81–90 of 334 posts
That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long…
Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero…
Anything not immediately fatal is indeed treated by just taking it easy and perhaps some paracetamol for the placebo effect.
I have a chronic illness in the same kind of category and it took me years to find out what it was and to get proper treatment. Which has improved my quality of life dramatically!
But even now I travel halfway across the country to a university hospital where a specialist takes me seriously, the GP is still a bit 'meh whatever'. I'm fairly sure he put a "psychosomatic/hypochondriac" flag on my file and never removed it when the specialists diagnosed me.
Our healthcare system has overcorrected on what they dismiss as 'aanstellerij' en 'Amerikaanse toestanden' and many in the field are actually quite proud of this.
That's great to hear. I remember Simone Giertz breaking out the bad news to her followers and sounding no less serious than when she was talking about her own brain surgery. My former co-worker got COVID twice, as preventive measures didn't fit into his moral framework, and the second time resulted in a mild case of long COVID. I'm saying "mild" as he was not bedridden, but the cognitive decline was noticeable. Long…
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ADHD and Autism are interesting, because they are entirely based on certain clinical presentations and the opinion of the diagnosing practitioner. There are a certain set of traits that are "classically" ADHD for example, so what happens if you show 80% of those traits and show the counter-case for 20% of the traits? I expect that neurodivergence is going to become far more nuanced in its assessment, with a better un…
You can literally see ADHD in a brain scan, especially if you contrast it with after someone has taken the proper medication for it. This isn't some sort of witchcraft, it's a physical thing that's measurable.
I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro . although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!
Anecdote: Back in October '24 I got Covid. My only symptom that stuck around was lack of taste on my tongue (NOT Anosmia, it's lack of salty/sweet/sour/bitter response on the tongue itself), but only on the right half of my tongue. It slowly got better, but last week I lost taste on that side of my tongue again. The taste is coming back again now. Anyway, I have no idea what's going on with me; it's not really severe…
In circa 2022 I got covid and lost smell. First I couldn't smell the spices in the kitchen, but I thought nothing of it. But some days later, I couldn't smell WD-40. That's when I noticed I can't smell anything at all. My sense of smell never really recovered. After about a year, I could faintly smell menthol. Now I have to really try hard if I want to get some faint sense of smell, but a lot of time I just don't sme…
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> And what's with this HN pattern of acting all innocuous and going "uh... care to elaborate a little further? hmm?? hm???" The 'pattern' is that comments are supposed to provide some value and not just generic statements. The HN community overall doesn't want the comment section to turn into a Facebook comment style section. So if you're going to comment, at least have something to back it up or give something that…
Ironically they posted, 2 days ago.. "Cool story but at least try to give some argumentation when you say stuff like: >The design of the language in Dockerfile is ad hoc in a bad way. It’s difficult to understand, for me, and easy to make mistakes. Because that reads like a skill issue to me"
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> In the Netherlands, doctors only start acting when you are dying. this horrible situation is in no way restricted to the Netherlands.
There is obviously whole medical system for cash paying upper class. That’s why I am trying to have some cash on hand for medical emergency. Few thousand euros can make a difference of 50 years in treatment methods here in Germany. The outcome may be massively better this way. Sadly I learned this lesson the hard way.
And yeah the dying comment is 100% true for Denmark too. The doctors have no clue about what preventative treatment is and will just let it fester into something more serious they're forced to treat - diabetes is a huge example of this.
From personal experience, I was left waiting for a testicular cancer biopsy for over a year. After the operation I found out if I did have cancer there was a high chance the biopsy would've caused it to progress much more rapidly (as opposed to other methods of checking). So great you let the cancer grow in my nuts for a year, and then you make it more aggressive? wtf?? Thankfully I was diagnosed cancer free.
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Yeah a relative of mine had it decades before Covid. A better term may be "Long Virus" since multiple viruses can trigger it, Covid just happens to be the most recent pandemic.
Eh, the advantage of "long Covid" is that syndromes are clusters of symptoms without a known underlying cause. "Long Covid" may give ME/CFS symptoms, but if you solicit 100 Long Covid sufferers for a study, you are more likely to be able to find underlying similarities than for 100 ME/CFS suffers. The results would potentially scale to some sunset of ME/CFS suffers neho never had Covid, but it makes sense to start wi…
Some long covid symptoms are nothing like ME/CFS such as a persistant loss of taste and smell. And there are people with ME/CFS who never had covid.
Anyways, I am sure that research goes both way, that is, studying the consequences of covid and the causes of ME/CFS. "meet in the middle" can be a good exploration strategy.