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Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

theguardian.com

51–60 of 138 posts

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#51
I cannot possibly fathom the terrible experience of cancer patients going through chemo. My great hope though is that a bunch of these will be rendered treatable with the immunotherapy solutions out there and being developed right now, which though expensive today for most people today, might be bought down by the demand supply mechanics of economics....

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#52
I've had multiple relatives have cancer, some multiple times. Two relatives had cancer twice. Another, five times. Assorted others had cancer at least once.

I took care of a relative following a mastectomy. Making sure she got adequately hydrated brought her fever down. I got two hours sleep her first night back from the hospital because I devotedly pushed fluids at every opportunity.

She coughed up phlegm after I made her get enough food and drink into her to drop her temperature a degree. She said I probably prevented post-operative pneumonia.

My late father had colon cancer in his late sixties. He lost a third of his body weight before it was diagnosed.

My parents were told to get their affairs in order. He wasn't supposed to live.

His surgery that was supposed to be two hours lasted six. The cancer was much more extensive than they expected, but it hadn't invaded other organs. They peeled it off the outside of them instead of cutting out parts of them.

He had a thirteen inch scar from sternum to pubic bone with a dent going around his belly button. My mother treated the scar with German Penaten cream and treated his skin with Penaten cream.

Her mother died from uterine cancer when my mother was in her teens. My mother was convinced that radiation treatments killed her mother. She always had some excuse why my dad couldn't make one of his radiation treatments every week.

He lived about another two decades.

The cancer clinic at Martin Army Hospital was impressed with the condition of dad's scar and asked what they were doing. My mother explained it was the Penaten cream. They added it to their regime.

After my father defied his sentence of death, the civilian cancer doctor that treated him interviewed my mother on tape for two hours and changed the practices of his clinic based on what she said. The doctor knew my mother is the person who kept my dad alive.

Their big thing was hydration. They calculated how much fluids he needed and they made sure he got enough every day. Caffeinated drinks and alcohol did not count.

When he was too sick to eat, she made him homemade milkshakes or slushies once or sometimes twice a day in place of meals. On not so bad days, I think she used milk, good quality ice cream and fresh fruit. On super bad days, she used ice, frozen fruit and fruit juice.

He was gaining so much weight during a time when most cancer patients are continuing to lose weight that his doctor yelled at her to slow it down. He had a long-standing heart condition and her doctor was afraid she was kill him by putting too much strain on his heart with the rapid weight gain while he was still undergoing treatment.

My mother wanted to be a doctor in her youth. She delivered babies in her teens. She never got to be a doctor, but she was always patching someone up as long as I can remember.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#53
post #50

Earlier quoted context omitted.

You've explained clearly that you would be a more grateful, appreciative suffering aggressive cancer patient than the author, whose choices doomed her to suffer alone.

HN comment section serves to allow us to debate and discuss the linked articles. The author explicitly chose to make her editorial not only about her situation but a larger critique of society, throwing bombs at everything. I’m not going to give her a pass because she has cancer as I vehemently disagree with her.

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Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#54
post #18

Chemotherapy is scary. It seems so counterintuitive to choose to inflict this kind of damage to oneself, in the hopes that it will prevent an even worse outcome. Part of it is that there is this nagging feeling that it might not even be the right approach, given the legion of side effects of all kinds. Even oncologists get vague and evasive when this is questioned. In the end we can only rely on generalized statistic…

> It seems so counterintuitive to choose to inflict this kind of damage to oneself, in the hopes that it will prevent an even worse outcome. Especially since the "worse outcome" -- your own non-existence -- is the one thing in the Universe you are guaranteed to never experience (though your loved ones can experience your non-existence, and that can be a good reason to try to avoid it).

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Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#55

I knew two people who both got cancer about the same time. One said no to chemo. The other said yes to chemo. The differences in quality of life until death were dramatic . Neither had a longer life than was expected had they not taken the chemo, but the one who did lost hair, physical dexterity, then life. Suffered greatly. The other one suffered much less, but still died. The doctors all said take the drugs. You do…

Statistically speaking, the doctors were probably right. The guy taking the chemo effectively traded a better chance of survival for worse short-term quality of life. (And lost the bet.) But yes, it’s good to know the chances, so that you can choose to die in relative peace as opposed to making the rest of your life very difficult for a marginal increase in your survival chance.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#56
post #21
post #18

Earlier quoted context omitted.

> It seems so counterintuitive to choose to inflict this kind of damage to oneself, in the hopes that it will prevent an even worse outcome. Especially since the "worse outcome" -- your own non-existence -- is the one thing in the Universe you are guaranteed to never experience (though your loved ones can experience your non-existence, and that can be a good reason to try to avoid it).

> your own non-existence - Why is it so hard to accept this? Why is it so scary?

It’s the same scary as the state before you were born, ie. not at all.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#57
post #9
post #7

Traditional chemotherapy is toxic to all cells. Cancer cells grow rapidly (part of what makes them dangerous). So the toxic effect gets the cancer cells first, since cells that are growing take up the most chemotherapy. But other cells grow rapidly too, like hair and intestinal cells, which is why cancer patients lose their hair and have terrible nausea/diarrhea. All (almost all?) cells take up some chemo. So, you ar…

That's right. Chemotherapy is, sadly, a very primitive treatment. I regret we have spent so much money on cancer genomics, when some outsiders where trying to push for immunotherapies. Thankfully, that changed 3 or 4 years ago.

Seeing the effect of chemotherapy in a pet though was mind blowing. Visible tumors disappeared over the course of weeks. Sadly she relapsed a few months later, but it's a very powerful class of drugs.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#58
post #41

Earlier quoted context omitted.

Serious question: have you tried marijuana? I always figured if I ever ended up in this kind of situation that would be the first thing I would try to help me eat.

Yep. We just got her a medical card. She’s pretty old school, thinks its all bullshit, tried it once and said it gave her a headache and I haven’t been able to get her to try it again. :/

My wife suffers nausea. It is pretty extreme.

There are different forms of marijuana. We tried a few. It took a few attempts to get one that worked.

If she is able, try the different forms. Edible, topical, etc...

One that worked early on was simple. Heat it for a half hour at 235 degrees F. This converts the THC to its active form.

That raw plant material, ground fine and put into empty capsules worked and was easy to consume.

We had to titrate and get it to a modest, but effective dose.

She is vaporizing now. But that edible capsule got her going. She seemed to need to feel it work to overcome displeasure associated with consuming it.

The mental effects are a PITA, but I saw her ability to function improve rapidly.

Good luck with her. I feel your struggle.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#59
post #50

Earlier quoted context omitted.

You've explained clearly that you would be a more grateful, appreciative suffering aggressive cancer patient than the author, whose choices doomed her to suffer alone.

HN comment section serves to allow us to debate and discuss the linked articles. The author explicitly chose to make her editorial not only about her situation but a larger critique of society, throwing bombs at everything. I’m not going to give her a pass because she has cancer as I vehemently disagree with her.

[deleted]

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#60
post #44
post #33

Earlier quoted context omitted.

The details of what it’s like to live with that disease are insightful. I have a more raw understanding of what that is like now. But intertwined with the article is a critique of every single bit of the system, and larger society, that is fantastically successful at keeping an ever increasing number of such patients alive. The author critiques the economic system, the hospitals, the doctors, the genders of the care…

Did you read this part? > In the capitalist medical universe in which all bodies must orbit around profit at all times, even a double mastectomy is considered an outpatient procedure. After my mastectomy, the eviction from the recovery ward came aggressively and early. The nurse woke me up from anaesthesia and attempted to incorrectly fill out all the questions on the exit questionnaire for me while I failed in an at…

Unless you live in a world where money grows on trees, that happens in public systems too.

There are finite amount of resources and keeping a patient overnight, when it could be out-patient, means another patient, who needs that bed more, has to go without.

It’s not due to profit. And actually, the hospital would likely make more profit if they could keep you overnight.

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