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The burden of Long Covid “so large as to be unfathomable”

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Re: The burden of Long Covid “so large as to be unfathomable”

#181

Post by empressplay »

treprinum wrote: post #92
LudwigNagasena wrote: post #68

Earlier quoted context omitted.

What supplements have you been taking and what is your diet?

I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial…

much of what you're taking helps with Mast Cell Activation Syndrome, which is common with long Covid

Re: The burden of Long Covid “so large as to be unfathomable”

#182

Post by Timon3 »

unsupp0rted wrote: post #147
Timon3 wrote: post #93

Earlier quoted context omitted.

> Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't? Aren't you getting the same spike protein when you're infected by COVID, which is more likely if you're not vaccinated? That would mean the vaccinations reduce your exposure to the spike protein.

> Aren't you getting the same spike protein when you're infected by COVID That's the entire goal. But is it the same spike protein? Does it end up in the same tissues as COVID? Does the mRNA delivery & creation vector matter? I rolled the dice and got triple-vaxxed, on the assumption that I'm better off than getting covid with a naive immune system, but I wasn't under any illusions that it's anything but a some-unkno…

> But is it the same spike protein?

As far as I'm aware, yes.

> Does it end up in the same tissues as COVID? Does the mRNA delivery & creation vector matter?

I haven't seen any evidence for different tissue, or effects due to mRNA delivery & creation. Given how big the anti-COVID-vax movement and industry is I feel fairly sure that any such issues would have been found by now.

> I rolled the dice and got triple-vaxxed, on the assumption that I'm better off than getting covid with a naive immune system, but I wasn't under any illusions that it's anything but a some-unknown-%-loaded-in-my-favor dice roll. > There wasn't enough time to wait years and see what the outcomes are, and also most people on the planet were guaranteed to get covid soon anyway.

I think this is a fair way of putting it, but at the same time it feels like the potential criticisms towards the vaccines always far outweigh any such criticisms towards COVID itself.

Re: The burden of Long Covid “so large as to be unfathomable”

#183

Post by cjbgkagh »

lamontcg wrote: post #165
cjbgkagh wrote: post #65

Earlier quoted context omitted.

I think people are dismissive due to the expectation that if it really was that bad they would be hearing much more about it. The idea that something so bad affecting so many people could be largely ignored is incomprehensible to many people. It also didn’t help that ME/CFS was falsely maligned for many decades by horrible scientists in the US and UK.

> I think people are dismissive due to the expectation that if it really was that bad they would be hearing much more about it. Most people are also still likely to not talk about it and hide it from everyone else. Makes me worried about when we're going to see a strong 'backlash' against long COVID where people start getting very publicly getting busted for faking it. If 90% of people hide the condition and try to t…

It does appear to be a 'get out of anything' trump card and the fact that it chronic and can wax and wane does mean people can repeatedly reuse the same excuse - I can see why it would be attractive to fakers.

I have lifelong ME/CFS as a comorbidity to my genetic condition hEDS, it got worse in my 20s and then significantly worse post covid vax. I'm a shut-in so it appears that I have thus far avoided catching covid the virus. The pericarditis from the vax was bad enough there were a few times I thought it was going to kill me. There is very little benefit from telling people about it, you almost entirely only get gaslit from doctors and everyone else.

I'm a key man risk on some major projects and if people at work knew I have ME/CFS I would lose my livelihood. I'm not even sure if I could get government disability. When I see homeless people I think; there but for the grace of god go I. I know people in the hEDS community who have been encouraged to do voluntary euthanasia in Canada so that seems to be the new solution to this inconvenient problem. Just recently the first voluntary suicide in South Australia was a young lady with EDS. I manage with the help of a lot of black market / gray market non FDA approved medication and for some possibly related reason I'm freakishly good at programming so a few good days can make up for a lot of bad days.

The combination of people hiding the condition and fakers promoting it means I completely understand why many people think it's fake. It's the doctors that I'm most disappointed in.

Re: The burden of Long Covid “so large as to be unfathomable”

#184

Post by cjbgkagh »

Nanana909 wrote: post #175
cjbgkagh wrote: post #132

Earlier quoted context omitted.

Not sure what to say other than that you are flagrantly wrong.

> Long COVID is broadly defined as signs, symptoms, and conditions that continue or develop after initial COVID-19 infection. https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/... Emphasis on “Continue or develop”.

"post-acute"

Re: The burden of Long Covid “so large as to be unfathomable”

#186

Post by treprinum »

empressplay wrote: post #181
treprinum wrote: post #92

Earlier quoted context omitted.

I switched to carnivore 100% for a month when I started improving. I was taking mitochondrial supplements like megadosing B1/B2/B3/Niagen/NMN, CoQ10 + PQQ, L-carnitine, R ALA, pterostilbene. I took 1000-2000mg bovine lactoferrin with up to 120mg iron bisglycinate and 25-50mg benadryl for nights. I mixed my own AXA1125 (BCAA, Glutamine, NAC and Arginine + vitamin C) and took about 50g a day of that. I took endothelial…

much of what you're taking helps with Mast Cell Activation Syndrome, which is common with long Covid

It's possible it was a component of that but I never specifically tracked MCAS symptoms. I basically took everything anyone remotely mentioned as helping them or appearing in some medical literature if it was OTC ;-)

Re: The burden of Long Covid “so large as to be unfathomable”

#187

Post by jxramos »

bigmattystyles wrote: post #141
jxramos wrote: post #106

Earlier quoted context omitted.

can you kindly link a sample of some of her material that intersects with this topic that you've watched. I'm curious of that data point.

I don't mean she's covered long covid as a journalist - I mean she's affected by it. https://www.youtube.com/watch?v=vydgkCCXbTA

right, she's a victim of it, I got that.

Wow, she's got an awesome set of true friends, really heartening to see that support and love surrounding her. Amazing.

Re: The burden of Long Covid “so large as to be unfathomable”

#188

Post by meinmissoula »

Nanana909 wrote: post #179
bigbillheck wrote: post #134

Earlier quoted context omitted.

> So then why do we never talk about long flu? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2826837/ https://pubmed.ncbi.nlm.nih.gov/34694344/ > Long meningitis? https://pubmed.ncbi.nlm.nih.gov/27105658/ https://www.sciencedirect.com/science/article/abs/pii/S01634... Just because you haven't seen it doesn't mean it doesn't exist. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7587542/

Your first article: > Lingering prenatal effects So not “long influenza”. “Lingering effects of influenza”, which I stated obviously can exist. Would you associate the words “long marriage” with “lingering effects of marriage”? Not a single one of your sources used “long X” terminology. I wonder why that is? Perhaps because “long X” in the English language refers to either a large length or a large duration of time.…

[flagged]

Re: The burden of Long Covid “so large as to be unfathomable”

#189

Post by gerbilly »

treprinum wrote: post #135
gerbilly wrote: post #124

Earlier quoted context omitted.

> This was very different; prior to that I used to do 1-2h of strong cardio or lifting activity a day, was studying at multiple universities and worked multiple consulting gigs. I'm going to suggest that with this intense pace this might have happened one way or another. Take it from someone who has been there. When we push too hard for too long, and ignore our bodies and minds pleas for rest, at some point the body…

My theory is that as COVID depletes a month-worth of NAD+ in like 3 days, it leads to energetic deficit throughout the body, and the weakest links start failing first. So I assume I had some predisposition coming from my intense lifestyle and COVID just initiated the domino effect. I wish I knew about NAD+ prior to that, I might have skipped it altogether if I resupplied it right away.

Interesting theory but I wouldn't be so sure. I've been through healing journeys where the websites suggested all sorts of deficiencies and supplements, but in the end I came to believe I just needed to slow down.

Re: The burden of Long Covid “so large as to be unfathomable”

#190

Post by GuB-42 »

treprinum wrote: post #163
1over137 wrote: post #88

Earlier quoted context omitted.

>I really think medical science gets many things wrong and knows only a small piece of puzzle That's certainly true, but medical science is well aware of the incredible benefits of physical exercise and the power of placebo.

It's sad medical professionals switch into "it's all in your head" routine when they can't explain something.

Even if it is "all in your head" doesn't mean the problem will magically solve itself just by thinking about it.

The brain is a physical organ. It needs oxygen and nutrients, it reacts to all sorts of chemicals, etc... If it is "in my head", ok, but what is wrong with my head? Are my hormones messed up? Is oxygenation correct? Are the neurons in good shape? It you don't know what's wrong with my head, how do you know that's in my head?

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