I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…
The cochlear implant question
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Re: The cochlear implant question
#72I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…
There are ways you can present being deaf as an advantage. I personally think it's excessively reductive, but there are those that say, for example, that you become more attuned to your other senses when you lose your hearing, or even that area of the brain can be repurposed for other tasks. They may say, therefore, that the only reason being deaf is a disability is because the world is designed for non-deaf people.…
Re: The cochlear implant question
#73Earlier quoted context omitted.
I’ve seen two signers on a train platform pause their conversation while one got on the train, then carry on through the window after they’d found a seat. While the article is hyperbolic, there are pros and cons to all modes of communication.
I went on a scuba dive trip with a couple of deaf people and I was definitely jealous.
Re: The cochlear implant question
#74> it is unarguable that only signed languages are easily accessible in all situations Even in the dark? Or at a distance? Or not facing the signer? Or with arthritis? Differently abled folks are entitled to their own culture and beliefs. Yet claims like that seem to be trying too hard to find a silver lining.
If you need to communicate while operating a vehicle sign language seem to put you at a disadvantage for example.
Re: The cochlear implant question
#75Anyone here with SSHL have experience with CI? I've heard mixed things due to the rather different sound experience vs natural hearing.
I don't have personal experience with CI, but have researched it extensively as a potential fix for my hearing loss. From what I understand, the number of electrodes or links to neural tissue is the limiting factor. With something like NeuraLink with 1024 electrodes, the resolution of the sound signal can be much higher. For something like early cochlear implants, with 8 or 12 channels, the signal is going to be very…
Yeah, what I've heard is that a lot of people do it, don't like it because it's really not the same as before, so they wind up going through the whole process only to abandon it.
Fascinating stuff about implant tech though.
Re: The cochlear implant question
#76I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…
This isn't an argument for or against the comment or the OP, but this is not universally seen as objective, and there are more ways to think about this than the medical model where there are "normal" people and that disabilities are deviations from what is "normal". Many disabled people and experts on disability see it as socially constructed, because certain conditions (e.g. being shorter than average), while limiting your physical abilities, are not disabilities because society generally provides for those conditions and extends equal access. If 50% of people were born Deaf, our society would still function, but it would address Deafness with affordances like the ones currently offered to short people.
To put it another way, despite e.g. being gay or short posing various social or physical disadvantages, we shy away from encouraging conversion therapy or height extension surgery by default, instead opting for a more inclusive society. And human beings are complex — a person who has found culture and meaning as a member of the Deaf community may disagree with you that they are "objectively worse off" for not having hearing, despite the obstacles.
This article I think does a good job of explaining the quandary of a parent faced with a "fix" for a condition that is challenging but through which people have developed identity and culture. I am lucky to not currently have to take a stand on the right choice here, but I think the complexity of the issue deserves more respect than to be dismissed out of hand.
Re: The cochlear implant question
#77My wife and I faced a similar situation and found it a simple decision. We both carry GJB-2 gene mutations that will likely result in profound non-syndromic hearing loss. We went through Orchid Health to get a whole genome sequence of our prospective embryos and then selected one that was not affected by the condition. We have 1 more carrier girl and 2 more unaffected girls to work with, and if we want boys later in…
Re: The cochlear implant question
#78Anyone here with SSHL have experience with CI? I've heard mixed things due to the rather different sound experience vs natural hearing.
SI has SSHL left side from infection. Dealt with it for 20 years, then an impact basal fracture degraded the right side.
Started with Apple Airpods Pro as aids. Now using Oticon CROS and Own. CROS works OK, Own works OK, but both are compromises, and have the overhead of using aids. Both have a different sound experience.
CI seems like another compromise. I am guessing stem cell is the golden ring - growing back the nerves.
Re: The cochlear implant question
#79I feel like the narrative around disabled people has advanced to the point where some now insist that they aren't disabled. In reality, it's a pretty objective fact that being disabled means being unable to do something. It is a net negative on someone's quality of life. I'd be jolly pissed off if my parent decided not to get me an implant that enabled me to hear just because someone had told them that being deaf was…
> In reality, it's a pretty objective fact that being disabled means being unable to do something. This isn't an argument for or against the comment or the OP, but this is not universally seen as objective, and there are more ways to think about this than the medical model where there are "normal" people and that disabilities are deviations from what is "normal". Many disabled people and experts on disability see it…
This doesn't make them not disabilities, it just makes them disabilities with societal affordances. Even if we accept what you're saying here, these people are still less able to do things in the world, because much of the world doesn't provide those affordance, so they're restricted to the places that do.
Even in those places, there are still limits to the affordances provided - even people have the idea that in the US, employers can't discriminate against disabled people, they absolutely can if the disability affects their ability to do the job. Warehouse jobs routinely discriminate against those who can't lift 50 pounds as a matter of policy.
> And human beings are complex — a person who has found culture and meaning as a member of the Deaf community may disagree with you that they are "objectively worse off" for not having hearing, despite the obstacles.
I hear the argument, and I don't necessarily disagree that people find meaning from these kinds of communities. Nonetheless, there's a difference in that a hearing person is still able to find community (though obviously not the exact same community) but can also hear, while a deaf person can only do one of those two things.
When I was a kid in school, the phrase "differently abled" was in vogue, and it always seemed sort of ridiculous. It's not like you get other abilities for being deaf or having a missing leg or being paralyzed - you just have fewer. The only example I can think of where the phrase is really appropriate is for people with autism, who often are better than non-autistic people at some tasks as a result of their autism.
Re: The cochlear implant question
#80Earlier quoted context omitted.
There are ways you can present being deaf as an advantage. I personally think it's excessively reductive, but there are those that say, for example, that you become more attuned to your other senses when you lose your hearing, or even that area of the brain can be repurposed for other tasks. They may say, therefore, that the only reason being deaf is a disability is because the world is designed for non-deaf people.…
Saying the world is designed for people with hearing is causally inaccurate. Hearing evolved because sound is a useful way to perceive the world, the same way vision evolved in the spectrum it did because those are the strongest frequencies of sunlight. And more generally, I don't see many things in my everyday life with exclusively audio feedback. Usually anything designed with an audio cue just uses it to reinforce…