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The burden of Long Covid “so large as to be unfathomable”

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Re: The burden of Long Covid “so large as to be unfathomable”

#191
post #87

I am sceptic to long covid since I dont believe in big pharma good intentions. Years have passed since one pharma company knowingly sold infected drugs to 3rd world countries [1], but the nature of human didn't change. Big companies are run by people with black triad personality traits and who are incredibly greedy [1] https://www.theguardian.com/world/2003/may/23/aids.suzannego...

The idiots are leaking into HN

It's not a new leak.

Re: The burden of Long Covid “so large as to be unfathomable”

#192

Earlier quoted context omitted.

Yes, was just trying to comment on the overall broader critique of the medical sphere you were providing. Your story sounds very personal to you and I am not commenting on that.

I really think it's the other way round, a physical issue that might manifest in some psychological phenomenon due to a lack of brain processing capacity and doctors just take it the other way round, because it's much easier to put an "anxiety sticker" on someone than figure the real underlying problem out. There are even some psychiatrists that consider all mental issues to be problems with brain metabolism, i.e. ph…

> There are even some psychiatrists that consider all mental issues to be problems with brain metabolism, i.e. physical problems manifesting in psychical ones.

Yes, because medicine is ultimately a customer-serving profession, there will be plenty of people saying the things that people want to hear because they are paid to retain customers and people elevate things that are similar to what they want to hear.

People are very uncomfortable with the mental, hence it is now popular to hear very mechanistic explanations of why someone is depressed, etc. about 'brain chemical imbalance' because it makes someone feel less like it is something wrong with who they are as a person (the mind-body dualism is still very present for most people in Western cultures). Of course, ultimately everything (including the functioning of our mind) is mechanistic, but people seem to be more comfortable with very mechanistically couched explanations as compared to 'something is wrong with my mind!' even when the implications aren't all so different.

Re: The burden of Long Covid “so large as to be unfathomable”

#193

Earlier quoted context omitted.

[flagged]

The moment you get it you'll understand why it does exist and its true nature, then good luck! You sound like those doctors in the 70s that thought the ME/CFS is "hysteria" because they thought they conquered all wisdom of the world.

My impression is a 100 years ago doctors would have been comfortable with the idea that their patient was suffering from chronic bad health with no understood cause. And then with the rise of the psychology profession anything like that was deemed psychosomatic. Impotent? Psychosomatic! Gastrointestinal problems? Psychosomatic! Feel crappy with exercise intolerance? Psychosomatic! Over the last 40 years has seen some psychosomatic! problems actually turn out to be diagnosable medical problems.

Re: The burden of Long Covid “so large as to be unfathomable”

#194
post #190

Earlier quoted context omitted.

It's sad medical professionals switch into "it's all in your head" routine when they can't explain something.

Even if it is "all in your head" doesn't mean the problem will magically solve itself just by thinking about it. The brain is a physical organ. It needs oxygen and nutrients, it reacts to all sorts of chemicals, etc... If it is "in my head", ok, but what is wrong with my head? Are my hormones messed up? Is oxygenation correct? Are the neurons in good shape? It you don't know what's wrong with my head, how do you know…

The idiotic thing of it is, of course everyone lives "inside their head". It's where consciousness lies (unless you're an ancient Egyptian and believe it comes from the heart, which is "just" the muscle that pumps blood around, and isn't packed full of neurons). So it's a stupid statement to begin with. I live, as do you, and everyone else, "inside my head". I literally can't leave it. 24/7, I'm in my head even when I'm sleeping, I can't escape it. And neither can you. All of my perceptions, everything I see, touch, or smell is filtered through my brain which is in my head.

What's odious then, isn't the statement itself, but the implication that I could just "shake it off" with just the right set of magical thinking. The problem then, is everybody who claims "it's all in your head", proclaims the problem solved, and walks off with their fingers in their ears, not listening to people suffering, not helping them "get out of their heads", not even trying to help get to that place of magical thinking that would fix everything.

They say the solution is "in your head". If it is, they're a right shite bunch of bastards for keeping this magical thinking to themselves and letting the rest of us suffer. If instead we focused on listening to the people suffering, and have identified that it's in their heads, then how do we get them out of it? How do we expand their consciousness to be "outside" their heads? How do we modify their brain so the head they're in is different? We have all sorts of drugs for that, both legal and illegal, as well as a host of new therapies, some approved by the FDA, as in "has a scientifically proven effect", using magnetic fields applied to the brain, eg TMS (Transcranial Magnetic Stimulation), to help people get their heads, which they live 24/7 in, to be different ones than the ones that are giving them so much trouble!

Thanks to doctors actually listening to patients (which is a revolutionary concept, I know. Not all doctors are super geniuses, but the ones who are able to listen to people who's problems are "in their heads" are all smarter than those who dismiss people's problems for being "in their heads". Especially neurologists, who have dedicated their career to the study of what's inside heads.), people are getting better, healing the brain, and once again living fulfilling lives, with more than 3 spoons a day of energy. At the worst of it, watching Netflix was too exhausting. Concentrating enough to write code was out of the question. After TMS, powerful psychiatric medication, a course of psilocybin and other off label courses to help me "get out of my head", and a huge amount of talk therapy on top, I'd now consider myself cured of whatever lingering after effects of Covid and the pandemic I suffered. It took a lot of work, I still live "in my head" but I'm able to leave my bed enough day of the week, and even leave my house most of them as well.

Feel free to tell me my problems are in my head so long as you're going to help me get out of it; help me pay for doctors, help me get to the doctor, help me pay for therapies and therapists and actually get to them, help me navigate insurance and get on disability while I need it, help me with housework while it's too much for me to manage.

"It's in your head" is the beginning of helping to figure out how to solve the problem, not the solution it and of itself.

Re: The burden of Long Covid “so large as to be unfathomable”

#195

Earlier quoted context omitted.

> So then why do we never talk about long flu? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2826837/ https://pubmed.ncbi.nlm.nih.gov/34694344/ > Long meningitis? https://pubmed.ncbi.nlm.nih.gov/27105658/ https://www.sciencedirect.com/science/article/abs/pii/S01634... Just because you haven't seen it doesn't mean it doesn't exist. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7587542/

Your first article: > Lingering prenatal effects So not “long influenza”. “Lingering effects of influenza”, which I stated obviously can exist. Would you associate the words “long marriage” with “lingering effects of marriage”? Not a single one of your sources used “long X” terminology. I wonder why that is? Perhaps because “long X” in the English language refers to either a large length or a large duration of time.…

> I wonder why that is?

The thing about a neologism--the one that's relevant here anyway--is that it's neo, and the linear nature of time means that one would not expect to see it in use before it was coined.

Re: The burden of Long Covid “so large as to be unfathomable”

#196

Earlier quoted context omitted.

I really think it's the other way round, a physical issue that might manifest in some psychological phenomenon due to a lack of brain processing capacity and doctors just take it the other way round, because it's much easier to put an "anxiety sticker" on someone than figure the real underlying problem out. There are even some psychiatrists that consider all mental issues to be problems with brain metabolism, i.e. ph…

> There are even some psychiatrists that consider all mental issues to be problems with brain metabolism, i.e. physical problems manifesting in psychical ones. Yes, because medicine is ultimately a customer-serving profession, there will be plenty of people saying the things that people want to hear because they are paid to retain customers and people elevate things that are similar to what they want to hear. People…

LC research shows that there are at least three factors going on that might affect functioning of the brain:

1) damaged endothelium with possible microclots clogging up small vessels

2) spike protein reservoir likely causing cellular-level iron deficit (anemia)

3) mitochondrial dysfunction

Some recent research even shows brain hypoperfusion and different levels of oxygen in each hemisphere!

Now ignoring these factors is in my opinion lazy science and a convenient way for medical professionals to state "it's not my problem, go somewhere else, I just want my regular routine without any complications. Go see a shrink".

Re: The burden of Long Covid “so large as to be unfathomable”

#197
post #19

What are the clinically significant differences between long covid and things like fibromyalgia and chronic fatigue syndrome that have been around for quite a while? I don't appear to be the only one asking these questions. https://www.jwatch.org/na56219/2023/06/15/long-covid-and-chr... https://www.publichealth.columbia.edu/news/long-covid-really... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10117846/

They're very similar and if you work in these fields you wink wink know what it means that the disease profiles are so similar.

What does it mean?

Re: The burden of Long Covid “so large as to be unfathomable”

#198

Earlier quoted context omitted.

Between the supplements and the rowing, do you have a sense if one or the other had a greater impact? Asking because "take a multivitamin" and "exercise daily" seem to be very standard pieces of medical advice. "Take 50 specific supplements", not so much.

I think it was all of them together, I basically tried to go all-in as my previous partial attempts never turned into stable improvements. I don't think without rowing machine I would get better as I wouldn't improve my blood flow, but the exercise alone didn't lead anywhere before (I tried it for 3 months a year before that).

I had somewhat of a similar experience treating a different condition I had. I wanted to take the scientific approach of taking one supplement at a time and measuring my response, but I ended up taking everything at once, and that worked wonders. But I'm still not sure if it was one specific thing that did 90% of the heavy lifting or if each one did 5%.

Re: The burden of Long Covid “so large as to be unfathomable”

#199

Earlier quoted context omitted.

I think it was all of them together, I basically tried to go all-in as my previous partial attempts never turned into stable improvements. I don't think without rowing machine I would get better as I wouldn't improve my blood flow, but the exercise alone didn't lead anywhere before (I tried it for 3 months a year before that).

I had somewhat of a similar experience treating a different condition I had. I wanted to take the scientific approach of taking one supplement at a time and measuring my response, but I ended up taking everything at once, and that worked wonders. But I'm still not sure if it was one specific thing that did 90% of the heavy lifting or if each one did 5%.

Read this, the doctor had only success if he combined multiple things together and has lab data showing no effect when either of them was taken separately:

https://xdrx.substack.com/p/how-i-recovered-from-long-covid-...

This could help your scientific brain a bit ;-)

Re: The burden of Long Covid “so large as to be unfathomable”

#200

Earlier quoted context omitted.

[flagged]

She was a diver/swimmer and is also a mathematician, yes. I wish I had half her energy, lol.

A diver at 60? Wow that sounds very arduous, if not just risky. I don't think I'd ever heard of people continuing to do competitive diving into their later years.
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