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The Last Children of Down Syndrome

theatlantic.com

31–40 of 142 posts

Re: The Last Children of Down Syndrome

#31

Earlier quoted context omitted.

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Why wouldn’t the Down Syndrome patients themselves have children?

Because most people with Down Syndrome are sterile

Re: The Last Children of Down Syndrome

#32
post #25

I think there is a certain tension between on the one hand being against children being aborted for downs syndrome, but being OK with children with no detected abnormalities being aborted for lifestyle/career reasons.

There are many many examples of choices that it's OK to make unless it's for a bad reason - that's exactly what a protected class is about.

Re: The Last Children of Down Syndrome

#33
post #14

> Yet a gulf seems to separate the publicly expressed attitudes and private decisions. I would be more surprised if this were not true. It's not very PC to say, but quite simply being different is not inherently a moral good. Downs Syndrome in particular is more controversial, because people who have this disorder typically are happy in their lives. I've spent a not insignificant part of my life working with teenager…

> It is entirely possible, without any dissonance whatsoever, to respect the autonomy and wonder of human life and the rights of people with disabilities, while also understanding that having children with debilitating permanent disabilities can be a heartbreaking exercise that drains you emotionally, mentally, and physically. Nobody reasonable wishes for their child to suffer from such a disability

I have a daughter with Down's, and I agree with what you've said here. I love my daughter and would lay down my life for her in an instant, but of course that doesn't mean I'd glad she has Down's and all the related health issues that can go with it.

> On the flip side, all of them required life-long assistance and care, never able to function completely independently, and lacking in almost all other meaningful quality of life factors.

This paragraph did surprise me though. Attitudes towards Down's have changed a lot in the past couple of decades, and at least in most of Europe, it's not uncommon for children with Down's to get a mainstream education and in adulthood for many to live (largely) independently. The level of intellectual impairment and physical and mental illnesses does vary a lot however, and undoubtedly some people will need life-long care regardless of the opportunities available to them.

Re: The Last Children of Down Syndrome

#34

Special attention must be given to evaluating the morality of prenatal diagnostic techniques which enable the early detection of possible anomalies in the unborn child. In view of the complexity of these techniques, an accurate and systematic moral judgment is necessary. When they do not involve disproportionate risks for the child and the mother, and are meant to make possible early therapy or even to favour a seren…

Ah yes, the pope that as now comes to light has protected pedophiles in the church for decades. Really the authority we should all look up to.

(1) JPII was one of the great moral thinkers of the 20th century and I highly recommend that you read some of his work. Not only a thinker, he may be the single man most responsible for the fall of the USSR.

(2) The human institution of the Church, especially where wealthy, is highly corrupt and I say that as a devout Catholic who believes Christ established the Catholic Church as His church (tldr the human & divine Church are separate things).

(3) One of the likely reasons that Benedict abdicated was that he did not want to be "taken advantage of" as he saw various Vatican higher-ups do with the aging and frail JPII.

(4) JPII sadly dismissed cases of allegations. One thing to keep in mind though is when he was growing up in Nazi and then Soviet occupied Poland he would see the occupying forces falsely accuse "resistance" figures of abuse in order to hobble their reputation.

(5) While JPII did make mistakes, it is also my belief that many Vatican figures still-living use him as a scapegoat to hide their own errors. They are doing their best to hide any and all investigation and purely say "this is the fault of people who are now dead." They do not want any oversight. For example, why did they choose to finally release the long-awaited report on Cardinal McCarrick, the most prominent US abuser, the week of the presidential election in the US? Aiming to have it buried!

Re: The Last Children of Down Syndrome

#35
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

I disagree, not knowing and then terminating because of knowing can save so much suffering for the parent and child.

Just because before there was no way to check/filter, did not guarantee that child would have a chance to reproduce.

The removal or inclusion of genetic defects usually stops if you can't reproduce and ends the family line with that descendent full stop.

Re: The Last Children of Down Syndrome

#36

Special attention must be given to evaluating the morality of prenatal diagnostic techniques which enable the early detection of possible anomalies in the unborn child. In view of the complexity of these techniques, an accurate and systematic moral judgment is necessary. When they do not involve disproportionate risks for the child and the mother, and are meant to make possible early therapy or even to favour a seren…

This may be controversial, but I don't believe an unborn fetus has any inherent value outside of whatever feelings of hope and excitement it elicits in the parents. If those feelings are instead of dread and anguish, it should be terminated for the benefit of all.

The quote seems to imply there is value in the suffering of a disabled child and its parents - suffering for its own sake - which is absolutely horrific.

Re: The Last Children of Down Syndrome

#37

Earlier quoted context omitted.

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Why wouldn’t the Down Syndrome patients themselves have children?

They generally do not, either due to defects of germ cell formation or just little sexual activity. "As of 2006, three instances of males with Down syndrome fathering children and 26 cases of females having children have been reported." https://www.fertstert.org/article/S0015-0282(06)03067-6/full...

Re: The Last Children of Down Syndrome

#38
post #24
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

"modern medicine that will result in mankind accumulating more and more genetic defects." Citation needed... A lot of autosomal recessive genetic disease is a result of humans reproducing within their in-group, making the likelihood of two carriers of the same variant having offspring with that expressed variant. BRCA1 / BRCA2 in the Ashkenazi Jewish population are a common example. Nothing about medical genetic test…

I believe you misread or misunderstood my comment.

Re: The Last Children of Down Syndrome

#39
post #24
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

"modern medicine that will result in mankind accumulating more and more genetic defects." Citation needed... A lot of autosomal recessive genetic disease is a result of humans reproducing within their in-group, making the likelihood of two carriers of the same variant having offspring with that expressed variant. BRCA1 / BRCA2 in the Ashkenazi Jewish population are a common example. Nothing about medical genetic test…

I believe the comment is saying that medical genetic testing and selective abortion is necessary because modern medicine protects people with e.g BRCA1 or cystic fibrosis.

Re: The Last Children of Down Syndrome

#40
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

I don't they are referring to DS patients. Just that Darwinian evolutionary processes only selects for traits that make an impact prior to reproductive age. If a trait isn't expressed until after you have kids (MS, Huntington's etc.) it becomes easier to pass it on. Also as more diseases become survivable due to treatments / science then it would be easier to pass those traits on as well.
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