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After man says dog dewormer cured his cancer, researchers look into treatment

tulsaworld.com

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Re: After man says dog dewormer cured his cancer, researchers look into treatment

#51
post #11

This story is very poorly organized. The structure is especially bad for scientific subjects because crucial details can be obfuscated. Take this one for example, which appears well into the article: > Part of Tippens’ treatment regimen was CBD. Nowhere does the article describe in one place exactly what the treatment regimen was. Was it just CBD + fenbendazole or other components? When did the CBD begin? Even the na…

> This story is very poorly organized.

It wasn’t as awkward as that opening photo.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#52
post #13

Earlier quoted context omitted.

This is one of the many viable options US companies have for dealing with EU traffic. GDPR compliance can be extremely expensive to implement, especially for complex software comprised of thousands of microservices that handle customer data. And imagine working in an industry where data retention is legally mandated by other jurisdictions... I'm not saying GDPR is bad (I'm all in favor!), but the costs can be quite l…

I think all of Europe's wacky internet laws are bad. Literally nobody except maybe Richard Stallman was pining for websites to need cookie popups and need affirmative consent to log their IP address.

There’s no part of the GDPR that requires the current mess or where the current mess should help anyone, that is if I’m not totally wrong.

In fact it is so far from the letter and spirit of the law that I find it odd that any company with a significant internet presence, that should have access to competent lawyers can misinterpret it so badly.

Then again, European companies burn themselves in USA all the time on basic stuff too; a UX designer I worked with described how they lost a lawsuit against a bloke after he had broken into a site, opened the machine, jammed something into the door sensor and started operating the machine, all while being influenced by drugs. The first part of the story ended when he got his hand jammed in some kind of shredder unit.

The second part of that story ends when their American legal team finds out there is no sticker that tells people not to put their hand into the machine and tells them they’ll likely lose in court and convinces them to settle.

After that nobody forgot about the stickers.

But to most Europeans I think it sounds outrageously stupid that you can break into a site, operate a machine after deliberately jamming the safety mechanism and still get a settlement because there was no sticker to tell him not to put his hand in the shredder.

So, for Americans, here is how I understand the GDPR law:

Except in special circumstances (criminal justice etc) you are not allowed to store customer data except as needed to run the actual service for your customers (and that doesn’t include monetizing by ads or spyware).

You can ask a customer for permission to store data, but the default is no, and - AFAIK - you are not allowed to penalize someone for not accepting.

The only grey area I see is where you default to not storing info and inform the customer that they can opt in to more personalized and possibly more meaningful ads.

See? Nothing there about popups. They should default to off, so meaningless in the first place, something no one seems to get. Or they get it but are deliberately doing it anyway, pretending not to get it like last time.

If someone else has a better understanding of GDPR, feel free to roast my understanding, - or add details to it. [I know there is a lot more.)

Also, FWIW, here is what I think is a good example of data collection done correctly under GDPR, the customer has a clear choice, the benefits are obviously linked to the data collected and the default is no: https://erik.itland.no/observation-gdpr-and-privacy-done-rig...

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#53
post #44

Earlier quoted context omitted.

> Does this kind of action actually absolve them of GDPR responsibilities? All the rest of our laws travel with jurisdictions, not with individuals' citizenship status. The GDPR doesn't really have any standing to impose obligations on companies that refuse to do business inside EU jurisdictions. We won't know until it's tested in court, but demonstrating a best effort to keep your product out of EU jurisdiction seem…

But if a EU citizen has an account already they are bound to the GDPR. Blocking this account only makes it worse (legally).

The GDPR might assert that they're bound, but an Oklahoma-based business with no business presence or assets inside the EU isn't bound by EU law. This is pretty much the foundation of national sovereignty.

How would an EU enforcer actually enforce the GDPR in this case? Unless there's been a violation of a trade agreement, any attempt to apply EU law to a US-based company operating on US soil is going to be utterly impotent.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#54
Probably not a popular position here on HN but I'm becoming more and more intrigued by the power of a placebo. Furthermore, it's possible we are often undermining a placebo's power but telling ourselves it's science and only science that can save us - even tho', trust is, the placebo effect is very real.

https://www.theatlantic.com/magazine/archive/2019/05/melanie...

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#55
I once saw a case on a conspiracy forum of a guy who claimed that taking worming tablets had cured his cancer. It wasn't a clear case to me, as he'd also been taking traditional chemo. His doctors apparently told him that the worm tablets he was taking were harmless and he could go on taking them, but the doctor didn't think it had any effect on his cancer.

The real issue I have with this sort of reporting is that the plural of anecdote is not data. If 1% of people with a given kind of cancer will survive, and some percentage of them take alternative medicines, then a smaller, but nonzero, percentage of people will believe they were cured by taking just about anything.

Controlled, double blind, randomized trials are the only way we can know whether these anecdotes have anything to them.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#56

Probably not a popular position here on HN but I'm becoming more and more intrigued by the power of a placebo. Furthermore, it's possible we are often undermining a placebo's power but telling ourselves it's science and only science that can save us - even tho', trust is, the placebo effect is very real. https://www.theatlantic.com/magazine/archive/2019/05/melanie...

I'm not sure why it wouldn't be a popular position. There are countless scientific studies demonstrating the efficacy of placebo. The human mind is a powerful thing.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#57
post #53

Earlier quoted context omitted.

But if a EU citizen has an account already they are bound to the GDPR. Blocking this account only makes it worse (legally).

The GDPR might assert that they're bound, but an Oklahoma-based business with no business presence or assets inside the EU isn't bound by EU law. This is pretty much the foundation of national sovereignty. How would an EU enforcer actually enforce the GDPR in this case? Unless there's been a violation of a trade agreement, any attempt to apply EU law to a US-based company operating on US soil is going to be utterly i…

No any company that deals with people in the EU (even non-EU citizens physically in the EU) needs to obey GDPR - simple site explaining it simply here: https://www.compliancejunction.com/countries-subject-gdpr-pr...

Geo location for IPs is a very inexact science so they almost certainly are processing EU citizens' data. Hell I can access it with a VPN while sat in the EU so yep, they are liable if they store anything about me (apparently IP addresses are considered PII in terms of GDPR too)

No idea how they'd enforce it - various murky-references to "international law" are floating around. I guess these sort of things are covered in trade treaties etc like with patents and copyright etc.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#58
post #33

[Speculation] This is interesting to me because Crohn’s Disease (and Inflammatory Bowel Disease in general) is known to respond to certain antibiotics such as Metronidazole and Ciprofloxacin [1]. Maybe a analogous action is at play here. [1] https://www.hopkinsmedicine.org/inflammatory_bowel_disease_c...

Not sure if I understood correctly. Metronidazol helps to keep inflammation at bay ? Im asking because I was taking this antibiotic and Ive seen huge change in my skin inflammation, joint pains and bowel pains.

Is Psoriasis a bowel disease? Successful treatment with bile acids and bioflavonoids suggests it is.

https://sci-hub.tw/10.1016/j.clindermatol.2018.03.011

Fwiw: The article actually suggests that Psoriasis, (and IMHO, by extension, potentially autoimmune disease in general), are associated with liver dysfunction, driven by bowel disease.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#59
post #55

I once saw a case on a conspiracy forum of a guy who claimed that taking worming tablets had cured his cancer. It wasn't a clear case to me, as he'd also been taking traditional chemo. His doctors apparently told him that the worm tablets he was taking were harmless and he could go on taking them, but the doctor didn't think it had any effect on his cancer. The real issue I have with this sort of reporting is that th…

Agree with the studies, but the singular of data is not "cure" or "safe". A substance that is shown to be beneficial in general may not be beneficial for you, and may even be harmful for you.

I have a family member who cannot take various common medicines, not because of the active ingredient (which they need) but because of the inactive ones which are generally considered safe.

Conversely, it is possible for a substance which is not shown to have a general effect in a study to have an effect specifically for a person or small group of people. Discounting this and hiding behind "evidence based medicine" is not helpful.

Re: After man says dog dewormer cured his cancer, researchers look into treatment

#60
post #2

451: Unavailable due to legal reasons We recognize you are attempting to access this website from a country belonging to the European Economic Area (EEA) including the EU which enforces the General Data Protection Regulation (GDPR) and therefore access cannot be granted at this time. For any issues, contact web@tulsaworld.com or call 918-581-8300.

As I was trying to find a non gdpr resistant news article I happened to come across this https://www.thesun.co.uk/news/9344028/cocaine-rot-skin-genit... "COKE ROT Cocaine can ROT your skin and genitals – as drug is cut with dangerous cattle de-wormer, experts warn" the interesting thing is in the article it says cocaine can be cut with Levamisole, which: was used to treat arthritis and bowel cancer in the past, but i…

I wonder if cocaine users have lower incidences of certain kinds of cancers? Would be an interesting thing to look for in large epidemiological studies.
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