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Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#31

Post by Cthulhu_ »

triyambakam wrote: post #8

I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard

Weird gatekeeping but ok; COVID causes chronic fatigue syndrome in some people. Because so many were affected (millions worldwide), it got its own nickname. ME/CFS developed after a covid infection.

Modern understanding of autism / ADHD sees the two as part of a spectrum of neurodiverse conditions (think of an audio mixer of many different traits, more than a side-to-side slider), but I don't see the connection with ME/CFS, whether or not it's caused by a covid infection.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#32

Post by rvense »

Vampiero wrote: post #19
omnibrain wrote: post #18

Earlier quoted context omitted.

The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it look…

> a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

"Are you bleeding?"

"No."

"It's probably stress, then."

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#33

Post by _joel »

bilekas wrote: post #22
Vampiero wrote: post #20

Earlier quoted context omitted.

[flagged]

> And what's with this HN pattern of acting all innocuous and going "uh... care to elaborate a little further? hmm?? hm???" The 'pattern' is that comments are supposed to provide some value and not just generic statements. The HN community overall doesn't want the comment section to turn into a Facebook comment style section. So if you're going to comment, at least have something to back it up or give something that…

Ironically they posted, 2 days ago..

"Cool story but at least try to give some argumentation when you say stuff like:

>The design of the language in Dockerfile is ad hoc in a bad way. It’s difficult to understand, for me, and easy to make mistakes.

Because that reads like a skill issue to me"

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#35

Post by sterlind »

Vampiero wrote: post #19
omnibrain wrote: post #18

Earlier quoted context omitted.

The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it look…

> a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

it's wild to me, because ME/CFS can, in rare cases, be terminal. autopsy reveals various findings: inflammation of the dorsal root ganglion, degeneration of the frontal lobe, metabolic issues and tangles of proteins in neurons and glia.

RIP to the author of "The Sleepy Girl's Guide to SSDI", who died young to ME/CFS, attributed to neuroinflammation in her autopsy.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#37

Post by em-bee »

rvense wrote: post #32
Vampiero wrote: post #19

Earlier quoted context omitted.

> a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

"Are you bleeding?" "No." "It's probably stress, then."

if only we could objectively (and easily) measure pain and energy levels (feeling tired) and even stress. stress is used here as a dismissal (not by you but the hypothetical doctor you are parodying) but stress too is a real health factor that people need help with.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#38

Post by tempfile »

acomjean wrote: post #28
tempfile wrote: post #21

Earlier quoted context omitted.

[flagged]

I think the point being made was diseases can be difficult to diagnose. Some diseases don’t have explicit tests. ADHD is diagnosed by looking at just symptoms if I remember correctly. I’m not sure about autism. I knew someone who became sick. At first it was thought to be Lyme, it took a long while to determine and a bunch of other theories to determine it was lupus. Tests were not fully accurate and these illnesses…

I am not objecting to the general point that diseases are hard to diagnose. The wording OP used does not just say that - phrases like "so-called" come with an implication that the thing being referred to is just made up. That's why my comment asks if they would say the same thing about ADHD and Autism. They probably wouldn't, because it would carry an implication that they thought ADHD and Autism were somehow "fake".

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#39

Post by jjallen »

So great to see and hear. I honestly did not think this was going to improve and expected the worst. Very glad to see otherwise.

Unfortunately I experienced a similar thing though much milder and shorter last summer.

Hope we can figure out viruses better soon!

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