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The burden of Long Covid “so large as to be unfathomable”

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Re: The burden of Long Covid “so large as to be unfathomable”

#221

Post by Exuma »

japostoles wrote: post #108
LudwigNagasena wrote: post #68

Earlier quoted context omitted.

What supplements have you been taking and what is your diet?

I had success with the ingredients listed here: https://detoxthespike.com/#ingredients You can find most of those quite easily, although I had a bit of a hard time getting my hands on some of those enzymes. Been taking that recipe for a couple months now and my sense of smell has returned to full blast. For reference, I got COVID two times.

Wait.. I'm trying not to get my hopes up but my dad lost his smell for almost 2 years now. The most he's gotten is a single whiff of grass like a few months ago and it made him cry.

Are you saying that if I bought this detoxthespike thing it might help? Obviously nothing is certain, but unless I'm misreading your comment the above link you sent helped with your smell?

Re: The burden of Long Covid “so large as to be unfathomable”

#222

Post by treprinum »

Exuma wrote: post #221
japostoles wrote: post #108

Earlier quoted context omitted.

I had success with the ingredients listed here: https://detoxthespike.com/#ingredients You can find most of those quite easily, although I had a bit of a hard time getting my hands on some of those enzymes. Been taking that recipe for a couple months now and my sense of smell has returned to full blast. For reference, I got COVID two times.

Wait.. I'm trying not to get my hopes up but my dad lost his smell for almost 2 years now. The most he's gotten is a single whiff of grass like a few months ago and it made him cry. Are you saying that if I bought this detoxthespike thing it might help? Obviously nothing is certain, but unless I'm misreading your comment the above link you sent helped with your smell?

I started recovering after 2.5 years so even if things look hopeless, they might not be.

Re: The burden of Long Covid “so large as to be unfathomable”

#223

Post by japostoles »

Exuma wrote: post #221
japostoles wrote: post #108

Earlier quoted context omitted.

I had success with the ingredients listed here: https://detoxthespike.com/#ingredients You can find most of those quite easily, although I had a bit of a hard time getting my hands on some of those enzymes. Been taking that recipe for a couple months now and my sense of smell has returned to full blast. For reference, I got COVID two times.

Wait.. I'm trying not to get my hopes up but my dad lost his smell for almost 2 years now. The most he's gotten is a single whiff of grass like a few months ago and it made him cry. Are you saying that if I bought this detoxthespike thing it might help? Obviously nothing is certain, but unless I'm misreading your comment the above link you sent helped with your smell?

I had a few long covid symptoms -- for background, I got covid in early March of 2020, and one of the symptoms I had was complete loss of smell for about a week after, followed by a recovery period that never got me back to 100%. After detoxing with the ingredients in that formula, within a couple weeks my sense of smell is back to what I consider normal, and I feel more clear overall, for lack of a better phrase. I am still taking this formula daily, but more for general health, along with a supplement called Wellness Formula.

I'd say if your Dad is experiencing symptoms around his sense of smell, it wouldn't hurt to try! Most of the ingredients are easy to get online and are great for general health, regardless.

If you grab the ingredients (or a bottle), let me know how it goes! I've been recommending this concoction to people quite a bit lately, and I don't know if it's placebo or what, but it seems to help.

In either case, all the best for you and your father!

Re: The burden of Long Covid “so large as to be unfathomable”

#224

Post by FormulatedEdits »

last_responder wrote: post #111
FormulatedEdits wrote: post #55

Earlier quoted context omitted.

Sorry, but that’s not the narrative that was all over the news at all. If that’s what the powers that be were thinking they didn’t tell us so!

Guess you were watching some right wing garbage. This was always talked about.

The BBC isn’t typically considered right-wing garbage, except perhaps to consumers of extremely left-wing garbage. I promise you that while it may have been talked about, it was never the main or even a major part of the story*. The comment I’m replying to (yours I guess from the attempted burn) implies heavily that it was the agreed-upon and media-promoted main strategy, which is an obvious falsehood, hence the downvotes that comment received. Maybe you think this site is all right-wing too? (Not untrue tbh, depends on the issue at hand.)

*in my memory, which is fallible to be fair

Re: The burden of Long Covid “so large as to be unfathomable”

#225

Post by treprinum »

AnonCoward42 wrote: post #220
treprinum wrote: post #206

Earlier quoted context omitted.

Full tilt meant 200m walk in the park -> instant PEM. When you have no clue what is going on, stop applying your basic recipes on new health issues from pandemics, you would literally harm other people that could suffer because of your silliness. Imagine this condition being more like being at 3/4 of slow dying from asphyxia on Mt. Everest. It felt like I was 70 years older and started understanding what old people g…

> When you have no clue what is going on, stop applying your basic recipes on new health issues from pandemics, you would literally harm other people that could suffer because of your silliness. How can my comment harm people? It didn't say that walking (any distance) is the only or the lowest exercise possible nor did I say that lack of exercise is the only explanation to begin with. Actually the opposite is implied…

I was reacting to your edit when it became clear you didn't consider that just a short slow walk can send LC people to a bed for a week, i.e. physical activity is not an answer for people suffering from it.

Re: The burden of Long Covid “so large as to be unfathomable”

#226

Post by OnTheDesk »

Nanana909 wrote: post #170
retrac wrote: post #146

Earlier quoted context omitted.

> So then why do we never talk about long flu? With both RSV and influenza, infection as a baby or toddler seems to increase the likelihood of asthma in later life. Do we talk about asthma? I think it is just so ordinary, an accepted part of life, and often not thought of in terms of being caused by an identifiable pathogen, that it's not really remarkable. Sort of like the fact that viral pneumonia is what kills the…

> With both RSV and influenza, infection as a baby or toddler seems to increase the likelihood of asthma in later life. Do we talk about asthma? I think this reinforces my point succinctly. It’s not “extended RSV” or “persistent influenza”, it’s asthma. COVID is a completely politicized term and dying on a hill to use it to describe symptoms people are stuck with after recovering from the acute disease, especially in…

[flagged]

Re: The burden of Long Covid “so large as to be unfathomable”

#227

Post by seanmcdirmid »

treprinum wrote: post #57

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

> I really think medical science gets many things wrong and knows only a small piece of puzzle on how the human body works, and people with long covid are stuck in that knowledge gap.

Medical science is definitely limited. Studying a human system is essentially reverse engineering combined with something we can’t create in the first place. So doctors accumulate data, somehow make progress on life expectancies, but still a lot is unknown, and they don’t really claim otherwise.

Re: The burden of Long Covid “so large as to be unfathomable”

#228

Post by seanmcdirmid »

treprinum wrote: post #163
1over137 wrote: post #88

Earlier quoted context omitted.

>I really think medical science gets many things wrong and knows only a small piece of puzzle That's certainly true, but medical science is well aware of the incredible benefits of physical exercise and the power of placebo.

It's sad medical professionals switch into "it's all in your head" routine when they can't explain something.

Even if they don’t, they will always keep “it’s all in your head” as a possibility until they can rule it out. The problem is that it actually turns out to be that some percentage of the time. And of course, there are varying capabilities of doctors with varying knowledge who have different chances of figuring out what really is wrong with you. ChatGPT might be an improvement here.

Re: The burden of Long Covid “so large as to be unfathomable”

#229

Post by seanmcdirmid »

senectus1 wrote: post #205
1over137 wrote: post #88

Earlier quoted context omitted.

>I really think medical science gets many things wrong and knows only a small piece of puzzle That's certainly true, but medical science is well aware of the incredible benefits of physical exercise and the power of placebo.

This screams more of a institutional bureaucracy issue and less a medical science issue. GP's are part of a system that requires they churn through a lot of people quickly. this dramatically lowers the in depth research and reasoning they can perform.

You shouldn’t stop at a GP, if they can’t figure it out right away they should have referred you to a specialist pretty quickly.

Re: The burden of Long Covid “so large as to be unfathomable”

#230

Post by svnt »

mikeyouse wrote: post #136
svnt wrote: post #25

Earlier quoted context omitted.

There are some major qualifiers to this study: 1) The ages and BMI: > The median age was 45 years (IQR 37–54) and median BMI was 29·8 kg/m2 2) The diagnosis of long COVID-19 was done by survey — this has been shown to be an unreliable method of assessing persistent symptoms of disease. This is in part because people will tell you they have symptoms if you give them a cause and ask. The diversity of the claimed presen…

This is partly what I was talking about. Just odd dismissals of actuals scientific evidence. It's a "major qualifier" that this study looked at middle aged overweight people? Or that they relied on a survey to assess symptoms but then quadruple blinded everyone? They added the long-covid assessment as a secondary endpoint to a group they were studying since before "long Covid" was a phenomenon. And then to dismiss th…

The problem is always in the simplification as it is translated into lay conversations.

You cannot extrapolate from a median of obesity into the general population.

This is especially true when the medication you are having success with (metformin) is a treatment for diabetes.

What are they even measuring?

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