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A shot to prevent Lyme disease could be on its way

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Re: A shot to prevent Lyme disease could be on its way

#411

Post by inter_netuser »

abakker wrote: post #343
lurquer wrote: post #332

Earlier quoted context omitted.

In regard to the Lyme disease vaccine issue, you are glossing over a very important component of the story. Due to public pressure, the FDA reconvened to take another look. While the FDA did not change its opinion (except for requesting some additional labeling and studies) the effect was disastrous for marketing. Sales plummeted. And, it was no longer worthwhile to pursue. The ‘official act’ of the FDA reconvening a…

makes you wonder how much "public pressure" came from the operators of quack lyme disease message boards and alternative treatment providers...after 4 times having it, I'm happy to say, in Doxycycline I trust. just don't go reading Lyme disease message boards without a tinfoil hat on.

If some dozens lunatics can do this, what can an army of sharp professionals with zero morals and a multi-billion dollar budget can achieve?

Re: A shot to prevent Lyme disease could be on its way

#412

Post by inter_netuser »

daddylongstroke wrote: post #403
ganafagol wrote: post #379

Earlier quoted context omitted.

I'm confused. Do you mean the millions of "long covid" cases which already exist today? Or the estimate that about 70% of all people who got the vaccine will be dead within 3 years? I know which of these two I consider gaslighting.

>Do you mean the millions of "long covid" cases which already exist today? Long covid has yet to be scientifically proven.

post-infection syndromes are well established, and not unique to coronaviruses. It can occur after an infection with ANY pathogen, including covid-19.

after any critical illness, doesn't even have to be an infection, with an ICU stay where intubation was required, the odds are ~50% you will be left with a permanent injury for life. However even after relatively moderate infection a permanent lifelong injury may remain.

https://my.clevelandclinic.org/health/diseases/21161-post-in...

It's not like injuries are binary: dead or alive.

you could also end up alive, but in a wheelchair with oxygen for life.

There is a huge spectrum in between, anything from vague brainfog, properly known as executive dysfunction, to partial or total paralysis due to a neuropathy often requiring mechanical ventilation, narcolepsy, organ failures, autoimmune conditions, and so on and so on.

None of this is new, nor controversial.

Re: A shot to prevent Lyme disease could be on its way

#413

Post by inter_netuser »

alexpw wrote: post #372
dukeofdoom wrote: post #326

Earlier quoted context omitted.

Some people are worried, just you never get here from them because they are either censored or drowned out by the corporate press. Here's a doctor, you don't usually get to hear from raising concerns you don't seem think to exit. https://www.youtube.com/watch?v=tUE5EBPt-lU&t=1128s

Dr. Ryan Cole, a pathologist, appears to make serious claims related to covid vaccines without supporting evidence. Searching his name reveals he's being given a voice by some of the right-wing media, but if there was substance to what he had to say, other doctors, researchers, scientists, etc, would eagerly jump to verify and act on it. https://www.factcheck.org/2021/04/scicheck-idaho-doctor-make...

why would they?

judging from comments on this forum alone, it would be a career suicide in this political climate.

Re: A shot to prevent Lyme disease could be on its way

#414

Post by xoa »

piva00 wrote: post #384
sonicggg wrote: post #355

Earlier quoted context omitted.

How do you manage to get it so often? I live in an area that is endemic to Lyme, but it's something that can easily be avoided (much easier than Covid). But I do see reckless behaviour all the time as well, so maybe it is not that surprising.

I live in Sweden, I know several people who got Borrelia infections including my girlfriend, and hers developed into Lyme once. Most caught it and treated it early but some just had a fever and only discovered it was Lyme after months. It's insidious, if you spend time in nature you are exposing yourself to it. The ticks will be on tall grass, falling from trees, crawling from the ground. How can that be avoided? Dur…

>Please, if you know an easy way to avoid all of this I'd love to hear it but so far I only know to be cautious and vigilant.

I'm late to this so don't know if you'll see it, but I live in rural New England and ticks have become ever more horrendous here, yet I haven't had a single one in, a decade at least? The big thing for me has been getting a solid set of permethrin utilizing full coverage clothing (look for branding like "Insect Shield"), including socks and a hat with neck protection, combined with occasional judicious usage of repellent (I suggest 20% picaridin instead of DEET, something like Sawyer Products which has almost no smell and won't melt polymers that deet will). Having clothing that one can just put on for going out and boom high protection makes it so convenient vs applying repellent that I never fail to, and it has done exactly what was promised. They don't last forever, after 50-70 washings they need to be replaced, but if using them in a focused way for outdoor usage that can last a good while.

I'd still absolutely leap at a vaccine if available, but physical/chemical protection does work so the trick is making it convenient enough and enough of a habit to be 100% consistent about it.

Re: A shot to prevent Lyme disease could be on its way

#415

Post by lurquer »

inter_netuser wrote: post #411
abakker wrote: post #343

Earlier quoted context omitted.

makes you wonder how much "public pressure" came from the operators of quack lyme disease message boards and alternative treatment providers...after 4 times having it, I'm happy to say, in Doxycycline I trust. just don't go reading Lyme disease message boards without a tinfoil hat on.

If some dozens lunatics can do this, what can an army of sharp professionals with zero morals and a multi-billion dollar budget can achieve?

The FDA was created because of the nefarious unethical conduct of doctors/pharma.

Yet some HN posters seem to think the organization exists to protect us from skeptics.

What a twisted view.

Re: A shot to prevent Lyme disease could be on its way

#416

Post by jemurray »

PragmaticPulp wrote: post #150
jemurray wrote: post #75

I know this is about Lyme disease, but let me add another word of caution while we are discussing ticks. Two years ago I was bit by the Lone Star tick. Since that time I developed an allergy to all red meat. It was hard to diagnose and a few of the doctors I worked with along the years still don’t believe its true. If your interested in learning more search for Alpha Gal. There is an excellent Radio Lab podcast about…

> It was hard to diagnose and a few of the doctors I worked with along the years still don’t believe its true. Did they offer alternative explanations or did they simply stonewall you and deny your reported symptoms? One of the lessons I learned far too late in life was to not waste time with doctors who don’t believe your reported symptoms. On some level I understand how it happens — Doctors inevitably see a number…

The doctor believed the more likely cause was a sensitivity to the fats. He had very little evidence, at the time, to support a tick borne allergy.

He wanted to rule out this line of thinking first.

Re: A shot to prevent Lyme disease could be on its way

#417

Post by hammock »

abakker wrote: post #342
tdeck wrote: post #315

Earlier quoted context omitted.

I had Lyme twice as a kid too (in suburban Pennsylvania). It's not fun and it's a bit crazy that you can get it more than once. People are usually shocked when I tell them. I knew someone who was temporarily paralyzed on one side because of Lyme that they diagnosed late - it's scary.

I grew up in CT. Had it 4 times, only got the bullseye once. It is no joke, and as you get older it seems to suck more and more. Last time I had numbness in my face as the only symptom, but...thrice bitten, fully paranoid, and I was treated pretty fast. One thing which is important with a vaccine is that when I was a kid (early 90s) the rate of ticks carrying lyme was in the 10% range or less, while now it is >50%. A…

How long were the ticks on you before you removed them?

Re: A shot to prevent Lyme disease could be on its way

#418

Post by h0l0cube »

inter_netuser wrote: post #412
daddylongstroke wrote: post #403

Earlier quoted context omitted.

>Do you mean the millions of "long covid" cases which already exist today? Long covid has yet to be scientifically proven.

post-infection syndromes are well established, and not unique to coronaviruses. It can occur after an infection with ANY pathogen, including covid-19. after any critical illness, doesn't even have to be an infection, with an ICU stay where intubation was required, the odds are ~50% you will be left with a permanent injury for life. However even after relatively moderate infection a permanent lifelong injury may remai…

I compiled these links a month or so ago (an aeon in Covid-time):

Brain damage - https://www.nature.com/articles/d41586-021-01693-6

Pulmonary function - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7997144/

Cardiovascular disease - https://www.nature.com/articles/s41569-020-0413-9

Re: A shot to prevent Lyme disease could be on its way

#419

Post by Talanes »

daddylongstroke wrote: post #399
Talanes wrote: post #356

Earlier quoted context omitted.

>You would still have to monitor for ticks This part is true no matter how effective the vaccine is. Ticks are gross, diseased or not.

Ticks are insects, not gross. They're just animals looking to eat, just like you and I.

If a kitten latched onto my skin to just hang out and engorge itself, that'd be gross too. Being gross isn't a matter of intent or etymology, it's an action.

Re: A shot to prevent Lyme disease could be on its way

#420

Post by daddylongstroke »

Talanes wrote: post #419
daddylongstroke wrote: post #399

Earlier quoted context omitted.

Ticks are insects, not gross. They're just animals looking to eat, just like you and I.

If a kitten latched onto my skin to just hang out and engorge itself, that'd be gross too. Being gross isn't a matter of intent or etymology, it's an action.

You're making judgments about animals that are wholly inappropriate for their "actions". Seems to be trendy on HN to call things gross lately...maybe its the new generation?
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