This is very sad to hear.
Roy talked about the cancer in January: https://roy.marples.name/blog/posts/cancer/
Dhcpcd Will Need a New Maintainer
101–110 of 233 posts
Re: Dhcpcd Will Need a New Maintainer
#102Dear Roy, It is unfortunate you are dealing with this. I am so sorry and hope for the best. The Handshake founders had an airdrop pre allocated for you in the Handshake Blockchain [1] so there is about $64,000.00 in there that you can claim under marples.name as of writing. [1] https://dns.live/top.html
What does this mean? Did the founders decide Roy's work was worthy of the coin donation?
I do not entirely understand how it works, but I think they allocated coins to users on GitHub based on certain metrics, and also reserved names in their system for the top 100k sites on Alexa.
It seems to be mostly automated/algorithmic.
Re: Dhcpcd Will Need a New Maintainer
#103Earlier quoted context omitted.
I call this "Postel decentralisation": everyone thinks there's some kind of system or institution making everything work, but in fact there's just a guy doing it all on his own.
Relevant: http://ccs.mit.edu/papers/CCSWP197/CCSWP197.html Postel picked up the role of number coordinator because it needed to be done.
Also see RFC 2468, written in remembrance of Jon Postel.
Re: Dhcpcd Will Need a New Maintainer
#104Earlier quoted context omitted.
The way I see it, we already have that world, with capitalism functioning as a filter. I worked my ass off to reach financial independence, now I'm dedicating the rest of my life towards helping other people. I've proven to be capable of using the system to a degree where I can do whatever I want, which allows me the freedom to help other people full time. It's not a perfect system, but I doubt UBI will be much bette…
> I worked my ass off to reach financial independence This is a false pursuit, and in a sense a vacuous statement. You are never independent of society around you. You are in constant need of others doing that invisible and visible labor - in production and in services - to maintain your way of life. It's only with Capitalism being the way it is that you need to "work your ass off" to not be financially dependent on…
[deleted]
Re: Dhcpcd Will Need a New Maintainer
#105Earlier quoted context omitted.
But millions per patient is the exception, most people don't have that spent on them, thats why it averages out, and why countries like Australia can afford public health care.
So Australia does not have any caps whatsoever on what they will spend for disease X?
Not that I know of, medications make their way onto the Pharmaceutical Benefits schedule (PBS) schedule, so some new drugs aren't available for a short time - as someone else mentioned the government negotiates a fixed price for the drugs. You have to pay for drugs but there's a yearly cap of a few hundred dollars last time I was involved in it and you can claim that back, pensioners have a special low price per drug.
There are some drugs that require the doctor to make a case for it - but thats a fairy routine matter. You do hear of people flying overseas for a special treatment (mainly experimental) thats not yet here, that isn't covered.
Edit: an example - I had a checkup last year, got a bunch of tests done - total out of pocket for me was $30 or so, all the blood tests are free. The $30 was for the doctor, if I wanted to shop around there are free doctors that just charge the schedule price. I had to get an MRI about 7 years ago, now I could have waited, or got it in the hospital, but I chose to get it at a clinic, cause I wanted to get out of the hospital (which was free) - out of pocket was $800 for that.
Re: Dhcpcd Will Need a New Maintainer
#106Heartbreaking. I've been a long time user of DHCPD but (as I think many of us) never knew or think about all the people and hard work behind it. Thanks for everything.
Re: Dhcpcd Will Need a New Maintainer
#107Dear Roy, It is unfortunate you are dealing with this. I am so sorry and hope for the best. The Handshake founders had an airdrop pre allocated for you in the Handshake Blockchain [1] so there is about $64,000.00 in there that you can claim under marples.name as of writing. [1] https://dns.live/top.html
Maybe he has more urging matter than claiming this ? Thought about the paperwork and taxes handling ? Could you do that for him ?
He provides a paypal link for donations in the post, and for most people $64k is a non-insignificant amount (i.e. would be worth the effort of claiming).
Re: Dhcpcd Will Need a New Maintainer
#108Earlier quoted context omitted.
But millions per patient is the exception, most people don't have that spent on them, thats why it averages out, and why countries like Australia can afford public health care.
So Australia does not have any caps whatsoever on what they will spend for disease X?
There are no fixed limits at the individual level.
There is a government advisory committee called PBAC which advises the government on whether to pay for certain drugs. There have been cases where PBAC refuses to fund a new drug because it doesn't see the benefit as worth the cost. For example, suppose there is a new cancer drug which costs $100,000 a patient, and on average extends the patient's life by 3 months. PBAC will likely say it isn't worth it for taxpayers to pay $100,000 to extend a person's life only by 3 months.
To give another example, in the public health system, there are a certain number of ECMO machines available. Given the limited number, they can't just leave patients on ECMO indefinitely. Sometimes they will take a patient off because the probability of survival is low and there is another patient needing one with a higher probability of survival. But, if you look at patients with low survival probability, most of them will die even with treatment, but a small minority may have nonetheless survived yet now that you are withdrawing treatment they won't. However, we cannot know who will be in that small minority, and society isn't willing to spend unlimited resources on trying to save people's lives against the odds.
Re: Dhcpcd Will Need a New Maintainer
#109Earlier quoted context omitted.
This complexity was one of the major reasons the Affordable Care Act’s public option was eliminated. There was going to be a group of people who made these decisions. But when the public found out they were deemed as “death panels” that would get to chose who would live or die.
As opposed to insurance companies determining who would die?
It really is different. The existence of unlimited pay-as-you-go care means that you could possibly raise the funds. In systems where all care is state-administered and an attempt to pay for more care would be criminalized as bribery, you'll die of a treatable disease if some bureaucrat decides that the treatment isn't cost effective for a person like you. The details of choices vary, but go something like this: "treatment X for disease Y is not cost-effective (considering quality-adjusted years of life) for people over age X, so provide only pain relief".
Re: Dhcpcd Will Need a New Maintainer
#110This is a sad reminder of the masses of invisible labor (unpaid and paid) that hold up our world. Social scientists have been studying how labor becomes visible (or invisible) for a while without finding obvious solutions to "the situation." How can we build a world where an infinite procession specialists like Roy can get the care they need and also find and train successors in their important work? Not just because…
Just in my personal opinion, things like a UBI move us towards that world. It wound allow people flexibility.
I wonder if UBI could be marketed politically in this way, e.g. "Finally paying for all the things you've already been using" or "Finally paying for the free labor you've based your life on" etc. type of messaging.
I mean, it should be less guilt-y of course (I'm not in marketing) and somehow capture it's _society_ finally paying for the things generated by free/underpaid labor, not individual citizens, and not imply that people have been selfish etc.