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The Last Children of Down Syndrome

theatlantic.com

41–50 of 142 posts

Re: The Last Children of Down Syndrome

#41
post #28

Earlier quoted context omitted.

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Genetic disorders don't always express themselves, but can run in the family

Sure but there is a difference between a single gene disorder with a given inheritence pattern, and a trisomy which is a numerical chromosomal aberration.

Re: The Last Children of Down Syndrome

#42
post #25

I think there is a certain tension between on the one hand being against children being aborted for downs syndrome, but being OK with children with no detected abnormalities being aborted for lifestyle/career reasons.

There are many many examples of choices that it's OK to make unless it's for a bad reason - that's exactly what a protected class is about.

Such as?

Re: The Last Children of Down Syndrome

#43
post #14

> Yet a gulf seems to separate the publicly expressed attitudes and private decisions. I would be more surprised if this were not true. It's not very PC to say, but quite simply being different is not inherently a moral good. Downs Syndrome in particular is more controversial, because people who have this disorder typically are happy in their lives. I've spent a not insignificant part of my life working with teenager…

The difficulty I have with this is we are now actively choosing who gets to live and who doesn't. Yes it's at a very early stage of pregnancy but it may have a profound impact on the future of all human societies. The morality of such actions should be examined thoroughly. This is far from a cure to genetic diseases it is removal of diseased individuals from the population. Any selective removal can be dangerous. If you look at China's sex selective abortions and the social pressures that is putting on their society as one example. If you look at the Nazi eugenics campaigns to see how bad it can get. I really think people need to think long and hard before they take a side on opening the Pandora's box.

Re: The Last Children of Down Syndrome

#44
post #27

Special attention must be given to evaluating the morality of prenatal diagnostic techniques which enable the early detection of possible anomalies in the unborn child. In view of the complexity of these techniques, an accurate and systematic moral judgment is necessary. When they do not involve disproportionate risks for the child and the mother, and are meant to make possible early therapy or even to favour a seren…

It's a valid perspective, so I think the downvotes aren't in order. However I strongly disagree. Having Down syndrome isn't just being "outside the conventional parameters of of normality", it's a serious disease with life-altering implications. You will never surpass the cognitive capacity of a young child, you will have impaired vision and hearing, if you ever manage to speak at all, you will probably lose that abi…

That sounds like a pretty severe expression of it, I don't know the distribution but I know people who don't have these limits.

Re: The Last Children of Down Syndrome

#45
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

[deleted]

Re: The Last Children of Down Syndrome

#46
post #42

Earlier quoted context omitted.

There are many many examples of choices that it's OK to make unless it's for a bad reason - that's exactly what a protected class is about.

Such as?

Hiring, firing, promoting, renting, selling to, buying from....

Re: The Last Children of Down Syndrome

#47

Hmm, so the testing isn't high sensitivity? It appears that the initial couple had the foetus tested and then did not abort but found that they had a child with Down Syndrome in the end. Interesting.

I think that there are two tests. First there is a non invasive test that can be done to evaluate if the foetus is "at risk" of Downs. Then there is a sampling one that is very specific. Basically counting the chromosomes. But the catch is that the specific test carries a risk to the pregnancy - so it's not applied without cause. As well as the sensitivity issue in the article there is also a specificity issue.

My daughter was tested (non invasively) as at high risk of downs (the doctor said 50/50) we decided we didn't care... lo and behold: she doesn't have downs. I don't know enough about the area to make judgements, but I am definitely concerned that it's not a slamdunk that the doctors are getting this right.

There is a huge agenda of control around pregnancy in the UK - our consultant was so arsey about us not doing the follow-up that I had to get him changed out (it later turned out that he was struck off 2 years later for more or less murdering a woman and child, but that's another story).

Re: The Last Children of Down Syndrome

#48
post #27

Special attention must be given to evaluating the morality of prenatal diagnostic techniques which enable the early detection of possible anomalies in the unborn child. In view of the complexity of these techniques, an accurate and systematic moral judgment is necessary. When they do not involve disproportionate risks for the child and the mother, and are meant to make possible early therapy or even to favour a seren…

It's a valid perspective, so I think the downvotes aren't in order. However I strongly disagree. Having Down syndrome isn't just being "outside the conventional parameters of of normality", it's a serious disease with life-altering implications. You will never surpass the cognitive capacity of a young child, you will have impaired vision and hearing, if you ever manage to speak at all, you will probably lose that abi…

I'm afraid a lot of what you've said here is simply not true - it's either wofully outdated, or pure disinformation. Attitudes to Down's have changed a lot in recent decades, and children now get access to education and assistance, instead of being stuck in an institution to rot. As such, life outcomes are vastly different to what they used to be.

I have a daughter with Down's, so I probably know more about it that most.

> You will never surpass the cognitive capacity of a young child

This is just completely untrue.

> you will have impaired vision and hearing

There is certainly a higher incidence of vision and hearing problems in people with Down's, but it's far from guaranteed. Further more, glasses and hearing aids are a thing.

> if you ever manage to speak at all

I'm struggling to take you seriously now - this is utterly absurd.

> You will have a myriad other chronic and painful health problems

There is a higher incidence of some physical and mental illnesses in people with Down's, but again, it's far from guaranteed, and again need not have a large impact. For example, a lot of those born with Down's have a small hole in their heart, but nowadays it's fairly easily rectified. Not sure what "painful" health problems you could be referring to.

Re: The Last Children of Down Syndrome

#49

Earlier quoted context omitted.

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Why wouldn’t the Down Syndrome patients themselves have children?

It's much, much, less likely. Half of women with down syndrome are infertile. If they do get pregnant they usually end with a miscarriage and there is a 50% chance the syndrome won't be passed down.

Homosapiens are a result of chromosomal fusion, so I would approach the claim of "accruing defects" with great skepticism. Nature is still selecting as evidence by inflicting a high miscarriage & infertility rate.

https://www.ndss.org/resources/sexuality/

https://www.merckmanuals.com/home/children-s-health-issues/c...

Re: The Last Children of Down Syndrome

#50

Having a child is terrifying enough. Some folks might be up for the challenge of supporting a child with special needs for their entire life (or a good chunk of it), but I'm not afraid to say that it was a huge relief to know that my son had no known genetic abnormalities before he was born. There's nothing to be ashamed of here.

Seriously.

I've seen several families destroyed by the challenges involved in raising children with special needs, or rare diseases.

Having a nuero/genetically-typical child is a challenging full time job. Add in the prospect of it being a full triple-time job for their entire life, whether that's six years or 130 years and it's not likely to be remotely possible for the vast majority of families to sustain. Between the mandatory extra time commitments, lost pay, increased expenses, and the conversation changes. How could it not?

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