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Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#91

Post by H8crilA »

krageon wrote: post #70
H8crilA wrote: post #59

Earlier quoted context omitted.

[flagged]

It's not that it sucks to have this brought up, it's that the people who do are pretty consistently dismissive and infantilising about it. Naturally, folks that this happens to develop an aversion to people that say the same thing for the millionth time. It's not novel, it's not interesting (in that it never leads anywhere novel either) and it's frequently hostile.

The bigger problem is that nothing seems to be "interesting", in the sense that nothing leads anywhere with this disorder - no test, and no treatment.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#92

Post by BobbyTables2 »

michh wrote: post #82
user568439 wrote: post #43

Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero…

Another Dutchie here. Anything not immediately fatal is indeed treated by just taking it easy and perhaps some paracetamol for the placebo effect. I have a chronic illness in the same kind of category and it took me years to find out what it was and to get proper treatment. Which has improved my quality of life dramatically ! But even now I travel halfway across the country to a university hospital where a specialist…

Are you sure you aren’t in the US?

I find specialists here have zero intellectual curiosity. Sure, they recognize the most common condition in their field when blatantly obvious.

When it comes to the second most common issue in their field or anything not blatantly obvious (significant test result and 10/10 excruciating pain), they will just offer no diagnosis and go no further.

Just getting them to do an exam or even order a test is a huge challenge…

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#93

Post by looofooo0 »

bigolkevin wrote: post #83
Tade0 wrote: post #69

That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long…

[flagged]

Cannot speak for the person before, but I gave up on any protection. With 3 children from 3-10 it will catch me anyhow.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#95

Post by datavirtue »

hgomersall wrote: post #65
tempfile wrote: post #38

Earlier quoted context omitted.

I am not objecting to the general point that diseases are hard to diagnose. The wording OP used does not just say that - phrases like "so-called" come with an implication that the thing being referred to is just made up. That's why my comment asks if they would say the same thing about ADHD and Autism. They probably wouldn't, because it would carry an implication that they thought ADHD and Autism were somehow "fake".

ADHD and Autism are interesting, because they are entirely based on certain clinical presentations and the opinion of the diagnosing practitioner. There are a certain set of traits that are "classically" ADHD for example, so what happens if you show 80% of those traits and show the counter-case for 20% of the traits? I expect that neurodivergence is going to become far more nuanced in its assessment, with a better un…

In the Cincinnati area they throw up their hands if you are over the age of 12 and suspect ADHD. There is little to no help if you are an adult or close to it.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#97

Post by paulryanrogers »

bigolkevin wrote: post #83
Tade0 wrote: post #69

That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long…

[flagged]

Not OP, but I still wear a mask on planes, wash my hands more often and more thoroughly, avoid touching my eyes, use more air filters, and don't share foods with my kids.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#98

Post by Intermernet »

em-bee wrote: post #37
rvense wrote: post #32

Earlier quoted context omitted.

"Are you bleeding?" "No." "It's probably stress, then."

if only we could objectively (and easily) measure pain and energy levels (feeling tired) and even stress. stress is used here as a dismissal (not by you but the hypothetical doctor you are parodying) but stress too is a real health factor that people need help with.

Nobel Laureate Barry Marshall (co discoverer of Helicobacter Pylori, cause of stomach ulcers) gave a talk to a graduating class at the university he went to (can't find link, but it's on the net somewhere). He talks about "stress" being a fertile area of research for medical advances. His argument is that stress is rarely the direct cause of anything. It might be a secondary cause, or it might be a symptom, but research into ailments currently attributed to "stress" is a really good direction for the aspiring young medical research scientists out there.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#99

Post by dataengineer56 »

aquir wrote: post #67

I’m following her progress on Patreon and the fact that she’s getting better is great! Can’t wait her comeback video!

I find it interesting that she's both kept her Patreon up during this time and has also become far more successful https://graphtreon.com/creator/physicsgirl, in spite of posting no content.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#100

Post by datavirtue »

anonzzzies wrote: post #25
nickhodge wrote: post #7

Earlier quoted context omitted.

Severe ME/CFS. I am a carer for my wife who has this forgotten & hidden disease. I am so glad Physics Girl is getting better with rest!

It seems no doctor takes it seriously still: just you being a whiner and get over it. My mother had it in the 80s and it was really not a thing; must see a shrink, she did, didn't help of course etc etc. Never got any help besides 'well, just rest and don't worry too much'.

I think it has more to do with the doctor thinking about the absolute nightmare they are going to have to deal with interfacing with insurance companies trying to treat you. The dismissal is just their self preservation.

I have noticed that a lot of their job is playing insurance games to treat (get past preauthorizations) easily documented health issues, let alone things like ME/CFS or long COVID.

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