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Poor sleep drove me insane, and my long path to recovery

writing.samsonhu.com

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Re: Poor sleep drove me insane, and my long path to recovery

#61
post #47

Currently dealing with severe sleep apnea & the near inability to breathe thru my nose as a younger, athletic in a past life, skinny & thin framed male. Unable to get started w/CPAP due to life instability, & even that isn’t going to fully fix things as I have to have other major surgery that involves surgically removing my completely wrecked scalenes (anterior & middle - scalenes are secondary breathing muscles), a…

thats fucking crazy and maddening. I'm sorry that happened to you

Re: Poor sleep drove me insane, and my long path to recovery

#62

Earlier quoted context omitted.

While I sympathize > If you have sleep apnea, no amount of sleep gadgets, good habits, will help you Is a blatant lie. A CPAP works for millions, including me.

Sorry I meant sleep gadgets like cooling pads, not referring to medical devices

Indeed but for completeness CPAPs is not the only available therapy out there nowadays.

Specifically for patients with _positional_ sleep apnea there are wearables (actual medical device not welness) that stop the patient from sleeping on their back, and hence stop the positional obstruction.

These wearables are way less cumbersome and invasive than pressure devices.

Re: Poor sleep drove me insane, and my long path to recovery

#63
Very useful read. My friend, an osteopath, says neck issues also can create breathing obstructions, and it makes a good deal of people wake up in the middle of the night and stay awake, even though they don't even think it's a problem.

Symptom to watch for: you wake up and your nose is stuffy, can't breathe through it, but there's no snot. And in 5-15 minutes it gets clear.

If you have it, it means lymph flow out of the head is obstructed, and works only thanks to gravity when you're upright.

It's a reason to be worried by itself, beacuse it also causes blood circulation obstructions. But if someone has issues with throat, it can contribute to apnea.

Re: Poor sleep drove me insane, and my long path to recovery

#64

Earlier quoted context omitted.

Interesting. I bet close to all young skinny people with sleep apnea must remain undiagnosed. My generalist doc basically said "if you really insist we can do a polysomnography, but I'm pretty sure you don't have it, you're young, skinny and sporty. There isn't really much that helps that you can do about it anyway". I did insist and it turned out that I do have it. The changes in life I experienced are similar to yo…

Many advice trying a CPAP device first instead of going for a sleep study if you suspect apnea for this exact reason. The sleep tests are expensive and often not accurate.

*likely US based medical advice

A sleep test is $100 ($75 USD) here.

Re: Poor sleep drove me insane, and my long path to recovery

#65

This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause

Interesting. I bet close to all young skinny people with sleep apnea must remain undiagnosed. My generalist doc basically said "if you really insist we can do a polysomnography, but I'm pretty sure you don't have it, you're young, skinny and sporty. There isn't really much that helps that you can do about it anyway". I did insist and it turned out that I do have it. The changes in life I experienced are similar to yo…

Yes, I was a young fit 23 year old, like, six pack abs and muscular.

I finally got my sleep study, and I had 79 AHI! When I went to get the equipment, they thought I would be severely obese.

It changed my life, but I worry how much long term damage was done until then. My friend told me when I slept over (around age 14) that I would literally stop breathing and he thought I was dead. Then I would suddenly gasp awake.

Anyways, if you're having trouble remaining awake, definitely get tested. If you have everyday headaches, get tested! Life can be much better.

Re: Poor sleep drove me insane, and my long path to recovery

#66
post #43

We have 2 cats that I love but one of them makes sure that I do not get a good nights sleep. I could not find any solutions so far. On top of that my wife snores and I’ve had long periods of poor sleep as a result of this. I realised that this is an issue while traveling. Being able to properly sleep in hotels and feeling rested / clear. Trying to find solutions. Ear plugs don’t feel good and even though sleeping in…

you can do immunotherapy--allergy shots. i have a friend at work with the same issues, loves his dog but it wrecks his sleep. allergy shots desensitize you to animal dander, but its a long process with weekly injections. Results in 1 year+

Also, in the meantime take an antihistamine like zyrtec daily as you have allergies

Re: Poor sleep drove me insane, and my long path to recovery

#67
post #55

I started getting sleep issues during the beginning of university and during a bodybuilding phase but I treated it as "that's what life is, you don't sleep. Welcome to adulthood." after growing up with an over weight and extreme snorer father who was very much on the stance of "shut up and be tired, that's what life is" By this point I was already getting to where it clearly wasn't normal and it's extremely affecting…

I will add you can get a second hand off a marketplace cpap machine without a prescription. I think many go this route as with insurance they can take it away if they see you are struggling to use it.

I am going to get one. I have all the symptoms of sleep apnea, I wake up with a dry mouth or nose and my wife often has to wake me up as I am snoring like a fog horn. I went to my Doctor and they got me rigged up for a sleep test with a load of sensors, but I could not fall asleep, the whole premise of 'i must sleep so the machine can record me, resulting in me not sleeping at all' and being told I had a negative test result.

Re: Poor sleep drove me insane, and my long path to recovery

#68

Very useful read. My friend, an osteopath, says neck issues also can create breathing obstructions, and it makes a good deal of people wake up in the middle of the night and stay awake, even though they don't even think it's a problem. Symptom to watch for: you wake up and your nose is stuffy, can't breathe through it, but there's no snot. And in 5-15 minutes it gets clear. If you have it, it means lymph flow out of…

Thanks for sharing, this seems like what happens to me except only partially (1 nostril fully congested and the other partially). I've only recently self-educated myself on nasal and sinus obstruction issues after particularly bad congestion from a cold. I used Afrin for one night and realized that my typical night was far from breathable compared to that.

Re: Poor sleep drove me insane, and my long path to recovery

#69

Earlier quoted context omitted.

Interesting. I bet close to all young skinny people with sleep apnea must remain undiagnosed. My generalist doc basically said "if you really insist we can do a polysomnography, but I'm pretty sure you don't have it, you're young, skinny and sporty. There isn't really much that helps that you can do about it anyway". I did insist and it turned out that I do have it. The changes in life I experienced are similar to yo…

Can I ask what symptoms you had as a skinny / sporty individual with sleep apnea?

Needing 11-12 hours of sleep a night, frequent dreams of drowning or not being able to breath, daily headaches, falling asleep no matter how much you wish to remain awake (such as during school lecture or driving). . . And if you can, have your partner watch you sleep. Mine was what did it for me, she said I worried her half to death, and thought one day she would wake up to find me dead (I frequently would stop breathing, then suddenly gasp awake, and of course, I snored like a monster).

Re: Poor sleep drove me insane, and my long path to recovery

#70
I don't know if I actually buy this cause and effect. The writing and other hints sounded like some kind of neuroticism unrelated to sleep apnea. I wouldn't be surprised if it comes back in the future and the author "finds" some other cause such as eating gluten or anything else en repeat.
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