How on earth is this legal in the USA?
The default in the U.S. is that actions are legal unless they're made illegal by some law. There's no law against this, therefore it's legal.
DNA of every baby born in California is stored. Who has access to it?
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Re: DNA of every baby born in California is stored. Who has access to it?
#12This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...
Re: DNA of every baby born in California is stored. Who has access to it?
#13My flippant answer, before reading the article: Basically everyone, probably through a web site where the requestor simply uploads a document (any document) then checks an electronic checkmark next to the words "I pinky swear that I will only use this for good and pure and light-giving purposes."
> Who has access to it?
After reading the article: Yep, law enforcement and "third party researchers" (in quotes because, as the article points out, that term is supposed to mean scientists operating under a code of ethics but, yeah).
I dunno, folks, it sure seems like nobody really gives a damn about private information unless it's being used to link them to a scandal and then they really care.
Re: DNA of every baby born in California is stored. Who has access to it?
#14Earlier quoted context omitted.
The default in the U.S. is that actions are legal unless they're made illegal by some law. There's no law against this, therefore it's legal.
We need a GPDR for biometrics.
It seems the best the U.S. political system can come up with right now is "GDPR for X" where X represents only a few specific industries, because of strong entrenched special interests, lobbying and legalized bribery, which means strong gridlock and disagreement for a more "universal" law. Because the more industries the law would affect, the more billion-dollar corporations would fight against it with TV ads, lobbying and vote buying (sorry, I mean "campaign donations").
GDPR generally applies to all personal data of a citizen. The best I've seen from the U.S. government so far is the Consent Act, which applies only to online services only. It doesn't apply to ISPs, network providers, medical data, or a ton of other things it should apply to.
The more people realize that this "single issue" of taking money out of politics and drastically reducing or eliminating a corporations' influence on political decisions affects every other issue they care about, the better.
Re: DNA of every baby born in California is stored. Who has access to it?
#15This almost feels like a scene taken right out of the movie Gattica.
Re: DNA of every baby born in California is stored. Who has access to it?
#16This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...
Re: DNA of every baby born in California is stored. Who has access to it?
#17How on earth is this legal in the USA?
https://en.wikipedia.org/wiki/United_Kingdom_National_DNA_Da...
Re: DNA of every baby born in California is stored. Who has access to it?
#18This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...
Why are people downvoting this comment? Even if you think the current system is wrong, you should be thinking of how to fix it without losing the benefit outlined by this commenter.
Re: DNA of every baby born in California is stored. Who has access to it?
#19This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...
The archival is Machiavellian.
Re: DNA of every baby born in California is stored. Who has access to it?
#20This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...
Why are people downvoting this comment? Even if you think the current system is wrong, you should be thinking of how to fix it without losing the benefit outlined by this commenter.