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Living with Nausea: My Story in Six Charts
51–60 of 90 posts
Re: Living with Nausea: My Story in Six Charts
#52Hey there, i have crohns' which isn't nausea based for me but definitely i understand the debilitating nature of gastrointestinal issues. It really just kills your ability to think, to talk socially, it completely and totally stole my adolescence. I'm sure you've done endless research, I'm not gonna tell you i have a cure. But if you haven't, you should look into gut microbiota. My understanding is that the balance o…
Another Crohn's sufferer checking in—Visibiome probiotics are legit. They don't help everyone, and don't actually repair the intestinal lining (which is a must for these kinds of issues), but can definitely spark improvements. It's also one of the few probiotics with clinical trials to back it up.
Re: Living with Nausea: My Story in Six Charts
#53Earlier quoted context omitted.
That's so interesting. I have crohns' (definitely not remission but not flare either), and nausea has never been a thing for me. It's just pain and the usual incomplete digestion if i stray at all out of my heavily restricted diet. How did you get remission? I'm about to have to up my remicade dose
Mine is primarily in my large intestine, so it's like a weird combination of Crohn's and UC, which could be why it causes so much nausea. Remission for me was just sort of luck and time. I was first diagnosed at 28, was on a ton of steroids followed by about 20 years of Imuran. After a colonoscopy my GI doctor said that my colon shows no sign of damage anymore and that since Imuran increases risk for cancer that I sh…
Knock on wood, mesalamine has been good to me too. (Not quite remission atm but promising improvements.) IIRC most of its effect is in the large intestine, so it generally works better for people with UC, but I'm the same in that my Crohn's is mostly colorectal.
Unlike you I haven't had nausea as a primary symptom though, knock on wood. It's weird/interesting how much variance there is between Crohn's patients... fast food destroys me, but then you hear about people whose safe food is McDonald's :P
Re: Living with Nausea: My Story in Six Charts
#54My feeling is this was caused by COVID damaging the neurons or receptors of the stomach or duodenum, or, more likely that COVID caused a Magnesium Deficiency: https://pmc.ncbi.nlm.nih.gov/articles/PMC10445067/ But some thoughts: If the stomach is not emptying it means it is not getting the signal to empty. Some of his symptoms signal high serotonin (panic attack, nasuea) https://www.nature.com/articles/1300880 Anti-n…
Wow, please disregard that last post. I made a huge error. CCK slows gastric emptying.
Will rework tomorrow.
Re: Living with Nausea: My Story in Six Charts
#55Earlier quoted context omitted.
The author explicitly mentions they collected all this data hoping it would be valuable to the specialists they have seen, but found they consistently were uninterested in it — an experience I can say is nearly universal for chronic illness sufferers I know in the US.
doctors don't have any experience doing that and are set in their ways Maybe, it's diagnosing chronic conditions is an opportunity for a disruptive startup? Crowd sourced diagnosis detective work! Call it DrHouse.io, you dump your data and hobbyist doctor investigators try to figure a diagnosis that fits all the symptoms Top ranking users collect mad fees from "commissioned" diagnosis.
Sounds like a site that would fill up immediately with diagnoses of wifi exposure, delayed vaccine reaction, and chemical exposure from chemtrails.
Re: Living with Nausea: My Story in Six Charts
#56Earlier quoted context omitted.
doctors don't have any experience doing that and are set in their ways Maybe, it's diagnosing chronic conditions is an opportunity for a disruptive startup? Crowd sourced diagnosis detective work! Call it DrHouse.io, you dump your data and hobbyist doctor investigators try to figure a diagnosis that fits all the symptoms Top ranking users collect mad fees from "commissioned" diagnosis.
Sounds like a site that would fill up immediately with diagnoses of wifi exposure, delayed vaccine reaction, and chemical exposure from chemtrails.
hey, that's a niche too
just tag it in a non-offensive way (deep-state related?) and allow other users to filter it out
Re: Living with Nausea: My Story in Six Charts
#57Earlier quoted context omitted.
That’s a very good and funny interview, thank you! TLDW: Steve Jobs cured Scott Forstall’s chronic nausea by almost dedicating a wing in a hospital.
Actual TLDW (parent commenter might not've watched through the aside): Steve Jobs brought the "world's best acupuncturist" to Scott Forstall in the hospital and literally saved his life.
It is impossible to watch only till the aside about dedicating the hospital wing without learning about the acupuncturist. Those two are connected.
You’re not fun.
Re: Living with Nausea: My Story in Six Charts
#58Earlier quoted context omitted.
Actual TLDW (parent commenter might not've watched through the aside): Steve Jobs brought the "world's best acupuncturist" to Scott Forstall in the hospital and literally saved his life.
It is impossible to watch only till the aside about dedicating the hospital wing without learning about the acupuncturist. Those two are connected. You’re not fun.
Fact check: Correct!
Re: Living with Nausea: My Story in Six Charts
#59Possibly a bit out there of a suggestion, but I had a similar issue where I fairly abruptly developed more or less constant nausea. Eventually, by chance after an endoscopy related to figuring out the cause of the nausea, my doctor realized my B12 level was extremely low, and once they treated me with injections once a day of b12 for a week or two, the nausea suddenly stopped
Re: Living with Nausea: My Story in Six Charts
#60[deleted]