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Burden of post-Covid-19 syndrome and implications for healthcare planning

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Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#131

Post by inb4_cancelled »

halotrope wrote: post #39

Is it possible to have an asymptomatic primary infection and still suffer long covid? Antigen tests where negative but ever since last fall I feel weird symptoms that I never had for any length of time. Stuff like trouble spelling, complete lack of concentration, difficulties comprehending things when trying to actively learn and a general feeling of confusion and exhaustion. I tend to just assume a general state of…

I'd like to know as well. Never had any covid AFAIK, yet I'm currently on my second week of feeling tired and on my fourth day of experiencing heart palpitations maybe once every hour (feels like my heart skipped a beat and the next one is a bit stronger). I've never had this before and my antigen test yesterday was negative.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#132

Post by axiak »

iammisc wrote: post #49

When my first daughter was born in 2018, I had a respiratory infection. It lasted three months before I went in to the doctor. I hesitated to seek medical advice because it was clearly viral. But the cough was so bad it was causing the newborn to wake up. The doctor (at a walk-in clinic) told me viral respiratory infections can last months and there's nothing you can do. Just wait. HE gave me some pills to stop the c…

i think the key difference is the incidence rate. if long term symptoms occur in less than one percent of cases, that's still enough for doctors to see and treat without surprise. this article says the incident rate for covid-19 is 25%, which is shockingly high.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#133

Post by ljf »

deregulateMed wrote: post #57
TuringNYC wrote: post #44

Earlier quoted context omitted.

I was about to say this also -- I haven't been to the gym for over a year and haven't done any real weight training or group exercise for this whole time in lockdown. It would be hard for me to separate the effect of that from long COVID, curious how the study is controlling for this factor.

I want to ask the commenters in this thread who have long covid if they are overweight/obese or have a medical condition. But... I don't want to get flagged.

Hey can only talk for my wife (got covid late March 2020)

40yo, not over weight, was at the gym 4 days a week, could squat and deadlift 50kg, very active life.

Only 'pre existing' was coeliac disease and very very mild asthma. Like barely ever took a blue inhaler but had one in the house. Other that That fit and healthy and very active.

Inital covid as bad, but after 2 weeks was nearly back to normal, then breathing got worse, heart rate all over the place, numbness, brain fog etc. Only just getting back to normal now but still not ready for exercise yet.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#135

Post by iammisc »

jamroom wrote: post #96
iammisc wrote: post #41

Earlier quoted context omitted.

NAC is illegal in the USA now. Thank you FDA.

Are you talking about N-Acetyl Cysteine? Something like this? https://www.swansonvitamins.com/swanson-premium-nac-n-acetyl... When did it become illegal? I've used it before and was unaware of that.

I've used it before as well.

Here is a story about the FDA and NAC: https://www.naturalproductsinsider.com/regulatory/crn-petiti...

Honestly, I haven't used NAC in ~2 years. Have just heard about the drama from friends.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#136

Post by ericd »

lambdaba wrote: post #100
ericd wrote: post #92

Earlier quoted context omitted.

I'm no expert on any of this, but I think the theory is that many of these don't have a single strong directional effect like most single-compound pharmaceuticals do, but that if your body is short on something, and that's causing an issue, it can grab something from the cocktail of compounds, and that can help. If it's not, then it doesn't.

Many of the recommendations are vitamins and minerals, that are common deficiencies (magnesium is a notorious one, because of soil depletion etc.). It's reasonable to suspect that recovery from an illness finds one in a nutrient-depleted state.

Ah yeah, I was thinking more about the plant extracts. But your body is probably decent at filtering out the vitamins and minerals it doesn’t need (the water soluble ones, at least, be careful with fat soluble ones like vitamin D).

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#138

Post by spookthesunset »

perlgeek wrote: post #90
iammisc wrote: post #49

When my first daughter was born in 2018, I had a respiratory infection. It lasted three months before I went in to the doctor. I hesitated to seek medical advice because it was clearly viral. But the cough was so bad it was causing the newborn to wake up. The doctor (at a walk-in clinic) told me viral respiratory infections can last months and there's nothing you can do. Just wait. HE gave me some pills to stop the c…

With a "normal" viral cough, the infection itself lasts that long. With Long Covid, the viral load is gone from your system, and symptoms still persist Previously, the general public wasn't very interested in chronic, unspecific symptoms that people have or had (google Chronic Fatigue Syndrome; it's a collection of people feeling fatigue, have concentration issues etc. similar to Long Covid, many long before COVID-19…

> With Covid, there are too many to ignore, so such things are now getting more attention.

Too many to ignore or just that we decided to put a huge magnifying glass on it? We have our log levels turned up to "ultra verbose" and are collecting every single scrap of data. If we looked at other respiratory viruses with the same amount of logging... I would bet we'd see just as much, if not more, crap as we are with covid. Never has a respiratory virus been followed this closely.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#139

Post by jacquesm »

saalweachter wrote: post #121
jacquesm wrote: post #103

Earlier quoted context omitted.

Right, well let's just say that coincidentally I had a viral infection that has the exact same symptoms as COVID, has the same long term effects as are reported in many cases of COVID and which coincidentally happened to be timed to match the first wave of that particular pandemic, but according to you it wasn't COVID when it wasn't confirmed as such with a test. Consider the alternative: you would have to come up wi…

I mean, I'm not even sure I would bother with a T-cell test in your case. The only meaningful difference in your future life would be to have the results to give people on the internet, which doesn't seem worth getting two tubes of blood drawn.

Precisely. If there is a benefit to me I'll get tested. Even the medic I talked to was pretty clear: don't bother, save the test for someone who really needs it. Which at that time could have saved a life for someone that needed to have an operation and required a COVID test prior to admission.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#140

Post by disabled »

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

In my early 30s: Pretty sure I had COVID-19 in early March 2020. I had shortness of breath for a couple of days and I was feverish for about 8 weeks.

Afterwards, I have severe fatigue. I also experienced bouts, off an on for like a week or two at a time, where I could not physically get warm, and I was freezing to death, no matter what I did.

I also have severe dysautonomia (autonomic nervous system dysfunction) which I had prior to probably having COVID-19, which got worse. However, it is much improved now. People who got dysautonomia from COVID-19, by the way, can expect for it to significantly improve, or go away. Just focus on resting. It is a brutal disease, trust me, but you can get through it.

I also had cognitive issues, with respect to memory, which has improved significantly.

My best tip: Get a Garmin watch, that has the "Body Battery" function. It's a literal lifesaver. Do not let the "Body Battery" ever go under a 20 (out of 100) score, ever. You will pay a huge price if you do. Use the "Body Battery" to gauge if you can exert yourself or you need to rest. (It also determines if you got a good night's rest.) By the way, it works based on heart rate variability, and is quite accurate.

Here is a good Physical Therapy presentation on the current situation: https://www.albertahealthservices.ca/assets/info/hpsp/if-hps...

Other tips: This is the ultimate site on fatigue. Unfortunately it is in Norwegian, so you have to use Google Translate for the website (and the PDF documents--which are great): https://www.kognitiv.no/psykisk-helse/ulike-lidelser/utmatte...

It is based on the book "Energityvene" which is called Energy Thieves. Unfortunately there is not an English version.

I hope this helps.

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