41–50 of 103 posts
If this happened to me, I would tell my family to kill me in 1 year. We could setup an assisted suicide - I would feel it cruel to force me to live in such a state. If my family refused I would just go sky diving during month 5 and have an amazing decent down. The idea of people caring for me is worse than hell or torture. People should be allowed to die.
> Families of people with dementia land in different places on this issue, but to her, it’s beyond question that Jo is not here anymore; most everything that made him Jo has been stolen. This was very sad, but it's a good articulation of the circumstances where I would rather die than continue living. Has anyone seen a good framework to help think through scenarios like these as part of a will or end-of-life directiv…
> good articulation of the circumstances where I would rather die than continue living. I did my alternative civilian service in a nursing home for people with dementia when I was 19. I have noticed 6 stages: 1) Fear that something is wrong with their memory and incredible efforts to hide it (this is usually before they live in a nursing home). 2) Anger, shame and desperation. 3) Internalization, they then either mak…
But it looked to me like those were some fairly happy years for her. When she was of sound mind, she was always worried about countless things. Now she was cheerful, watching the world in wonder, and occasionally flirting with a fellow resident.
> Families of people with dementia land in different places on this issue, but to her, it’s beyond question that Jo is not here anymore; most everything that made him Jo has been stolen. This was very sad, but it's a good articulation of the circumstances where I would rather die than continue living. Has anyone seen a good framework to help think through scenarios like these as part of a will or end-of-life directiv…
I sort of feel the same? The main issue is I don't want my family to be burdened with the needs of a creature that looks like me and is continuous with me but isn't me. The suffering of that creature is a secondary concern, but also relevant. I don't think in the US or Canada there is any way to legally end your life at that point. Maybe nowhere in the world. You would need to end it while still competent. That would…
There is also this story about Clouflares co-founder, Lee Holloway who was diagnosed with frontotemporal dementia. [0] https://www.wired.com/story/lee-holloway-devastating-decline...
Earlier quoted context omitted.
"There's evidence that..." does not equal "To prevent Alzheimer's, do...." Science does not work that way. We start from a hypothesis ("Alzheimer's is a type of metabolic dysfunction."), to test that hypothesis ("Intermittent fasting may delay or prevent the onset of Alzheimer's."), to finally saying "There's evidence that...." Eventually, once there's enough evidence, we can say with some certainty "To prevent Alzhe…
Yes, and it's extremely unsettling that we have absolutely no idea what causes it or how to treat it. But jumping straight to "There is evidence in mice" with the implication of "try this yourself" is not justifiable.
I’m all about rigorously testing the hypothesis over time, but the safety / risks of the intervention has been well studied for a very, very long time.
“Might help and extremely unlikely to hurt” is not a bad basis on which to decide to take up IF.
If this happened to me, I would tell my family to kill me in 1 year. We could setup an assisted suicide - I would feel it cruel to force me to live in such a state. If my family refused I would just go sky diving during month 5 and have an amazing decent down. The idea of people caring for me is worse than hell or torture. People should be allowed to die.
This is exactly what Jo from the article wanted. It turns out that in practice it is quite hard to actually get your loved ones to follow through with clandestinely offing you. And the state doesn’t offer a mechanism for any kind of advanced end of life request.
> Families of people with dementia land in different places on this issue, but to her, it’s beyond question that Jo is not here anymore; most everything that made him Jo has been stolen. This was very sad, but it's a good articulation of the circumstances where I would rather die than continue living. Has anyone seen a good framework to help think through scenarios like these as part of a will or end-of-life directiv…
> good articulation of the circumstances where I would rather die than continue living. I did my alternative civilian service in a nursing home for people with dementia when I was 19. I have noticed 6 stages: 1) Fear that something is wrong with their memory and incredible efforts to hide it (this is usually before they live in a nursing home). 2) Anger, shame and desperation. 3) Internalization, they then either mak…
Earlier quoted context omitted.
This is exactly what Jo from the article wanted. It turns out that in practice it is quite hard to actually get your loved ones to follow through with clandestinely offing you. And the state doesn’t offer a mechanism for any kind of advanced end of life request.
In most countries, it also puts said loved ones on the wrong side of the law. Better take care of it personally while you are still you.
> Families of people with dementia land in different places on this issue, but to her, it’s beyond question that Jo is not here anymore; most everything that made him Jo has been stolen. This was very sad, but it's a good articulation of the circumstances where I would rather die than continue living. Has anyone seen a good framework to help think through scenarios like these as part of a will or end-of-life directiv…
I sort of feel the same? The main issue is I don't want my family to be burdened with the needs of a creature that looks like me and is continuous with me but isn't me. The suffering of that creature is a secondary concern, but also relevant. I don't think in the US or Canada there is any way to legally end your life at that point. Maybe nowhere in the world. You would need to end it while still competent. That would…
I read—within recent memory—"Consciousness and the Brain: Deciphering How the Brain Codes Our Thoughts" by Stanislas Dehaene and was very surprised by just how much consciousness research is being done and how much has been learned. It was really very interesting and I think this research has the potential to make the trade offs between suffering and possible recovery much easier to answer. (This isn't to disagree with you, just to express my surprise that, although I agree with you, researchers actually know/suspect a lot more than I thought they did.)
> Families of people with dementia land in different places on this issue, but to her, it’s beyond question that Jo is not here anymore; most everything that made him Jo has been stolen. This was very sad, but it's a good articulation of the circumstances where I would rather die than continue living. Has anyone seen a good framework to help think through scenarios like these as part of a will or end-of-life directiv…
There isn't a framework. One of the things the article talks about is that the assisted death law in Canada requires competency at the time of death. Without looking, I expect it's often similar in other places. When my mom's dementia progressed from a state where she needed a bit of help to where she needed regular attention, I had no qualms about removing myself from the equation, because I think that if she were h…
Per [0], "This Bill would amend the Criminal Code to allow MAID for eligible persons who wish to pursue a medically assisted death, whether their natural death is reasonably foreseeable or not. The proposed changes will reduce unnecessary suffering in Canada. They will also support greater autonomy and freedom of choice for eligible persons, and provide safeguards to protect those who may be vulnerable."
0. https://www.justice.gc.ca/eng/csj-sjc/pl/ad-am/index.html