Hacker News Board Hacker News, browsed like a classic message board
Live data from Hacker News

Living with Nausea: My Story in Six Charts

c82.net

Post reply on HN
Print view View original

31–40 of 90 posts

Re: Living with Nausea: My Story in Six Charts

#31

Post by geye1234 »

Absolutely, 100% consider migraines. Headaches are far from their only symptom, and headache-free migraines are a thing. Nausea is a common symptom. It's worth a try, and the medication is generally safe with few side effects. Consider talking to your neurologist or finding another that specializes in headaches.

Start with triptans (which your insurance may insist you do anyway), which are very cheap, and then try a CGRP blocker like Nurtec, which is patented and expensive. I get migraines, but nausea, depression and tiredness are far bigger effects for me than the actual headache (which is normally controllable with OTC drugs). CGRP blockers have been life-changing. It took them years to diagnose me with migraines, in fact I had to suggest it myself.

Re: Living with Nausea: My Story in Six Charts

#32

Post by [deleted] »

divbzero wrote: post #21

Zen and the Art of Motorcycle Maintenance describes how motorcycle maintenance by the owner is qualitatively different from motorcycle maintenance by a professional mechanic. The professional mechanic can examine the motorcycle at a single point in time, but the owner rides the motorcycle and can collect observations as the motorcycle runs. Understanding your body can be similar. While medical expertise is absolutely…

[deleted]

Re: Living with Nausea: My Story in Six Charts

#33

Post by dillydogg »

drewg123 wrote: post #7

I had GI surgery, and afterwards, I had an "Ileus" (intestines don't move food through), which is apparently a low probability side effect. I was utterly miserable for a week, with horrible nausea and vomiting. Even water. If my wife had not made me go back to the hospital, I'd probably have died from dehydration. I cannot imagine living with nausea for months or years.

Depending on the risk factors (prolonged surgery, open surgery, opioid use, hypokalemia, NG tube placement) postoperative ileus is seen in 10-20% of people after GI surgery.

Not to minimize the terrible subjective experience you've had. I wanted to point out that it isn't that uncommon.

https://www.ncbi.nlm.nih.gov/books/NBK558937/

Re: Living with Nausea: My Story in Six Charts

#35

Post by hvs »

wholinator2 wrote: post #9
hvs wrote: post #4

As someone with Crohn's disease (thankfully now in remission) I can fully relate. Nausea is the worst symptom because it is so debilitating. You don't want to do anything when you are nauseated and when it goes on for months that affects every part of your life.

That's so interesting. I have crohns' (definitely not remission but not flare either), and nausea has never been a thing for me. It's just pain and the usual incomplete digestion if i stray at all out of my heavily restricted diet. How did you get remission? I'm about to have to up my remicade dose

Mine is primarily in my large intestine, so it's like a weird combination of Crohn's and UC, which could be why it causes so much nausea. Remission for me was just sort of luck and time. I was first diagnosed at 28, was on a ton of steroids followed by about 20 years of Imuran. After a colonoscopy my GI doctor said that my colon shows no sign of damage anymore and that since Imuran increases risk for cancer that I should consider trying to reduce my dosage. After about a year of reducing I was totally off with no return of symptoms. Now I'm just on mesalamine. So, TL;DR, I got lucky. Good luck with your treatment.

Re: Living with Nausea: My Story in Six Charts

#36

Post by pfdietz »

geye1234 wrote: post #31

Absolutely, 100% consider migraines. Headaches are far from their only symptom, and headache-free migraines are a thing. Nausea is a common symptom. It's worth a try, and the medication is generally safe with few side effects. Consider talking to your neurologist or finding another that specializes in headaches. Start with triptans (which your insurance may insist you do anyway), which are very cheap, and then try a…

Abdominal migraine is thought to be what caused the nausea that plagued Charles Darwin through much of his life.

Re: Living with Nausea: My Story in Six Charts

#38

Post by binary132 »

wholinator2 wrote: post #12

Hey there, i have crohns' which isn't nausea based for me but definitely i understand the debilitating nature of gastrointestinal issues. It really just kills your ability to think, to talk socially, it completely and totally stole my adolescence. I'm sure you've done endless research, I'm not gonna tell you i have a cure. But if you haven't, you should look into gut microbiota. My understanding is that the balance o…

Yes, I think this is an incredibly important area of research that has enormous potential to affect countless people’s lives for the better. My wife suffered from chronic GI pain attacks for years and now I have come down with an entire year of symptoms (that seem to be improving overall — but I still need to do testing, but have been avoiding diagnostics…)

I intend to try to do something to help people in a similar situation to what we went through when she was sick, but I’m not too sure where to start and haven’t found the time or energy yet. Siggi’s plain filmjölk seems to help…

Really important stuff

Re: Living with Nausea: My Story in Six Charts

#39

Post by coolspot »

interdimensi0n wrote: post #5

Is it same as the case + solution in this video w Forstall? https://www.youtube.com/watch?v=IiuVggWNqSA&t=2490s

That’s a very good and funny interview, thank you!

TLDW: Steve Jobs cured Scott Forstall’s chronic nausea by almost dedicating a wing in a hospital.

Re: Living with Nausea: My Story in Six Charts

#40

Post by dgunay »

mncharity wrote: post #22
GlenTheMachine wrote: post #8

So my kid has ARFID. I am not a doctor, but what I have learned is that eventually, anything that causes nausea associated with eating can progress into ARFID, even if the original underlying cause resolves. ARFID is technically an eating disorder, like anorexia, but it isn't related to poor body image; it is, basically, a food aversion to, well, food. All food, or nearly all. This is what happened to my kid; there’s…

Fwiw: Strenuous winter activities (eg mountain hiking and camping) can more than double baseline calorie demand. Sitting down to a base camp meal afterward can be a body-has-a-mind-of-its-own saliva-gushing "FEED ME NOW!!!" experience of really-need-to-pee intensity. Normally unappealing food commonly becomes just fine - uncooked pasta, blocks of lard, whatever. So I wonder... what happens if food-is-nauseating is re…

I haven't ever had a real eating disorder, but a lot of my childhood food aversions were finally broken during times of extreme hunger.
Post reply on HN