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Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#71

Earlier quoted context omitted.

I am not objecting to the general point that diseases are hard to diagnose. The wording OP used does not just say that - phrases like "so-called" come with an implication that the thing being referred to is just made up. That's why my comment asks if they would say the same thing about ADHD and Autism. They probably wouldn't, because it would carry an implication that they thought ADHD and Autism were somehow "fake".

ADHD and Autism are interesting, because they are entirely based on certain clinical presentations and the opinion of the diagnosing practitioner. There are a certain set of traits that are "classically" ADHD for example, so what happens if you show 80% of those traits and show the counter-case for 20% of the traits? I expect that neurodivergence is going to become far more nuanced in its assessment, with a better un…

You can literally see ADHD in a brain scan, especially if you contrast it with after someone has taken the proper medication for it. This isn't some sort of witchcraft, it's a physical thing that's measurable.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#72

Earlier quoted context omitted.

"Long COVID" encompasses several very distinct nosological categories, which makes it a difficult term to talk about. There are at least four distinct subtypes - people who had severe acute illness and suffered respiratory injury, people who had severe acute illness and suffered cardiovascular or renal injury, people who had a relatively mild acute illness but developed long-term neurological or musculoskeletal seque…

Without knowingly being infected with COVID is probably a better way to phrase that.

https://journals.asm.org/doi/10.1128/spectrum.02537-22

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#74

Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero…

that is a horrible way to be treated by a doctor. In Germany you have free choice of your doctors. Although sometimes you have to wait quite a bit to get appointments... I am not sure, but with a a European health insurance card you should be able to also go to doctors in other countries and be at least partially covered by your insurance.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#75

I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard

Weird gatekeeping but ok; COVID causes chronic fatigue syndrome in some people. Because so many were affected (millions worldwide), it got its own nickname. ME/CFS developed after a covid infection. Modern understanding of autism / ADHD sees the two as part of a spectrum of neurodiverse conditions (think of an audio mixer of many different traits, more than a side-to-side slider), but I don't see the connection with…

>>COVID causes chronic fatigue syndrome in some people. Because so many were affected (millions worldwide), it got its own nickname.

It already had a name - post-viral fatigue syndrome. It's happened after other viruses before.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#76
post #10

I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard

The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.

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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#77

Earlier quoted context omitted.

The state of all things Me/CFS is so bad. I remember reading about cases as a child in some boulevard or women’s magazine at my grandmas house, so it must have been about 25 years ago. Seemingly nothing happened since then. Even the explosion of cases after Covid hit somehow doesn’t lead to change. In Germany many doctors still don’t know it, a lot of them think it’s psychological. There is some research, but it look…

> a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

Doctors used to believe allergy is psychological.

I think there are no actual psychological diseases. All have underlying physical causes.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#78
post #15

I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard

Yeah a relative of mine had it decades before Covid. A better term may be "Long Virus" since multiple viruses can trigger it, Covid just happens to be the most recent pandemic.

Eh, the advantage of "long Covid" is that syndromes are clusters of symptoms without a known underlying cause. "Long Covid" may give ME/CFS symptoms, but if you solicit 100 Long Covid sufferers for a study, you are more likely to be able to find underlying similarities than for 100 ME/CFS suffers.

The results would potentially scale to some sunset of ME/CFS suffers neho never had Covid, but it makes sense to start with the group we at least have a common starting point on the cause.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#79
post #32

Earlier quoted context omitted.

> a lot of them think it’s psychological. no worse feeling in the world than hearing a doctor confidently tell you that it's all in your head and that you're wasting their time. Ask me how I know..

"Are you bleeding?" "No." "It's probably stress, then."

A hole is just a sign of excessive stress on your skin.

Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs

#80

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"Ignore your illness, and just keep working" is not a viable course of action, especially not with long-covid, speaking from experience here. In third-world countries without a socialized healthcare, this simply means these people work themselves to death, starve themselves to death, or need to rely on others for their survival. It is an absurd illusion that one can just ignore a serious health issue this way.

Or, in language a non-empath like you you would comprehend: the world is better off without your opinion.

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