Honestly borders to me on being de-facto undemocratic because I doubt a lot of British citizens are aware of this or that there has been any sort of meaningful consent given by patients to outsource their data to a foreign intelligence firm. When it comes to how to solve this I really think we need to fundamentally rethink data ownership both on a legal as well at a technical level. I was recently reading up on Tim B…
> in a way that puts formal limits on what they can do with it and how long they have access to it, and I as the patient have both the right and technical ability to revoke that access If that's what SOLID is, its a scam and more of his DRM promotion. There is no technical way to "revoke my access." Unless you have a memory erasing implant in my brain, if the data gets onto my screen, I can copy it and access it fore…
Imagine for example, if the US or UK governments took corporate misuse of personal health data (https://www.theverge.com/2019/6/27/18760935/google-medical-d...) as seriously as they currently takes video copyright violations by individuals....