161–170 of 197 posts
Yep. People think I'm exaggerating when I say I've developed dementia. It's pretty intense (and terrifying) on the inside, but I've found ways to compensate to appear vaguely normal on the outside. Look, I'm even using multisyllabic words here! I also have the profound cardiovascular deconditioning described in other comments. So many hopes dreams flushed down the toilet, but people assume that I'm just lazy and stup…
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It's quite possible that it's environmental suppression of immunity, aging and/or degradation of the blood brain barrier that permits the viruses to make their way topside. There's some evidence that the amyloid plaques actually exhibit antimicrobial activity and may be an immune response to infection. [1] In my unsubstantiated opinion it's likely to be herpesviridae that make their way to the brain due to their affi…
> In my unsubstantiated opinion it's likely to be herpesviridae Curious, would this be hard to verify? To a layman that sounds like something that would be easily detectable under a microscope using samples of brain.
I visited two friends recently when I was back in Ireland. They had both been fit climber/orienteering types. Both now incapacitated with long covid. Both had been vaccinated. I went for a very short very slow walk with one of them. She wears a fancy Garmin which beeps when her heart rate goes over 100bpm. We walked for 15 mins and it went off. I really hadn't realised quite how real and quite how incapacitating long…
ME/CFS cases about doubled after covid, and is not even known to be a thing by a lot of doctors. So the symptoms are easily brushed off as "get your shit together" or misdiagnosed as depression. Also your anecdote aligns with the fact that it's more women than men who get it.
I got tested for other stuff - low T which I thought it might be or prostate cancer which the doc thought but neither of those. I'm recovering a bit through normal passage of time.
ME/CFS is seriously underinvested. I don't really understand why, any drug that makes a noticeable difference here will be a guaranteed money printer. There are millions of people suffering total disability, many in developed countries that have well funded medical insurance. Compare that to depression (which it only superficially resembles): many SSRIs, SNRIs, multiple "schools" of psychotherapy, neuroleptics, lithi…
Funnily enough I was watching a vid yesterday on a potential breakthrough in another tricky illness - alzheimer's - where a researcher looking at passing on epigenetic information in nematode worms tried the same experiment in mice, knocking out a particular enzyme, and quite by chance produced alzheimer effects in the mice. Which now looks like it may have hit on the mechanism in humans. So maybe something like that? https://x.com/ydeigin/status/1828961739934695831
The studies purporting to show evidence of long COVID, i.e. long term complications from COVID infections, are notoriously weak on rigor. Most make no attempt to control for the psychosocial impact of positive COVID diagnoses, like the isolation of quarantine, and the anxiety associated with being given a positive diagnosis for the infection. The best evidence available suggests most cases of "long COVID" are misattr…
That article is from 2021 when people were just dipping into studying long COVID. If you do a search for the term, there have been multiple studies from this year on the site you're linking characterizing the observed effects of long COVID. And we haven't been in quarantine for a few years now at this point. https://jamanetwork.com/searchresults?q=long%20covid&allSite...
Yep. People think I'm exaggerating when I say I've developed dementia. It's pretty intense (and terrifying) on the inside, but I've found ways to compensate to appear vaguely normal on the outside. Look, I'm even using multisyllabic words here! I also have the profound cardiovascular deconditioning described in other comments. So many hopes dreams flushed down the toilet, but people assume that I'm just lazy and stup…
good luck!
I visited two friends recently when I was back in Ireland. They had both been fit climber/orienteering types. Both now incapacitated with long covid. Both had been vaccinated. I went for a very short very slow walk with one of them. She wears a fancy Garmin which beeps when her heart rate goes over 100bpm. We walked for 15 mins and it went off. I really hadn't realised quite how real and quite how incapacitating long…
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i've never had covid, and i am unaware if this is in the literature because it may not be directly caused by the virus; but, did you have a lot of trouble sleeping/staying asleep? Anyone can reply, especially interested if you have a fitness band/watch that tracks sleep and breathing/heartrate, if you noticed that your sleep was greatly disrupted by the disease. I had some weird virus a couple weeks ago that didn't s…
COVID, at least strains from a few years ago, were known to cause insomnia. But it seems likely it's something that could be from any virus.
That is, by what mechanism does covid cause "brain fog" after the fact?
Yep. People think I'm exaggerating when I say I've developed dementia. It's pretty intense (and terrifying) on the inside, but I've found ways to compensate to appear vaguely normal on the outside. Look, I'm even using multisyllabic words here! I also have the profound cardiovascular deconditioning described in other comments. So many hopes dreams flushed down the toilet, but people assume that I'm just lazy and stup…
When were you sick? March 2020 here and while cognitively I have been ok, my heart and lungs are all messed up. Four years, three primary doctors, five cardiologists, over a dozen tests and still no real answers. I tested as borderline COPD, given an inhaler and my lung tests improved dramatically, well into healthy range. However even with the inhaler I still get that "air hunger" sensation and the feeling like I ca…