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Patients can now access all their health records digitally

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Re: Patients can now access all their health records digitally

#21

I really love it when I want records from Doc A to be sent to Doc B, then the Doc B offices refuses to get records and insist the patient need to do it, despite signing over all the papers, and then Doc A refuses to send them because they can only give to patient - even though patient is begging to send them. Quadruple the pain if you need records from multiple doctors. This is why now I prefer going to chain hospita…

My experience is that Doc A sends the thumbnail of the image to Doc B. Doc B is happy that Doc A sent an unusable file because he now gets to charge for a new image.

Hospitals track MRIs and other images ordered per doctor, and doctors are under pressure to hit their quota.

Re: Patients can now access all their health records digitally

#23

Earlier quoted context omitted.

> Reminder #5 – How IB actors make EHI available for access, exchange, and use can and will vary based on who the IB actor is, their technological sophistication, and who it is that is seeking to access, exchange or use an IB actor’s EHI. > The information blocking regulations do not require IB actors to adopt or use certain technologies or platforms. IB actors may use “patient portals,” other web interfaces, applica…

Is this always the case for photographers? If they are employed by a business and the pictures are taken for pay, wouldntthe company own them? Can you specify the same in a contract with a freelance photographer?

"When a photograph is a work made for hire, the employer is the copyright owner, not the photographer."

https://photocopyrightlaw.com/who-owns-the-copyright-to-a-wo...

Re: Patients can now access all their health records digitally

#24

*laughs in hospital still on Meditech "Magic" which is essentially a TUI even sitting at the terminal, I can't get the fucking records I need

Have you looked at the Meditech API documentation?

https://home.meditech.com/en/d/restapiresources/pages/apidoc...

Re: Patients can now access all their health records digitally

#25
post #10

One big limitation of this standard is imaging data. X-Ray radiographs, MRI scans, PET scans, etc are not part of the USCDI standard V1 that'll be available to US patients. The current story for getting these scans still sucks and isn't close to being actually available to patients in the US. The best you can get is a set of DVD's containing that stuff, if you are lucky. The problem is that the protocol used by imagi…

I've had routine MRIs for the last couple years and it has been interesting to see how the story to obtain image CDs has changed over the years.

Years ago, I could just ask the tech to burn me a CD and it was often ready for me when I left the changing room. Then I had to start asking the reception desk but sometimes wasn't able to pick it up the same day. Most recently, the reception desk said they could no longer help me and gave me a flyer that said I had to call a central office of the hospital and schedule a CD pick up at a different location. The flyer also made it sound like I was going to be charged for the CD, but luckily I was not.

Re: Patients can now access all their health records digitally

#26

This is great. Now let us delete them.

Good luck with that. If the medical group you are a part of is in their regional, statewide or a country wide HIE, you'd have to check with every connected partner to see what other systems may have queried for your data and potentially have copies as well. You typically won't have your data in too many other systems unless you are hopping between different medical groups/hospitals. There's just a possibility that th…

Or you can request your MIB, which is basically like a credit report for healthcare.

https://www.mib.com/request_your_record.html

The providers I've seen have had my records online since at least 2015 so this regulation doesnt really affect me much. You just have to know who what and how to ask.

I can see something like this negatively impacting what doctors say to each other.

Re: Patients can now access all their health records digitally

#27
post #3

Nothing sets off my fuse than a clinic refusing to send me my data so I can get it to another doctor for another opinion, ESPECIALLY around cost / prognosis (well, they don't "refuse", they just delay for so long). So, so glad to hear this.

https://www.hhs.gov/hipaa/for-professionals/privacy/guidance... > Individuals’ Right under HIPAA to Access their Health Information 45 CFR § 164.524 > Timeliness in Providing Access > In providing access to the individual, a covered entity must provide access to the PHI requested, in whole, or in part (if certain access may be denied as explained below), no later than 30 calendar days from receiving the individual’s…

One of my kids' doctors left their practice, and we followed them to the new. The old practice sent us a letter stating patients were not permitted to do so, and they refused to provide records citing a non-compete. (I had more than one sweary phone call with them over this.)

HIPAA has no private right to civil action in these scenarios, so we had to involve the state, and that process took about six months. It's definitely not fast; we were happily in the scenario where the records weren't time critical.

Re: Patients can now access all their health records digitally

#28
I occasionally wonder if it would be the cheaper, sustainable approach to just give everyone an iOS device containing their full medical record in HealthKit and require that all data requests go through your device, where you have full control on who gets access and for how long.

A simple back-of-the-envelope calculation results in $1 000 per iOS device x 300 000 000 = $300 000 000 000 (three hundred billion). To put that into perspective, the CDC says that $3 795 000 000 (three-thousand seven-hundred and nine-five billion) was spent on healthcare in 2019.

https://www.cdc.gov/nchs/hus/topics/health-care-expenditures...

Re: Patients can now access all their health records digitally

#30
post #14

This is great. Now let us delete them.

Why?

You may have read the comment the way I initially did:

as "Now let us (let's) delete them"

I think his meaning was "give us the right to delete them" which IMO should be the standard.

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