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Poor sleep drove me insane, and my long path to recovery

writing.samsonhu.com

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Re: Poor sleep drove me insane, and my long path to recovery

#41
At some point I went nearly insane. Turns out that ADHD medication can mask sleep apnea. You need the medication but when you cannot sleep properly you go from meditation that is good for your to acting like a meth addict when your actual sleep is 2 hour a night for 2 years. At the worse point of crazy the doctors figured if out and also asked how I was not insane?!? Honestly I was at the point of CT with contrast looking for brain tumors looking for why! All good now. Health focused. Figured out sleep issue and made huge life style changes. CPAP pressures level down to minimum now after much work, with goal to be off of it. I cannot stress how important it is to have a stable measured baseline on all available measurements you can take about your body. BP, sleep cycle, heart rate, etc. things like the Apple Watch are miracles off technology we all need to embrace. Modern medical science used correctly is a game changer. Data is king and understanding it and questioning the doctors to the point of understanding matters. A good doctor will answer your questions in detail and work with you. If yours does not, find a better doctor.

Re: Poor sleep drove me insane, and my long path to recovery

#42
Thank you for sharing! Skimmed for now, but saving this to read later.

I've had a history as well of never getting good sleep so I'm curious to see what your experience was and the steps you've taken. A few things I've done that have helped a bunch:

- Using BreatheRight nasal strips every night

- Latex earplugs ("Mack's Pillow Soft Silicone Earplugs"). I could never sleep with foam earplugs in my ears but these are great

- Sleeping with a noise machine

- Getting a basic alarm clock so I can leave my phone outside the room

- Getting a c02 monitor

A ctrl+f on the page didn't show any c02 mentions, so I'll just say it's something I think is worth looking into for anyone having sleep trouble. My understanding from when I was looking at one to buy was there were different kind of sensors and the ones in the cheaper monitors were unreliable. I ended up getting this one [1] for $250 with the intention of returning it after getting a sense of where the levels would get to but ended up keeping it. For anyone who thinks it's at all possible to be a factor for them, I recommend getting that monitor with the plan being to just return it if you don't see anything surprising.

[1] https://www.amazon.com/Aranet4-Home-Temperature-Ink-Configur...

Re: Poor sleep drove me insane, and my long path to recovery

#43
We have 2 cats that I love but one of them makes sure that I do not get a good nights sleep. I could not find any solutions so far. On top of that my wife snores and I’ve had long periods of poor sleep as a result of this.

I realised that this is an issue while traveling. Being able to properly sleep in hotels and feeling rested / clear.

Trying to find solutions. Ear plugs don’t feel good and even though sleeping in the guest room helps with snoring, not the cat. (I close the door, little shit screams his lungs off in front of the door)

I never slept great in my 20s either but I guess my body could cope. Now it’s screwing things up.

Re: Poor sleep drove me insane, and my long path to recovery

#44
post #18

I had some issues like this but only manifested when I was on work trips which lasted weeks to months. I can tough out several days of sleeping in a hotel but the longer the stay the more I react to whatever is common to hotel rooms and the problems breathing / and sleep apnea gradually push me around the bend. Returning home cures me after a recovery period.

Maybe the air-conditioning is drying out your sinus?

Re: Poor sleep drove me insane, and my long path to recovery

#45

This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause

I appreciate you sharing your story. I had a similar journey over the last couple years because of the pandemic. Looking back now it was definitely an issue at least as far back as early teens.

I used to work out a lot, and very intensely as that was the only thing that made me feel "awake". It wasn't until the lockdowns when I couldn't get to the gym that it got bad enough that I also started my own journey to this diagnosis.

I had started living more in the dream world than the real world and being awake was a daze. I became distant to the world and lost my imagination, memory, and emotion. I was also questioning how I could ever go on with my current job and life.

Thankfully, I also started a sleep apnea treatment (oral appliance, and later CPAP) after many discussions with my doctor. This mostly fixed my condition. The difference is incredible and I don't have the words to describe how it has changed my life.

So I want to say thank you for sharing your story, you're not alone and I hope others see your story and get the help they need.

If you've read this story and suffer any of the symptoms mentioned, I highly recommend doing a sleep study, it's truly life altering.

Re: Poor sleep drove me insane, and my long path to recovery

#46
I found this hard to read. I have struggled with poor sleep for years (like, 10 years probably). It's not _that bad_, but, memory isn't great and definitely don't feel rested in the mornings. But I'm still reasonably functional, can hold down a job etc.

A while back I got tested for sleep apnea, had a 6 or a 7 on the scale (mild). I tried the CPAP machine for 6 weeks (inside the time I could return it). My number went down to 1 or something, but, I didn't feel any different, so I gave it up (this was about a year ago, maybe a bit longer).

I decided to try get to the bottom of my tiredness again and was recently at my doctors. He said it would take 3 to 6 months of using the CPAP machine before you'd know whether it would make a difference! I'm trying some other things first (giving up alcohol for 6 months as of yesterday!), taking nasal sprays and a device to stop me snoring.. Really hope something works out as it's just so annoying!

I'm very jealous in a way that the author found out the root cause of their issue. Well done keeping at it! For anyone who has successfully used CPAP, did it really take 3-6 months before you found it made a difference?

Re: Poor sleep drove me insane, and my long path to recovery

#47
Currently dealing with severe sleep apnea & the near inability to breathe thru my nose as a younger, athletic in a past life, skinny & thin framed male. Unable to get started w/CPAP due to life instability, & even that isn’t going to fully fix things as I have to have other major surgery that involves surgically removing my completely wrecked scalenes (anterior & middle - scalenes are secondary breathing muscles), a septoplasty, & a large amount of physical therapy & potential other surgery to help with severe muscular issues around/relating to my diaphragm (primary breathing muscle)

I’m affected in most ways he’s mentioned - but one thing I didn’t see is & what in the grand scheme of things is kinda dumb - is that chronic mouth breathing absolutely wrecked my once chisel-sharp jawline. Hoping one day after a few years of breathing thru my nose & postural improvement it will somewhat reappear.

I furthermore got completely shitrekt from the most wildly near-unbelievable thing - I have a mattress (from a company with owners who were HN users & described severe quality control issues with their mattresses that conveniently lined up near the time I purchased it - very fun lawsuit) that was apparently made with a sufficient amount of fiberglass (textile fiberglass, a bit different from insulation you’ve probably seen before) & the mattress leaked a ridiculous amount of fiberglass through both the bottom & top of the mattress. Having carpeted floors, I was vacuuming underneath the mattress for years, not knowing that was sending it into the entire HVAC system of my house. Eventually found out everything was coming from the mattress… & though I could go on, absolute shitshow.

Now, normally this wouldn’t be the worst thing as a young college person typically spends a good amount of time out of their house & in fresh air. I was unfortunately on bed rest, mostly in my room (ground zero of fiberglass mattress biohazard), for around two years as coronavirus canceled my aforementioned major surgery four times over the course of 1.5-2 years.

Reason in mentioning this: a large amount of mattresses HN demographic may find themselves ordering (e.g. on Amazon/the internet in general) are made partially of fiberglass. It’s such a large issue it’s now made it into LA Times articles - I can only recommend anybody check their brand in a google search with “fiberglass mattress” (maybe site:reddit.com as well)

Now, the good news is that it’s typically only an issue if you remove the zipper covering & release it, & you’ll likely quickly notice. Unfortunately in some it will still leak out of the bottom of the mattress over time (shedding, from pine needles like a tree) & unfortunately for me - mine happened to be an ultra-specific case where the manufacturer didn’t even have a zipper removable cover. It was just a breathable mesh & the fiberglass poked out of both the bottom & top of the mattress, in unbelievable amounts. I’m thankful for my 4k iPhone camera, else documenting it in my situation would’ve been near impossible.

Anyways, fuck you mattress company that used to talk shop on HN. Breathing textile fiberglass shards in my room & entire house for 2+ years wrecked my airways to an unforgivable degree.

Re: Poor sleep drove me insane, and my long path to recovery

#48
post #7

Earlier quoted context omitted.

But I don't wanna wear a machine! What will I tell lady friends from the bar?

There are also silicone devices which keep your tongue out of your airway by keeping it pulled outside. Studies show they work almost as well as a machine yet are much less likely to be rejected by users as opposed to a CPAP. Tongue stabilizing devices: https://www.verywellhealth.com/tongue-stabilizing-device-for...

I tried this as well as a jaw-advancing device and I still snored like hell. The only thing that worked was the Zyppah (jaw-advancer + tongue stabilizer at the same time) but that made my jaw so sore and also triggered my gag reflex most of the time.

Eventually the snoring simply stopped. Not sure what caused it, but I'm happy.

Re: Poor sleep drove me insane, and my long path to recovery

#49
post #43

We have 2 cats that I love but one of them makes sure that I do not get a good nights sleep. I could not find any solutions so far. On top of that my wife snores and I’ve had long periods of poor sleep as a result of this. I realised that this is an issue while traveling. Being able to properly sleep in hotels and feeling rested / clear. Trying to find solutions. Ear plugs don’t feel good and even though sleeping in…

you can do immunotherapy--allergy shots. i have a friend at work with the same issues, loves his dog but it wrecks his sleep. allergy shots desensitize you to animal dander, but its a long process with weekly injections. Results in 1 year+
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