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Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

moorfields.nhs.uk

11–20 of 137 posts

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#12
The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea.

It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hotel booking, bars, movie theaters -- all of it. There could be a whole industry built overnight of catering to this specific demographic.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#13

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

"Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hotel booking, bars, movie theaters -- all of it. There could be a whole industry built overnight of catering to this specific demographic."

Do we do this for people with cancer?

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#14
post #6

Earlier quoted context omitted.

They already do. Any time you start talking about wanting to do exploratory analysis for preventative reasons they’ll react in some way like “Hurr hurr whoa there buddy, you don’t want to get yourself anxious over benign stuff! This will do more harm than good!”

People Googling their symptoms and treatments undoubtedly does cause anxiety and correcting mistaken impressions does cost clinical time. There is a middle road here somewhere - we just have to find it, or accept the costs that come with having more tools.

There is anxiety because information is locked away by companies and regulators. They do zero efforts to help the public understand anything.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#15

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

"Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hotel booking, bars, movie theaters -- all of it. There could be a whole industry built overnight of catering to this specific demographic." Do we do this for people with cancer?

IME, the prognoses there are on the order of months, generally. Although not likely always formalized and treated with a blanket policy, you can probably get priority service in at least some circumstances.

This situation is unique because of the time span. I'm sure there would be an increased sustained and consistent demand for nostalgia-focused apps. And probably for many other products I haven't considered.

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#17
post #14

Earlier quoted context omitted.

People Googling their symptoms and treatments undoubtedly does cause anxiety and correcting mistaken impressions does cost clinical time. There is a middle road here somewhere - we just have to find it, or accept the costs that come with having more tools.

There is anxiety because information is locked away by companies and regulators. They do zero efforts to help the public understand anything.

"They do zero efforts to help the public understand anything."

To be fair, with complex diseases, the experts don't even understand them fully...

Trying to explain something super complex with incomplete knowledge to most humans, who often don't have even a basic understanding of how biological systems work, seems like a bad idea...

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#18
post #6
post #4

Earlier quoted context omitted.

Expect doctors and the related industries and bodies like the useless FDA to fight hard against that. As usual.

They already do. Any time you start talking about wanting to do exploratory analysis for preventative reasons they’ll react in some way like “Hurr hurr whoa there buddy, you don’t want to get yourself anxious over benign stuff! This will do more harm than good!”

Doctors are, in my experience, very good at justifying preventative checks they thought of and very poor at justifying ones you thought of.

In both cases, they're correct - since no intervention is risk free, even if you have a 0% false positive rate in the sense of "I found a mass in your arm", for example, you might still have a worse outcome rate if the rate of "mass in your arm causes harm" is lower than "complications from removing mass in your arm".

That's not to say that their suggestions are right and yours are wrong, just that they're right about the reasoning but tend to dismiss concerns that they didn't think of and justify ones they did, and we need a more complicated basis for justifying this than "I think".

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#19

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

We already do that. We think you may get cancer or dementia, we deny you insurance converge and proceed to drain you of opportunity

Re: Eye scans detect signs of Parkinson’s disease up to seven years before diagnosis

#20

The idea of knowing you're going to get dementia sometime in the next decade is interesting. But I don't think it's straight-forward as to whether or not knowing is a good idea. It's also a little amusing to take the idea to its logical extreme: What if it becomes a societal norm to know? Would public venues allow soon-to-be dementia patients line cutting priority etc? Think amusement parks, transit reservations, hot…

Knowing you will have something incurable has only downsides. You will dread the time ahead of you instead of enjoying your present time.
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