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Chronic fatigue syndrome may have a post-viral infection origin

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Re: Chronic fatigue syndrome may have a post-viral infection origin

#171

Earlier quoted context omitted.

It's an issue when doctors deny it. For many years, for many doctors, that was the case with CFS.

There is still no identified viral mechanism for CFS. So yes, you will continue to find many doctors that deny that there is convincing evidence for viral causes of CFS because that is the reality of the current situation.

Fair. I was talking about doctors denying the existence of CFS, but that wasn't the topic, was it?

Re: Chronic fatigue syndrome may have a post-viral infection origin

#173

Can chronic fatigue type syndrome that only effects you mentally, not physically? I have zero energy to do things that take mental energy unless I take ADD meds and even then it is a struggle. But doing things physically I have no problems. Like to the point I would rather walk a mile somewhere than figure out how to buy a bus ticket in an unfamiliar city.

Mental and physical aren't separate. Your brain is part of your body.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#174

Earlier quoted context omitted.

I didn't say all or even a majority were exaggerating symptoms, I simply said that many were. Part of my justification was a number of studies which have found psychological distress over catching COVID as a strong predictor of long Covid: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9825049/

Thank you for your concern. When I was 17, I developed acute neuropathy after covid which was diagnosed via a biopsy. It manifested as orthostatic intolerance caused by insufficient blood flow to my brain. I have been bedridden for around two years now. I was certainly distressed when I got COVID, largely because of a burning pain emanating from my extremities. My uncle died from autoimmune scleroderma. He also devel…

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Re: Chronic fatigue syndrome may have a post-viral infection origin

#175

Isn't it pretty well-known that many diseases/disorders are likely from post-viral infection? Howard Bloom who famously had CFS for decades talked about how he had a bad flu that never got better and his long recovery from it. https://medicalerrorinterviews.podbean.com/e/howard-bloom-pa... Michael J Fox who famously has Parkinson's mentioned being sick in his documentary "Still" while filming "Leo and Me" where other…

> It is beyond me how people can deny post viral syndromes.

If there’s anything the mass death and injury of COVID have taught me, it’s that there is pretty much no level of harm that can’t be justified with appeals to “they deserve it because X”, with X being whatever quality or characteristic allows someone to rationalize away the fundamentally random and widespread harm as being limited to an out-group. This should’ve been obvious to everyone from the HIV/AIDS crisis, but it’s bluntly apparent now.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#176

Isn't it pretty well-known that many diseases/disorders are likely from post-viral infection? Howard Bloom who famously had CFS for decades talked about how he had a bad flu that never got better and his long recovery from it. https://medicalerrorinterviews.podbean.com/e/howard-bloom-pa... Michael J Fox who famously has Parkinson's mentioned being sick in his documentary "Still" while filming "Leo and Me" where other…

Why is it such an issue that people deny it? Viruses can cause organ tissue damages, that's enough for me to believe a virus can cause all sort of "syndromes" I'm not on the denier side but harass me with fear, threats, and free movement mandates and I will deny that syndromes even exist.

My girlfriend's sister suffers from Long Covid for going on 2yrs now.

Some of the problems she had early on is that most doctors wrote her off as either lying or anxiety. More than one ER doc said there's no way that Covid could ever cause lasting symptoms other than lung damage, which she didn't have, so it's likely just anxiety. There was one DO she saw, during an admit for tachycardia, who said that he believed that she has a post-viral syndrome and knew of others with other post-Covid issues. The problem would be trying to convince his colleagues to believe it would be an uphill battle, so he hoped it was temporary for her. I know things have changed now but some doctors can be extremely arrogant and dismissive of patients (female patients more than male).

Re: Chronic fatigue syndrome may have a post-viral infection origin

#177

Earlier quoted context omitted.

Why is it such an issue that people deny it? Viruses can cause organ tissue damages, that's enough for me to believe a virus can cause all sort of "syndromes" I'm not on the denier side but harass me with fear, threats, and free movement mandates and I will deny that syndromes even exist.

It's an issue when doctors deny it. For many years, for many doctors, that was the case with CFS.

Then agreed it is a problem.

Some investigation revealed though that is has become more difficult for GPs to ignore the pressure put on them by insurers to send patients back to work.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#178

Physician here. Imo CFS is best understood as the endpoint of an evolution within the nervous system that is increasingly called "central sensitization syndrome." (CSS) This syndrome is caused by a chronic dissociative or avoidant stress response, usually having it's origin in early childhood adversity. Prior to developing CFS, most individuals have other manifestations of CSS, such as IBS, chronic pain, TMD, etc. Ev…

Pacing would also help the body remove waste from the tissues, so it may actually be physically treating a physical cause, FYI.

What is the mechanism of action there? Which specific type of waste?

Re: Chronic fatigue syndrome may have a post-viral infection origin

#179

Earlier quoted context omitted.

Why is it such an issue that people deny it? Viruses can cause organ tissue damages, that's enough for me to believe a virus can cause all sort of "syndromes" I'm not on the denier side but harass me with fear, threats, and free movement mandates and I will deny that syndromes even exist.

My girlfriend's sister suffers from Long Covid for going on 2yrs now. Some of the problems she had early on is that most doctors wrote her off as either lying or anxiety. More than one ER doc said there's no way that Covid could ever cause lasting symptoms other than lung damage, which she didn't have, so it's likely just anxiety. There was one DO she saw, during an admit for tachycardia, who said that he believed th…

> but trying to get his colleagues to believe it would be an uphill battle

You have to go through a lot of education to become a doctor, so people naturally expect doctor's to be wise, but the truth is they are just good a memorizing things. They aren't necessarily smarter than any other person and have just as many blindspots.

* Source: My dad and uncle are doctors. My brother in law is a doctor. I have a friend who is a doctor. And I've known a lot of other doctors through them.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#180

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I had Long Covid for about six months, and it does create similar symptoms as what we know as depression and anxiety. But that's just it. Depression is not really the cause of symptoms, it IS the symptom, or the effect. CBT is not going to fix this problem if the cause is physical in nature. So you can't say "effects of depression" because depression is the effect. Sadly many medical professionals make this mistake.
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