because by not using my nan's assets they're being irresponsible; the state could then take control of those assets and make all decisions without my mum or aunt's input).

Given all of these factors (and I'm sure you can all think of more), what other ideas can you come up with to improve the system to provide a solution which gives people security and dignity, whilst ensuring that families still maintain some freedom to experience their own lives?

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