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Amit Gupta hasn't found a marrow transplant match; today's your last chance.

amitguptaneedsyou.com

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Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#191

Post by zasz »

jrockway wrote: post #50
zasz wrote: post #35

Earlier quoted context omitted.

It costs money to sequence DNA and calculate someone's ancestry. 23andMe loses money whenever it sells a kit. Are you seriously too lazy to save a nonprofit a few hundred bucks by spending 1 second to indicate your race? Also, every time I buy something at a store, I have to give them my addresses. Including my phone number and a few extra ways to contact me in case I move, and you know, someone is dying and needs my…

Also, every time I buy something at a store, I have to give them my addresses Every store I've been to has been perfectly happy with only a green piece of paper with the number "20" written all over it.

I meant an online store.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#193

Post by zasz »

eridius wrote: post #147
zasz wrote: post #35

Earlier quoted context omitted.

It costs money to sequence DNA and calculate someone's ancestry. 23andMe loses money whenever it sells a kit. Are you seriously too lazy to save a nonprofit a few hundred bucks by spending 1 second to indicate your race? Also, every time I buy something at a store, I have to give them my addresses. Including my phone number and a few extra ways to contact me in case I move, and you know, someone is dying and needs my…

If 23andMe loses money on kits, where are they making their money?

I used to work there. Fuck if I know. I think they were hoping to make money off the research, and they've moved to a subscription model by charging for new discoveries about your genome.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#194

Post by zasz »

cpher wrote: post #45
zasz wrote: post #35

Earlier quoted context omitted.

It costs money to sequence DNA and calculate someone's ancestry. 23andMe loses money whenever it sells a kit. Are you seriously too lazy to save a nonprofit a few hundred bucks by spending 1 second to indicate your race? Also, every time I buy something at a store, I have to give them my addresses. Including my phone number and a few extra ways to contact me in case I move, and you know, someone is dying and needs my…

Also, every time I buy something at a store, I have to give them my addresses. I hope you're kidding...

I meant an online store. I was too angry when I was typing my comment.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#195

Post by zasz »

cbr wrote: post #82
jeremymims wrote: post #24

Earlier quoted context omitted.

- Much of the reason for the secondary contact information is to ensure that if you are a match they have multiple ways to find you. - You may be a match for someone ten years down the line. Odds are that you won't be in exactly the same place with the exact same contact information. - It costs about $100 to do the analysis on each test. Therefore, if you provide additional information that may in some ways be redund…

> Much of the reason for the secondary contact information is to ensure that if you are a match they have multiple ways to find you. None of which helps if you would have been a match but instead dropped out of their signup process.

And if you were too much of a lazy douche to fill out a couple extra fields, they're supposed to believe you'd go through the actual effort of becoming a donor because...?

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#196

Post by zasz »

mekoka wrote: post #71
jeremymims wrote: post #24

Earlier quoted context omitted.

- Much of the reason for the secondary contact information is to ensure that if you are a match they have multiple ways to find you. - You may be a match for someone ten years down the line. Odds are that you won't be in exactly the same place with the exact same contact information. - It costs about $100 to do the analysis on each test. Therefore, if you provide additional information that may in some ways be redund…

I would strongly suggest that they have the courtesy of stating their intention when asking for all that information. It's not difficult. People are showing up to help and are then subjected to what seems like an interrogation. Even the most helpful soul would raise her eyebrows a few times. I'm not saying that the information is irrelevant, but each question is there for a reason, why not just state what it is? You…

For some reason, nobody complains when they have to fill out the paper equivalent of these web forms. I did, and happily indicated my race too, in a whole room full of people at my company, and nobody was complaining. I think that we're used to filling out much shorter forms on the web, so seeing a long form with a lot of fields there is disconcerting, but the quantity of information they're asking for is on par with most other paper forms I've filled out.

Also, we don't live in a world where DNA sequencing is free. Seems like common sense to fill out your race.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#197

Post by thomas11 »

haugstrup wrote: post #187
ramblerman wrote: post #182

Earlier quoted context omitted.

Well, as a European I'm Offended. But seriously what's the motivation behind this?

BSE/Mad Cow fears. Because of the BSE outbreak in the UK in the 80s (and the various smaller outbreaks later) the US authorities were scared shitless at some point. So if you've lived 5 or more years in Europe you're banned from donating blood forever. Not sure I understand the logic... Quarantine for a set period I can understand, but banning for life makes little sense. After all there are many blood donors in all…

In Switzerland, you're banned if you stayed in the UK for longer than a few weeks, during the BSE years. That seems to make a bit more sense.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#198

Post by michael_dorfman »

sax wrote: post #69
madao wrote: post #65

Earlier quoted context omitted.

Gupta is the English equivalent of Smith in India..

I am from the sub-continent. What you said is actually a good thing. There are lots of Guptas (and Vermas and Sharmas and other north-indian surnames). In India Guptas marry other Guptas (or Sharmas or Vermas or other surnames, BUT there is marriage within the community ). This is not true for Smiths in any part of the world.

This is not true for Smiths in any part of the world.

Sure it is. See, for example, Eleanor Roosevelt.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#199

Post by pella »

freemarketteddy wrote: post #9

I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience. >Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces. Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs! Okay chill...password abcd...... > In the past 5 years have you taken money or drugs in exchange for…

>-Also I have my genome phenotyped with 23andMe.

In the 23andMe there is a "Relative Finder" options. https://www.23andme.com/ancestry/relfinder/

probably they can create a "Donor finder" options easily ..

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#200

Post by echo-unity »

tomjen3 wrote: post #180
nostromo wrote: post #78

Since I'm still gay, I'm not allowed to help, no matter how many times you ask. I get why they do this and I shouldn't let it bother me, but emotionally it feels the same as if they just said, "Please become a donor, nohomo." edit: Of course I still wish the very best for Amit.

Get tested for a match anyway - if you match you can always say you didn't read the papers very carefully and that as gay person you can't donate. Then when he dies we have somebody to point to and say "this person could have been saved, but for your bigotry".

Morbid way of proving a point, don't you think?
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