Patients can now access all their health records digitally

Post by TedDoesntTalk » Sat, Oct 08, 2022, 2:09 AM UTC

oplav wrote: post #25

Dig1t wrote: post #10

One big limitation of this standard is imaging data. X-Ray radiographs, MRI scans, PET scans, etc are not part of the USCDI standard V1 that'll be available to US patients. The current story for getting these scans still sucks and isn't close to being actually available to patients in the US. The best you can get is a set of DVD's containing that stuff, if you are lucky. The problem is that the protocol used by imagi…

I've had routine MRIs for the last couple years and it has been interesting to see how the story to obtain image CDs has changed over the years. Years ago, I could just ask the tech to burn me a CD and it was often ready for me when I left the changing room. Then I had to start asking the reception desk but sometimes wasn't able to pick it up the same day. Most recently, the reception desk said they could no longer h…

Post by cocoricamo » Sat, Oct 08, 2022, 2:20 AM UTC

TedDoesntTalk wrote: post #31

oplav wrote: post #25

Earlier quoted context omitted.

I've had routine MRIs for the last couple years and it has been interesting to see how the story to obtain image CDs has changed over the years. Years ago, I could just ask the tech to burn me a CD and it was often ready for me when I left the changing room. Then I had to start asking the reception desk but sometimes wasn't able to pick it up the same day. Most recently, the reception desk said they could no longer h…

The CD I was given has a Windows-only program on it, complete with installer, and that is the only way to view the pictures on the disc. There are no JPG, PNG, GIF, RAW, PDF or any other recognizable files on the disc by itself.

Post by bpodgursky » Sat, Oct 08, 2022, 2:55 AM UTC

9wzYQbTYsAIc wrote: post #28

I occasionally wonder if it would be the cheaper, sustainable approach to just give everyone an iOS device containing their full medical record in HealthKit and require that all data requests go through your device, where you have full control on who gets access and for how long. A simple back-of-the-envelope calculation results in $1 000 per iOS device x 300 000 000 = $300 000 000 000 (three hundred billion). To put…

Post by null_flavour » Sat, Oct 08, 2022, 3:05 AM UTC

Dig1t wrote: post #10

One big limitation of this standard is imaging data. X-Ray radiographs, MRI scans, PET scans, etc are not part of the USCDI standard V1 that'll be available to US patients. The current story for getting these scans still sucks and isn't close to being actually available to patients in the US. The best you can get is a set of DVD's containing that stuff, if you are lucky. The problem is that the protocol used by imagi…

Post by [deleted] » Sat, Oct 08, 2022, 3:12 AM UTC

hotpotamus wrote: post #4

shishy wrote: post #3

Nothing sets off my fuse than a clinic refusing to send me my data so I can get it to another doctor for another opinion, ESPECIALLY around cost / prognosis (well, they don't "refuse", they just delay for so long). So, so glad to hear this.

> Reminder #5 – How IB actors make EHI available for access, exchange, and use can and will vary based on who the IB actor is, their technological sophistication, and who it is that is seeking to access, exchange or use an IB actor’s EHI. > The information blocking regulations do not require IB actors to adopt or use certain technologies or platforms. IB actors may use “patient portals,” other web interfaces, applica…