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Fake Bus Stops For Alzheimer’s patients in Germany (2011)

theiacp.org

81–90 of 108 posts

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#81
post #11

OT, but that is one hell of a hierarchical URL

It appears that most of the directories that appear between the domain name and the final file name are optional. The following URL points to the same page: http://www.theiacp.org/This/Is/Something/That/Does/Not/Exist...

The /By is also unnecessary. This certainly makes it easier to submit a story to HN multiple times.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#82
post #74

This made me pause and think about what might be needed when I get old. Will the nursing home need to have a vintage Macbook seeded with data from The Internet Archive so I can obsessively check Hacker News and Twitter to see if anything is "new"?

Make it in advance, and make it in C.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#83
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

Actually, it is also an effective way to help patients relax and alleviate their anxiety. And, it is for the good of patients. Even if it is manipulation, it's a great deal better than situations where a manipulator is trying to get an advantage. E.g. you are told partial truth at work by the management. etc...

It shouldn't be regarded as manipulation IMHO.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#84
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

The only "tragically sad" part is the fact that most people in developed nations end up in institutions, rather than being cared for by their families.

If you want to see "tragically sad," volunteer at any nursing home in the US with a dementia/Alzheimer's ward. It's a prison where everyone's on death row, the only difference is the food sucks.

What they're doing by going along with their delusions is offering these elderly people more peace in their confusion. Interrupting a delusion abruptly is like slapping a baby for crying - they can't help their situation and limitations and they won't understand the punishment.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#85
post #33
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

"Tragically sad?" This is brilliantly creative, and much more humane than keeping them under lock and key or in restraints.

It's a treatment, not a cure. It's for their good, but it's still deception. I find it creepy. A true solution would be making them not forget.

I think it's tragic because it's an indication of a) how terrible some diseases can be, and b) how powerless we are to stop them.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#87
post #39

Earlier quoted context omitted.

Sadly this only works in places where public transportation is effective and has been so for a long time.

There was a nursing home in my home town that had a rural American analogue: a car that didn't start in the nursing home's back yard. The anecdotes I heard weren't about rushing home to their families, but rather, using the car for things like getting groceries. Apparently it was a very successful tool.

The Aegis assisted living facility in Aptos, CA has a non-running old car installed in the back. Residents can polish it and sit inside.

http://www.aegisliving.com/aegis-living-of-aptos/gallery/

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#88

People knowing about fake stuff NOW, who will have Alzheimer in 40 Years, will NOT forget that there are fake bus-stops and stuff in the backyard. So they will know that nursing homes have fake stuff and they will complain about it. My opinion about "it's sad": Alzheimer is not very sad for the pacients, but for their families. The patients, like my grandfather and grandmother, don't really know they _have_ it, and t…

Sorry, but this a very limited description of the disease. Alzheimer's, like all dementias, is a disease of the brain , not "just memory". It comes with a whole suite of symptoms and difficulties that are experienced directly by the patient, including depression, irritability, aphasias, and often physical limitations in advanced cases. Long-term memory loss dominates public perception of the disease, but as anyone wh…

Dementia is a part of my condition (which seems to be idiopathic, presenting symptoms of both Parkinson's and Huntington's). The motor difficulties and aphasic episodes are the things that I can't explain away, even though the explanations for other things are often quite convoluted. There was a period of some weeks a couple of years ago now when I amassed what must have been the largest privately-held collection of tomato ketchup in Canada, apparently by going shopping for food I needed and, having no idea why I was in a grocery store (or, for that matter, which store I was in) deciding that I was probably nearly out of ketchup anyway, and that I could get out of the store without embarrassment if I bought a bottle. I lost nearly thirty pounds that month, and wound up in the hospital twice due to extreme dehydration. Apparently I was not particularly nice to the people who were trying to help me, since I didn't need their damned help anyway, and they were trying to poison me. Things are considerably better now with medication, but there are still times when I find myself completely lost in what should be familiar territory. And I'm no longer really attached to anybody; it's like that part of me is missing now, and I can't sustain anything like caring. I don't know how much of the depression and irritation is part of the pathology and how much is just frustration and fear (terror, really) that never really goes away. Sometimes I think that if there is ever a root cause found and a cure effected, it would take me many years before I would trust normal life again.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#89
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

The only "tragically sad" part is the fact that most people in developed nations end up in institutions, rather than being cared for by their families. If you want to see "tragically sad," volunteer at any nursing home in the US with a dementia/Alzheimer's ward. It's a prison where everyone's on death row, the only difference is the food sucks. What they're doing by going along with their delusions is offering these…

Is leaving them completely alone for ten hours a day, five days a week really that much better? Especially with dementia, where they could wander off with no one even attempting to stop them.

Re: Fake Bus Stops For Alzheimer’s patients in Germany (2011)

#90
post #2

In a way I find this kind of manipulation tragically sad, but in reality the true tragedy is the cognitive decline associated with Alzheimer's. I'm glad nursing homes have figured out a way to mitigate some of the problems until scientists can cure or prevent Alzheimer's for good.

The only "tragically sad" part is the fact that most people in developed nations end up in institutions, rather than being cared for by their families. If you want to see "tragically sad," volunteer at any nursing home in the US with a dementia/Alzheimer's ward. It's a prison where everyone's on death row, the only difference is the food sucks. What they're doing by going along with their delusions is offering these…

Looking after someone with dementia is a full time job which is very emotionally draining and people can live many years with dementia. A lot of people could not afford to look after their loved ones, economically or mentally.

I imagine you'll quit your job when the time comes to look after your parents?

If I ever get dementia I'd like to be euthanasied, rather than have my children suffer through it.

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