Earlier quoted context omitted.
This requires the insurance company to be doing something illegal and for it to really cause damage all their competitors have to be doing it as well. If this ever becomes widespread, it would be quickly obvious when a large number of ostensibly healthy people are given quotes that match their genetic profile but not their medical history. I'm just not sure that is a reasonable fear.
I think insurance companies aren't above doing anything illegal, especially if it can not insure you/drive you away with a high quote if it saves them many years and millions and millions of dollars covering someone's care for Huntington's or chemo for breast cancer or some other terrible disease for which someone is genetically predisposed. The punishment for violations of the Genetic Information NonDiscrimination A…
Also you don't need to have a massive amount of HIPAA protected data to be publicly available for someone to notice. There are plenty of independent insurance brokers who serve as middlemen between consumers and the insurance companies. These people have access to all the medicals and usually end up having a decent understanding of how that translates into insurance rates. A drastic change in how insurance companies rate risk would be quickly noticed by these brokers. Right now if a broker receives a particularly bad rate from a specific insurer due to a quirk of their actuarial numbers, they will often turn around and apply to a competitor. That means any single insurer using this information wouldn't necessarily do that much damage to end consumers. It also means that any single insurer who did this would quickly get a reputation for providing rates that look unexplainable on the surface and it won't be long before people start asking why. Once again, I just don't think this is a realistic scenario.