Burden of post-Covid-19 syndrome and implications for healthcare planning • Hacker News Board

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#111

Post by outworlder » Tue, Jul 13, 2021, 7:40 PM UTC

DeRock wrote: post #36

ElViajero wrote: post #26

Earlier quoted context omitted.

I got CoVid in Osaka at the beginning of November 2019. The symptoms lasted around 5 months. I got it again in May 2021 and this time I was fully recovered in 3 weeks. I got vaccinated, even during the second infection I felt extremely tired and slightly confused, I want to minimize as much as possible the risk of repeating again. update: For all the down-votes. Time will say. But "A new study shows that first cases…

> I got CoVid in Osaka at the beginning of November 2019. Impossible, cases did not appear in Wuhan until mid-late November. You must have had some other flu/virus.

Impossible is a very strong word, there are samples of people from months before covid was identified in Wuhan that are under investigation. Not specifically in Japan, but it can't be ruled out with the current information.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#112

Post by Jefro118 » Tue, Jul 13, 2021, 7:40 PM UTC

bb2018 wrote: post #37

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

I do wonder if this is proportional to your symptoms/proportional to other ailments. For instance, is someone with Covid (who was on the verge of needing oxygen) more likely to have long term symptoms than someone the same age who got the flu/pneumonia (and was also on the verge of needing oxygen). In other words - is there something unique about Covid? Or is that any disease that sets you back has serious long-term…

I believe one difference with Covid is that people often have issues across multiple organs (I believe this is because the virus binds to ACE2 receptors which are present over the body, not an expert though) whereas with flu/pnemuonia I think it's more likely to be just generic fatigue and lung capacity as longer term effects.

I think the sheer range of long lasting symptoms is quite unique to Covid, although other diseases like Ebola or Smallpox would leave more severe damage.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#113

Post by OzyM » Tue, Jul 13, 2021, 7:42 PM UTC

amirhirsch wrote: post #79

OzyM wrote: post #25

How likely are these numbers to be accurate? This Swiss study of 431 adults gives a 26% incidence of "Long Covid" at 6-8 months. But another study that I'm more familiar with that tracked 4,182 people (mostly from the U.K., U.S., and Sweden) says only 2.3% of participants reported symptoms past the three month point. [0] I feel like every time I look into this topic I find a new study with a wildly different estimate…

>>Symptoms were present in 385 (89%) participants at diagnosis and 81 (19%) were initially hospitalized. The US hospitalization rate is (2,297,764 hospitalized / 33,604,986 tested positive) 6.8% so the study is a cohort of extra-sick folks. Also consider the selection bias of those who want to tell the surveyor about it. I've been thinking about how to correct for this in cohort studies, like perhaps ask people if th…

You lost me at the vegan part? I agree that this is a major source of error in a lot of studies like these, though.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#114

Post by dtech » Tue, Jul 13, 2021, 7:42 PM UTC

ElViajero wrote: post #42

gpm wrote: post #31

Earlier quoted context omitted.

> in Osaka at the beginning of November 2019 On what basis do you believe this was covid-19 and not some other disease?

I had the same symptoms that I had the second time. The second time was confirmed by PCR-test. But, of course, it could have been an equivalent disease with the same symptoms: fever, mental-fog, sore-throat. It is just the timing, the fact that Osaka is visited by many Chinese nationals and the feeling was so similar that makes me quite sure that it was covid-19.

Those are symptoms of literally every airway infection known to man. Is is much, much, much more likely you had a flu/heavy cold instead of having Covid 1 month before the first public Chinese cases and 3 months before first European cases

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#115

Post by Amezarak » Tue, Jul 13, 2021, 7:42 PM UTC

jacquesm wrote: post #70

usaphp wrote: post #60

Earlier quoted context omitted.

So you were never tested for covid? How do you know if it was covid ?

Because I'm not a complete idiot. - pandemic in progress: check - risky lifestyle: check (as in very frequent air travel for work) - symptoms: O2 level drop, fluid in lungs, persistent cough, extreme tiredness, dizzyness, loss of smell/taste check all of these, and the rest, fortunately not. Later on: crazy beating heart for no particular reason, losing weight steadily but more slowly now. Decision not to test was ma…

I don't think GP was suggesting you were dumb, just trying to point out there's a lot of widespread respiratory illnesses with exactly the same symptoms that are endemic - not to say Covid isn't more severe at a population level, but that you can't really say with any kind of certainty based only on those symptoms that someone has Covid. A few years ago I had exactly these symptoms, plus a high fever, but in my case, it was probably the flu. it was awful - I didn't really get over it for several months.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#116

Post by nick__m » Tue, Jul 13, 2021, 7:42 PM UTC

iammisc wrote: post #41

manmal wrote: post #24

Earlier quoted context omitted.

Did you try NAC? Maybe worth a shot - this paper is about „long EBV/mono“ which might have similar mechanisms: https://pubmed.ncbi.nlm.nih.gov/29228057/ > These data support the idea that NAC could be considered as a treatment to alleviate chronic inflammatory pathologies, including post-viral disease

NAC is illegal in the USA now. Thank you FDA.

They seems to have banned products claiming to cure hangovers https://www.fda.gov/food/cfsan-constituent-updates/fda-sends... but Nac is still available. Amazon had an overly broad interpretation of those letters but it appears to be available there : https://www.iherb.com/pr/Now-Foods-NAC-600-mg-250-Veggie-Cap...

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#117

Post by Ozzie_osman » Tue, Jul 13, 2021, 7:43 PM UTC

iammisc wrote: post #49

When my first daughter was born in 2018, I had a respiratory infection. It lasted three months before I went in to the doctor. I hesitated to seek medical advice because it was clearly viral. But the cough was so bad it was causing the newborn to wake up. The doctor (at a walk-in clinic) told me viral respiratory infections can last months and there's nothing you can do. Just wait. HE gave me some pills to stop the c…

> why did my doctor tell me that viral respiratory diseases can last for many months in early 2019, when according to what I gather here, doctors are surprised that COVID may do the same?

I don't think most doctors are terribly surprised (at least not ones who have dealt with respiratory diseases before). The press, on the other hand, loves stories like these.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#118

Post by verdverm » Tue, Jul 13, 2021, 7:43 PM UTC

austincheney wrote: post #93

perlgeek wrote: post #69

Earlier quoted context omitted.

> I will always wonder if I had called them earlier if I could have avoided the worst of this Given the prevalence of Long Covid in asymptomatic cases, many people claim that the severity of the initial disease and the long-term symptoms are not really correlated. So it's likely that seeking emergency care wouldn't have changed anything. Wishing you the best of luck and a good/complete recovery!

Symptomatic or not if you carry the virus you should still pop hot on an antibody test. You would think. I had a Covid positive coworker last year cough around me and directly work very closely with me immediately before taking sick time. I still continued to fail the antibody tests indicating either no viral contact or no immune response of any kind. I don’t know if there is a correlation here but in a six month per…

Some researchers are starting to think that the spike protein is the main contributor to this issue and not the virus itself, so if even if the virus is gone, the protein may still be present.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#119

Post by thinkingemote » Tue, Jul 13, 2021, 7:44 PM UTC

This is an example of attention, social media and science:

My anecodte. Last year I didn't get a bad infection and didn't get long covid.

My story is not interesting, no one wants to hear it and no one else will share their similar anecdotes.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#120

Post by krastanov » Tue, Jul 13, 2021, 7:44 PM UTC

lambdaba wrote: post #56

mygoodaccount wrote: post #10

Earlier quoted context omitted.

Another one here (Woman, 24 y.o.). Contracted COVID, had a terrible three-weeks of infection. Nine months later, I am having weekly heart palpitations, I'm constantly fatigued and fogged in the mind and my lung capacity is half what it used to be - I now require an inhaler to go on my runs. I know several women my age experiencing far worse. Long COVID should not be ignored.

I hope this is taken the right way, but have you tried "vitamins" (broadly speaking)? Some I have seen with specific effects: Niacin, Black Seed Oil (Nigella Sativa), Magnesium megadoses, etc. etc. Don't dismiss these as "quack medicines", I've recovered from severe chronic illness thanks to some of these... I could expand if people ask, but really it's quite easy, especially for the HN crowd, to level-up rapidly on…

> [edit] here come the downvotes, for those that do, note that downvotes, at least on HN, are not meant to express disagreement, they are meant for content that is objectionable for other reasons.

This is factually wrong. Search for posts by dang frequently explaining traditions and norms in this forum, including the downvote very much being a standard way to express disagreement (although it is better to voice your disagreement in a comment if you think the conversation would be interesting).