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ADHD, a Lifelong Struggle (2018)

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Re: ADHD, a Lifelong Struggle (2018)

#341
post #220

Earlier quoted context omitted.

The big question for us is, do we consider the parts of our behavior caused by whatever we suffer from to be part of our identity or personality? I do not now. I used to -- I had a fairly major crisis of identity after my diagnosis, because a very large chunk of what I considered to be my personality turned out to be ADHD symptoms. I literally had to refind myself. But it turned out very well, because now I define my…

I've dealt with this quandry! Oh man, sure, the medication makes me a better member of society... but am I killing the old me? Am I discriminating against the old me? In taking the medication are we declaring the me I was born as a dysfunctional useless person? I actually came to pretty much the same conclusion, I prefer being the me that is clear headed - the medication is a requisite for that and I dislike that che…

> but am I killing the old me? Am I discriminating against the old me? In taking the medication are we declaring the me I was born as a dysfunctional useless person?

What are your goals? Was the "old" you getting any closer to your goals? Is the "new" you getting closer? It's OK to take the pragmatic view of your environment and situation in life. These things matter too, especially when you have to support a family.

Re: ADHD, a Lifelong Struggle (2018)

#342
post #4

Earlier quoted context omitted.

There's another weird factor. Ritalin is an upper and it's stigmatized to take an upper - either your performance, judged by coworkers, will be equivalent or below theirs and the stimulant is seen as the only thing keeping you in your job (which can get super depressing internally) - or, if you're doing well in your position, it can breed internal and external doubt as to whether your performance would just be normal…

I keep it very closely that I am on any sort of medication because of the stigma. At this point in my life I refuse to allow someone else to have an opinion of what my doctor and I decide I need to be healthy.

More people need to do this. So many people are way too open about their private life and then end up frustrated when they get negative reactions about their disorder.

Re: ADHD, a Lifelong Struggle (2018)

#343
As someone with ADHD, I don't think articles like this one do any of us justice. The tone of this whole article is piteous and negative.

I truly wish more people would see ADHD as a neutral brain difference than a ~disease~. There are just as many positives to having ADHD as there are negatives. It's not like a broken bone which is a damage that will heal, it's a different type of brain from the get-go from which we see and live in the world differently.

The key is not trying to "cure" this difference, the key is using its strengths to your advantage while working on (or working around) the weaknesses.

The long term solution is, then, not eradicating ADHD's existence, but building a society in which individuals with ADHD can prosper in their unique ways.

Re: ADHD, a Lifelong Struggle (2018)

#344
post #220

Earlier quoted context omitted.

The big question for us is, do we consider the parts of our behavior caused by whatever we suffer from to be part of our identity or personality? I do not now. I used to -- I had a fairly major crisis of identity after my diagnosis, because a very large chunk of what I considered to be my personality turned out to be ADHD symptoms. I literally had to refind myself. But it turned out very well, because now I define my…

I've dealt with this quandry! Oh man, sure, the medication makes me a better member of society... but am I killing the old me? Am I discriminating against the old me? In taking the medication are we declaring the me I was born as a dysfunctional useless person? I actually came to pretty much the same conclusion, I prefer being the me that is clear headed - the medication is a requisite for that and I dislike that che…

Kanye West has talked about this. He was recently diagnosed as bipolar and has been working with a team of doctors/psychiatrists. The medication helps but he loses his creative side because it dulls him.

It's quite the dilemma really.

Re: ADHD, a Lifelong Struggle (2018)

#345

Earlier quoted context omitted.

Stimulants have the adverse effect of harming the mitochondria/metabolism. Most conditions improve when the metabolism is normalized. B-vitamins are pro-metabolic. Sometimes doctors do good work. My girlfriend's doctors eventually figured out that she is a poor methylator, and can't convert folic acid into folate (Vitamin B-9). She therefore absolutely requires a dietary source of Folate, instead of the folic acid th…

Do you have any insight into how, exactly, those doctors figured that out? What kind of specialists?

Deplin [0] is a patented prescription version of Vitamin B-9 aka L-Methylfolate. It's approved as an add-on treatment for when so-called antidepressants don't help with a person's symptoms. There's a genetic test that tells if a person is a poor methylator who especially needs Folate instead of folic acid.

I don't know how they decided to run the genetic test, I just heard that they did and that folate really helps her. She eventually switched to non-prescription folate (from the supplement aisle), probably mostly because of cost, or maybe some other reason.

Folate is cheap enough to experiment with: if you notice something dramatic, keep taking it.

[0] https://deplin.com/what-is-deplin

Re: ADHD, a Lifelong Struggle (2018)

#346
I liked this article, but for anyone who suspects they might have ADHD and is looking for a more concrete plan of action:

1. Take the ADHD Self-Report Scale screening survey. It's been extensively validated and it's only 6 questions long: https://www.hcp.med.harvard.edu/ncs/ftpdir/adhd/6Q_ASRS_Engl...

2. If you get a positive result, go see a psychiatrist (not a psychologist; they can't prescribe medication). A positive result isn't a diagnosis, but it's the closest you're going to get without a professional.

3. If you have ADHD, your psychiatrist will almost certainly start you on a stimulant like methylphenidate (Ritalin) or amphetamines (Adderall, Dexedrine, Vyvanse). Take the medication; it is the most effective treatment for ADHD by a wide margin.

4. Be ready to adjust. The right choice and dosage of medication varies so much between people that the state of the art is "try it and if it doesn't work try something else". Your psychiatrist should work with you to zero in on the right medication and dosage. This takes a while, so be patient and take notes so you can tell what's changed over time.

If you're looking for more comprehensive information, I find the practice guidelines aimed at medical professionals a good mix of practical and rigorous:

[AU] https://www.racp.edu.au/docs/default-source/advocacy-library...

[CA] https://www.caddra.ca/wp-content/uploads/CADDRA-Guidelines-4...

[UK] https://www.nice.org.uk/guidance/ng87/resources/attention-de...

[US (child-specific)] https://pediatrics.aappublications.org/content/pediatrics/14...

Re: ADHD, a Lifelong Struggle (2018)

#347
post #60
post #9

I was diagnosed in 2019 after a long series of conversations with a therapist following a work disaster that nearly cost me my job. Getting diagnosed was like finding the missing piece of the puzzle regarding my life. My schooling history suddenly made sense, the poor financial decisions, etc. everything became clear. The biggest thing I realized is how tightening feedback loops is the key to my productivity, I gravi…

How do you use it right? I was on stimulants as a kid and they worked but made me feel emotionally empty and suppressed my appetite and energy. I’m 28 now and I’ve started taking it again to help with work. The appetite suppression is gone but the emotional apathy remains. If you have suggestions or experiments to make the best use of these meds I’d love to hear them. I started with the lowest possible dose. Also, yo…

Your dosage might be too high if you're experiencing emotionally empty. I recommend looking into Vyvanse. It's been a game changer for me compared to Adderall.

Re: ADHD, a Lifelong Struggle (2018)

#348

As someone with ADHD, I don't think articles like this one do any of us justice. The tone of this whole article is piteous and negative. I truly wish more people would see ADHD as a neutral brain difference than a ~disease~. There are just as many positives to having ADHD as there are negatives. It's not like a broken bone which is a damage that will heal, it's a different type of brain from the get-go from which we…

"The long term solution is, then, not eradicating ADHD's existence, but building a society in which individuals with ADHD can prosper in their unique ways." - Spot on the mark. Not that ADHD can be "eradicated" but having a society that makes it easier for people with ADHD to thrive is important.

A lot of our institutions (education, employment etc) are a good fit for the "neurotypical" among us, which makes coping with ADHD difficult, even though it does go hand-in-hand with a lot of positive traits (empathy, creativity, "hyperfocus" etc).

We can use the associated strengths to our advantage as much as we like, but for me, that means working staggered hours (my focus/drive follows a cycle that means I could be a 5am-er for a few days, then back to being a night owl when it comes to work output), and that just isn't possible with a day job, unless I put up with being half as productive. When I was consulting and working mainly from home, it was great as I could "surf the wave" of this cycle, so to speak, but with a day job, and the expectation that I can work regular hours alongside other people, it's no longer an option.

That example is specific to me, but I'm sure there are loads of other ADHD traits that make life difficult simply because they don't fit the mold of "regular people" - my kids are a good example, especially my 11-year-old... he'll annihilate a book in a single sitting and he's an incredibly bright kid, but he's a straight-C student.

Re: ADHD, a Lifelong Struggle (2018)

#349
Got ADHD diagnosed little over a year ago, at age 30 after dropping college twice, failing tons of classes and having been unable to manage anything.

My parents absolutely loathe people with mental illnesses and it took me a decade after moving out to get things together enough to visit a doctor for my long lasting depression, which eventually lead me down the path to a diagnosis of ADHD. They required parental interviews which made the doctor rule out ADHD at first, but every single thing my mother reported was a lie, and after contacting estranged grandparents who met me a lot as a kid it was diagnosed.

I landed a job as a COBOL developer and spend all free time trying to learn more technologies, but I hate myself for not finishing a degree, which is the only one thing I've always wanted to do, and letting so many people down and never making any friends during my studies because I was always too far behind to dare work together with them.

So now I'm in debt from a loan I took years ago to not end up homeless, no degree and crappy work experience from jobs requiring no qualifications, working on legacy tech on a dying project without being able to afford relocating and nothing to show for if applying to more modern tech stack jobs.

Now I feel great, started reading and learning things, but I just resent myself from before I got on this medicine that makes me work.

Re: ADHD, a Lifelong Struggle (2018)

#350

I offer you my genuine personal point of view. ADHD people are incredibly creative! They are those whose brain naturally refuses to conform to "what is not fun", in the words of the author. This feeling is right behind Artistry itself! Your mind is trying to say something very important. I advise you to invest in finding what your flow is. For a moment think the way your brain works is a gift of the universe and thin…

You probably mean well, so as a usual lurker, I'll make an account to offer my genuine point of view in return. I'm an artist and a programmer, the kind of 'creative' you are talking about, and see myself mirrored almost exactly in the original post. There are many things I care so much about I 'will likely always be motivated by them'. I am in love with all of these. The problem is that same motivation likes to vani…

I concur it is hard to keep continuity while battling waves of inconsistent motivation. While we hardly have the same experience with the issue, I would like to share a few additional models with you. They are not any close to a solution, but might be helpful thinking about:

I found Brain Hacking a helpful tool.

What incentives can you setup to use your own "instincts" in your favor?

"Long tail" projects are a very good call. If the required endeavor for success is big and challenging, you are likely to get drawn back to it out proud, "just to prove yourself". It might help assuming it is your responsibility to get it done. The waves will keep coming regardless, but I found that even in the dark moments, you can still advance, if just a little, and sometimes you will be surprised by finding out a time of complete aversion was exactly what you needed to step back up. I can see you are self-conscious of those moments so maybe an "OK, I am depressed. What is the least I can do while in this state of mind?" is a good exercise.

I got involved into a project that might take many years to finish and I became obsessed with it in a way the great majority of my thoughts, regardless of how messy, fall into its reign. Many might tell you to shoot for Balance instead. That sounds nice, but as an ADHD myself, I am not afraid of saying singleminded dedication to a cause is not as bad as people might tell you.

One way I found to cope with it is to apply Gamification in my routine. Every finished mission is one step less towards the vision. Another strategy I use is to go the opposite way of the norm by removing all source of information instead of feeding on them. I really mean no books, no articles, no podcasts, no HN, no YouTube, Twitter, Instagram or Facebook, etc; you name it, anything that would likely bring you anxiety. In this state of mind your mission will be canalizing your thoughts into something you find useful. Repeat.

To finish, for what it comes to career as an Engineer/Artist, I would say that following a passion, even if inconsistently, will likely be a better lesson, both technically and creatively, than any job you could find in the system. I once got two very good job offers by basically saying "I am too adventurous. I won't ever fit your archaic corporative structure. Are you sure you want me in?". That said, nothing really beats the thrill of being a maker. Have you ever lurked into Systems Design?

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