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U.S. autism data project sparks uproar over ethics, privacy and intent

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Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#51

Ultimately, whether one thinks that having more volume of and more or less fragmented statistics is good or bad depends on their opinion of the State. Olivier Ray wrote a great book about the history of statistics : Quand le monde s’est fait nombre (fr) https://archive.org/details/OlivierReynombre/ https://www.radiofrance.fr/franceculture/podcasts/les-chemin... . https://www.fnac.com/a9931250/Olivier-Rey-Quand-le-mon…

The state has made their intentions crystal clear…

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#52
post #15

Aktion T4 next? This is a dark dark road. I suspect the US will become like Germany in the next few decades where the paranoia about handing any data over is justifiably high. I hope this burns the unethical side of the tech industry to the ground. It deserves it.

Already the US can serve as a good example when discussing the need for unbreakable cryptography and e2e systems. The current decline nicely illustrates how quickly you can go from "The police have legitimate needs to break encryption to find heinous criminals" to something far more dystopian.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#53

[flagged]

What would you suggest Americans actually do? They voted this in knowing this would happen. It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?

You should stop it from happening by any means necessary like last time. Organize. Talk to each other and figure out what all your options are. Do your threat modelling. Then act.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#54
post #4

This is just another angle of placing people in camps. Combine this with the overzealous focus on transvestites and the so called "illegal aliens" you should see a pattern with where the Nazis began.

> transvestites The focus seems to lie on transgender people, not cross dressers.

I think the point was to use a "historical" term to evoke how the nazis would have spoken about trans people.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#55
It’s interesting to muse about the larger picture here. What is it that makes autism so dangerous? To me it looks like part of an almost spiritual war against empathy/compassion by traumatized individuals trying to fight their own Jungian Shadow.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#56
The controversy seems to be stemmed from American's relationship with their government. Most European countries do have many different(including autism and other stuff) centralized book keeping and registries to help with monitoring and management of certain deceases and conditions. During Covid-19 UK and Turkey were able to quickly iterate their response based on the centralized data collected and most of the EU also had similar stuff and later they were able to look back into the data to see if Covid or the vaccines caused further issues down the road. IMHO vaccines are much less controversial in those societies because it's pretty easy to look ot up when a Twitter influencer claims something.

But hey, considering what happened the last few months maybe Americans have a point for their case. In most of the Europe governments collapse and streets burn for much less all the time, in US they don't appear to have a recourse for at least 4 years.

Maybe its a good idea not to give the data to government affiliated billionaires that can crunch some numbers, feed the data to a machibne and come up with an optimization solutions like "If we can get rid of those suboptimal humans we can pay less income taxes". What are you going to do if the machine tells you that if an autist isn't making x amount of money by the age y it is drain to the society and the formula suggest that a deportation yields better outcomes financially?

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#57

[flagged]

I'll quote Kennedy's dehumanizing comments for context, that people can compare the two styles of rhetoric:

- "Kennedy said many autistic children were “fully functional” and “regressed … into autism when they were 2 years old. And these are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted.”"

- "He also said, “Most cases now are severe. Twenty-five percent of the kids who are diagnosed with autism are nonverbal, non-toilet-trained, and have other stereotypical features.”"

https://www.pbs.org/newshour/politics/fact-checking-robert-f...

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#58
post #28
post #4

This is just another angle of placing people in camps. Combine this with the overzealous focus on transvestites and the so called "illegal aliens" you should see a pattern with where the Nazis began.

Nit, nobody actually cares all that much about trans vestites . Vest like from vestments meaning clothes. They're cross-dressers. Historically transsexual or transgender (depends on the country which one is the more prominent term) people have been called transvestites but it was a mischaracterization. Someone born with XX chromosomes but who lives his life full-time as a man is very different from a woman who likes…

While you're right on the terms, you're wrong about the stigma on cross-dressing. There is really very little distinction bigots make between their hate for cross-dressing and their hate for trans people. It all falls under a big umbrella of "degeneracy" to them. Even actors in cross-dressing roles are often hated by these people.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#59

[flagged]

it needs to be pointed out that the medical "profesion", especialy anything related to psychology does not let anyone who comes in, and leave, without a diagnosis.....unless it is someone getting a mandatory check for a security clearance, in which case it's sunshine and happyness. The best anyone else can hope for is ....."inconclusive", nobody gets an all clear, except money and power, for whom, a full psychotic break will be spun into something virtuously overcome and meritable. History, might not repeat, but it sure as fuck rhymes. The two year old child of an American citizen was deported last week, so this is already gone completly off the rails.

Re: U.S. autism data project sparks uproar over ethics, privacy and intent

#60

[flagged]

What would you suggest Americans actually do? They voted this in knowing this would happen. It’s one thing to shout into a void about some vague disagreement, but it’s entirely different to actually take some form of real action. What should that action comprise?

1. Join up on your local 50501 protest, next one is on May 1: https://www.fiftyfifty.one/events

2. Continue speaking loudly about the various criminal acts of this administration and continue reinforcing the importance of not tuning it out

3. Find promising candidates and fund their run in 2026 to flip the house and strangle the administration with impeachments over their long list of violations of the Constitution

4. Arm yourselves in general before the GOP finally decides they're okay with preventing certain people from buying firearms (specifically "mentally ill" people who don't like Trump, i.e. https://thehill.com/homenews/5200463-trump-derangement-syndr...)

There's a great deal on an AR-15 at Palmetto State Armory right now — only $400!: https://palmettostatearmory.com/psa-pa15-16-phos-a2-mid-leng...

A lot of libs don't know this, but shooting is also extremely fun and gun people are extremely friendly and welcoming. Get a gun, book a lesson at your local range, and enjoy an afternoon learning how to use it. Guns are also a lot of fun for the gear-junkie types that I'm sure are overrepresented here on HN.

EDIT: I changed the order of these, apologies to the commenter below!

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