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Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

moorfields.nhs.uk

21–30 of 137 posts

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#21
post #19

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

We already do that. We think you may get cancer or dementia, we deny you insurance converge and proceed to drain you of opportunity

If insurances dont cover you for future risks its not worth calling it this way. Insurance's only purpose is to help the minority of us who will get serious problems throughout their lives, not that exclude them.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#22

This will get used against you to deny insurance coverage. Not to help anyone.

This is true. The net effect is you can be denied coverage. They don't explain this to you when you get the check.

In that case this should be made illegal to use diagnosis results in this way. Insurances are not supposed to be in the business of refusing coverage.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#23

This will get used against you to deny insurance coverage. Not to help anyone.

This is true. The net effect is you can be denied coverage. They don't explain this to you when you get the check.

I know this used to be true, but is it still true post Obamacare?

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#24
How predictive is it really? p-values and confidence intervals of hazard ratios only tell you the probability of comparisons to null effects on hypothetically repeated data. What I really want to know is, under the prior of proportion of PD in the general population, what is confusion matrix for this method?

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#25
I recall two companies working on this - RightEye and Neuralight:

https://techcrunch.com/2018/02/17/righteyes-portable-eye-tra...

https://techcrunch.com/2022/05/24/neuralight-aims-to-track-a...

Probably there are more by now. As I recall this data is great for essentially saying "you should go get a real test." No one is diagnosing - just saying that a certain, say, eye movement slowness is correlated and you can detect it much earlier than a hand tremor or other more prominent symptoms.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#26
post #14

Earlier quoted context omitted.

There is anxiety because information is locked away by companies and regulators. They do zero efforts to help the public understand anything.

"They do zero efforts to help the public understand anything." To be fair, with complex diseases, the experts don't even understand them fully... Trying to explain something super complex with incomplete knowledge to most humans, who often don't have even a basic understanding of how biological systems work, seems like a bad idea...

Just explain what we know and dont know. People will become a lot more charitable when you do the effort.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#27
post #22

Earlier quoted context omitted.

This is true. The net effect is you can be denied coverage. They don't explain this to you when you get the check.

In that case this should be made illegal to use diagnosis results in this way. Insurances are not supposed to be in the business of refusing coverage.

I believe Obamacare did fix this in the US, but at the trade off of requiring people to hold health insurance at all times. The thinking was otherwise people would just only get insurance when they got supper sick. The republicans chipped away at that requirement (it was one of the least popular parts of the bill) and I think removing it didn’t actually cause the insurance market to collapse which everyone thought it would, but I’m not clear on exactly why? Generally requiring insurance to not charge extra when people only buy it when they need the insurance is doomed

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#28
post #21
post #19

Earlier quoted context omitted.

We already do that. We think you may get cancer or dementia, we deny you insurance converge and proceed to drain you of opportunity

If insurances dont cover you for future risks its not worth calling it this way. Insurance's only purpose is to help the minority of us who will get serious problems throughout their lives, not that exclude them.

If it’s predictable you’ll fail, that’s not insurance. Insurance is about unpredictable failures. It may sound odd, but it’s the nature of it.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#29

I recall two companies working on this - RightEye and Neuralight: https://techcrunch.com/2018/02/17/righteyes-portable-eye-tra... https://techcrunch.com/2022/05/24/neuralight-aims-to-track-a... Probably there are more by now. As I recall this data is great for essentially saying "you should go get a real test." No one is diagnosing - just saying that a certain, say, eye movement slowness is correlated and you can det…

is early diagnosis useful?

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#30
post #20

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

Knowing you will have something incurable has only downsides. You will dread the time ahead of you instead of enjoying your present time.

If I know I only have N good years left, I can spend all my money instead of dying with it unspent.
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