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DNA of every baby born in California is stored. Who has access to it?

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Re: DNA of every baby born in California is stored. Who has access to it?

#11
post #8
post #2

How on earth is this legal in the USA?

The default in the U.S. is that actions are legal unless they're made illegal by some law. There's no law against this, therefore it's legal.

More specifically, in this case, state governments have general police powers, which means that anything not specifically prohibited to them by the federal Constitution (including by a federal law that is a valid exercise of federal power under the Constitution because of the Supremacy Clause) is within their power.

Re: DNA of every baby born in California is stored. Who has access to it?

#12

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

I hope that her chemo and radiation regimes were light. I worry very much that mine have shortened my life expectancies.

Re: DNA of every baby born in California is stored. Who has access to it?

#13
> Who has access to it?

My flippant answer, before reading the article: Basically everyone, probably through a web site where the requestor simply uploads a document (any document) then checks an electronic checkmark next to the words "I pinky swear that I will only use this for good and pure and light-giving purposes."

> Who has access to it?

After reading the article: Yep, law enforcement and "third party researchers" (in quotes because, as the article points out, that term is supposed to mean scientists operating under a code of ethics but, yeah).

I dunno, folks, it sure seems like nobody really gives a damn about private information unless it's being used to link them to a scandal and then they really care.

Re: DNA of every baby born in California is stored. Who has access to it?

#14
post #9
post #8

Earlier quoted context omitted.

The default in the U.S. is that actions are legal unless they're made illegal by some law. There's no law against this, therefore it's legal.

We need a GPDR for biometrics.

That's the problem right there.

It seems the best the U.S. political system can come up with right now is "GDPR for X" where X represents only a few specific industries, because of strong entrenched special interests, lobbying and legalized bribery, which means strong gridlock and disagreement for a more "universal" law. Because the more industries the law would affect, the more billion-dollar corporations would fight against it with TV ads, lobbying and vote buying (sorry, I mean "campaign donations").

GDPR generally applies to all personal data of a citizen. The best I've seen from the U.S. government so far is the Consent Act, which applies only to online services only. It doesn't apply to ISPs, network providers, medical data, or a ton of other things it should apply to.

The more people realize that this "single issue" of taking money out of politics and drastically reducing or eliminating a corporations' influence on political decisions affects every other issue they care about, the better.

Re: DNA of every baby born in California is stored. Who has access to it?

#15
> Nearly every baby born in the United States gets a heel prick shortly after birth. Their newborn blood fills six spots on a special filter paper card. It is used to test baby for dozens of congenital disorders that, if treated early enough, could prevent severe disabilities and even death.

This almost feels like a scene taken right out of the movie Gattica.

Re: DNA of every baby born in California is stored. Who has access to it?

#16

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

Why are people downvoting this comment? Even if you think the current system is wrong, you should be thinking of how to fix it without losing the benefit outlined by this commenter.

Re: DNA of every baby born in California is stored. Who has access to it?

#18

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

Why are people downvoting this comment? Even if you think the current system is wrong, you should be thinking of how to fix it without losing the benefit outlined by this commenter.

Because you can determine this information and then not store the DNA.

Re: DNA of every baby born in California is stored. Who has access to it?

#19

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

The testing is amazing.

The archival is Machiavellian.

Re: DNA of every baby born in California is stored. Who has access to it?

#20

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

Why are people downvoting this comment? Even if you think the current system is wrong, you should be thinking of how to fix it without losing the benefit outlined by this commenter.

You can run the available tests and then discard the DNA
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