I'm curious why people find the diagnosis to be so important. I can't at all imagine identifying with the sentiment, "Nothing is wrong with me, I’m just autistic," as one of the women in the article says. When I go to a party with my girlfriend, I want to come off well, if only for her sake, and I would like to have some interesting conversations, and maybe (very optimistically) to meet someone I can share an interes…
I agree with you. I think the diagnosis is a double edged sword. It gives people a crutch. Like you, I'm "on the spectrum" but I don't want to know what the technical diagnosis is. It would just let me use my "condition" as an excuse for things (or at least that's how I would use it, and how most other's I've had the occasion to observe do use it). I find this is the case with most mental health diagnoses. They can b…
It all made sense when we found out we were autistic
121–130 of 207 posts
Re: It all made sense when we found out we were autistic
#122Since the causes of autism are not really understood, it's defined and diagnosed based on behavior, or symptoms, if you will. Thus, is there an actual qualitative difference between "shy, socially anxious/clumsy" and autistic, except for the extent of those properties?
It's very easy to diagnose someone with extreme autism, just as it's easy to diagnose someone with extreme dwarfism. It's blurrier when you get to mild autism (and mild shortness) where there is less visible impairment, less obvious behavior, and often visible benefits.
I'm reading a book at the moment, in german, "Ich liebe einen Asperger" and even proper autism was barely recognized by people working with kids 15yrs ago: "... but it couldn't be Autism!?" is one quote from an educator about the family's most autistic child. Things probably haven't changed that much.
One other thing, even though it is exhausting, kids on the spectrum try to mimic others, act normal etc just to get a good feedback. In the book it took months until the psychologist got through the kid's defenses and was certain about the diagnosis. It's sad really, so much frustration the family describe that could have been prevented.
Re: It all made sense when we found out we were autistic
#123Earlier quoted context omitted.
I'm pretty sure I was on the spectrum until my mid 20s. All social interaction was very painful - I couldn't look anyone in the eye, and didn't say anything to anyone. I made weird sounds and movements that others noticed, got lost in daydreams without realizing it, bright light sensitivity, obsessed over meaningless objects and toys, etc. Then I forced myself to travel, take lots of hallucinogens and empathogens, an…
One of the weird things about the DSM-IV definition of Asperger's/Autism was that it was defined by certain criteria applying during childhood. The literature that I was given during my diagnosis was very clear that even if all the symptoms disappeared in adulthood, you still "had it". (And of course, the doctors were all trying to give the parents hope, so, "oh, yes, it's very likely your child will have a normal ad…
It felt like most people have a social automatic pilot while I was flying entirely manually. Once I developed some models and internalised them it was as if I'd built my own approximation. It still takes a little effort to keep things level, but much less than it used to.
Re: It all made sense when we found out we were autistic
#124I'm curious why people find the diagnosis to be so important. I can't at all imagine identifying with the sentiment, "Nothing is wrong with me, I’m just autistic," as one of the women in the article says. When I go to a party with my girlfriend, I want to come off well, if only for her sake, and I would like to have some interesting conversations, and maybe (very optimistically) to meet someone I can share an interes…
Before my diagnosis I remember breaking down in my school's counselors office begging her to teach me how to make a friend. It was a lottery based "art school" because my 5th grade teacher thought I would be a good fit there because that's where other "weird" kids were. I hated art, but I went anyway on the advice of my mother. By breaking down, of course, I mean crying hysterically just trying to reach someone to tell me how I could not be doomed to a life of bullying and loneliness. She told me "The best way to make friends is to be a friend." That was her best advice. It was completely useless to me. I thought "What does it mean to be a friend?".
During that time I saw countless psycologists, and was diagnosed with ADHD (wrongly), major depressive disorder (wrongly), and bi-polar disorder (wrongly). I was doped up on so many experimental medications that I have completely forgotten my life from the ages of 12-17. At some point my mother gave up on me and put me in foster care for 2 years. I spent 9 months of that time in jail for doing some pretty scary things. Namely burning down a 3000 gallon trash can (which I did for attention), and my attempt to commit suicide by jumping in front of a semi, which failed and got the police called on me. I tried to commit suicide by cop, which also failed.
I ended up in a couple psych wards. Once at an awful, horrible place called Fox Run, a few others in between, and then finally at a place called Parmadale in Cleveland, Ohio. At Fox Run, the doctor's decided to do an experiment and take me off all the drugs I was on so that I would "reset" and so he could properly diagnose me. He didn't get the chance but he told my social workers that he was concerned that I might be autistic and misdiagnosed. So when I arrived at Parmadale they disregarded my entire history, and evaluated me as I presented there. I was diagnosed with Autism 2 months in.
Later my brain would be used in a series of studies at the OSU Medical Center on diagnosis through brain scans. I recently found out these scans are in several published papers on the subject.
Anyway, Parmadale focused on rebuilding my self-esteem and focused on teaching me social skills, practices and techniques to overcome my disability. I haven't taken any medication since I left that facility at 16 years old. I went onto graduate high school (with honors), and I have a degree in Video Game Design and Development from Fullsail University in Florida. I've worked in software and startups for years, doing everything from interactive media, to web development, to machine learning, to whatever is next. It's taken me several years of practice, but most people I know both personally and professionally now have no idea that I'm autistic. I fake it very well. Occasionally I meet people who tell me later that they had no idea.
Things could have gone very differently without a diagnosis. I am certain that without a diagnosis I would have ended up dead or in prison for a very long time.
So yeah, diagnoses is very important. For many people with this condition it can be life and death. For me it was at least. I'd rather have a million people who are misdiagnosed or just awkward and misrepresenting themselves as having autism than a single unfortunate teenager out there struggling with this disorder and having no idea how to overcome it. Awareness is everything.
As an autistic person it makes me concerned to hear others gatekeeping on this issue or seeing it as the new ADHD. That might be the case, but before you disregard it, please think of that 16 year old kid acting out, lonely, depressed and misdiagnosed because no-one seems to know what's wrong with him. Then ask yourself whether or not that diagnosis and label is important and could help.
To fix any problem, you must first understand what the problem is.
My name is Raymond Chandler III and I am Autistic.
Re: It all made sense when we found out we were autistic
#125Aspergers was not a thing when I was growing up in the 70s so I was never formally diagnosed, but I'm pretty sure I'm on the spectrum, and the result was a pretty painful childhood. I managed to drag myself out of it and give myself an education in social skills, and nowadays you'd never guess that I'm Aspie (my wife still doesn't believe me, but I think she's an undiagnosed Aspie herself). Even to this day there are…
I understand that a lot of people who go clubbing actually don't like it, but they're under the false impression that's what people their age do to have fun and they need to participate to meet people, etc.
So normal person == enthusiastic clubber is false.
> watching sports on TV
I personally don't watch sports, but I think the people who enjoy watching them tend to have grown up with them and have a much greater knowledge and appreciation for the game than those who don't. If you don't understand what's going on, a random televised game is very much like watching mediocre language sitcom in a language you don't understand. Not knowing the language of the show doesn't make you less "normal."
Re: It all made sense when we found out we were autistic
#126I'm curious why people find the diagnosis to be so important. I can't at all imagine identifying with the sentiment, "Nothing is wrong with me, I’m just autistic," as one of the women in the article says. When I go to a party with my girlfriend, I want to come off well, if only for her sake, and I would like to have some interesting conversations, and maybe (very optimistically) to meet someone I can share an interes…
It's like realizing that you are short ... after decades of being told that the only reason you can't reach as high as most people is because you are lazy .
Re: It all made sense when we found out we were autistic
#127Earlier quoted context omitted.
The diagnosis itself isn't important per se. The important thing is becoming aware that you are autistic, thus opening up a whole community of people who have had similar struggles to yours. There are many aspects of an autistic's life that a non-autistic simply cannot comprehend, and so it's unlikely that anyone but another autistic would have figured out ways to deal with them, and how to better fit into the neurot…
I also guarantee that you have many behavioral quirks and ways of thinking that are VASTLY different from the majority, and that you're unaware of them because you haven't yet recognized the difference from a "normal" person. Well, that's the thing. I don't really have those. According to my therapist, I wouldn't be diagnosed based on my behavior in the years she's known me. However, the stories I've told her about m…
People find the diagnosis important because it leads them to information they need in order to understand themselves better, and to improve their handling of the world and people around them.
Re: It all made sense when we found out we were autistic
#128I'm curious why people find the diagnosis to be so important. I can't at all imagine identifying with the sentiment, "Nothing is wrong with me, I’m just autistic," as one of the women in the article says. When I go to a party with my girlfriend, I want to come off well, if only for her sake, and I would like to have some interesting conversations, and maybe (very optimistically) to meet someone I can share an interes…
I'm Autistic. Diagnosed at the age of 16 with moderate-severe Asperger's in 2001. I struggled all throughout middle-school high-school and even some college to understand other people and to make friends. Middle school was the worst, because I was endlessly bullied, very depressed, extremely lonely, and constantly told that I was "weird". Before my diagnosis I remember breaking down in my school's counselors office b…
I'm happy they gave you a reset at Parmadale after all that shit.
You write you're faking it very well in personal and professional life, and I wonder, if you'd act like you are, how would you tell people anyways before they'd just stop talking with you.
Re: It all made sense when we found out we were autistic
#129Aspergers was not a thing when I was growing up in the 70s so I was never formally diagnosed, but I'm pretty sure I'm on the spectrum, and the result was a pretty painful childhood. I managed to drag myself out of it and give myself an education in social skills, and nowadays you'd never guess that I'm Aspie (my wife still doesn't believe me, but I think she's an undiagnosed Aspie herself). Even to this day there are…
> Even to this day there are a lot of things that "normal" people do that are utterly foreign to me, like going to clubs I understand that a lot of people who go clubbing actually don't like it, but they're under the false impression that's what people their age do to have fun and they need to participate to meet people, etc. So normal person == enthusiastic clubber is false. > watching sports on TV I personally don'…
With respect to sports, I actually do enjoy watching the odd sporting event now and again. What is actually foreign to me is caring about who wins.
Re: It all made sense when we found out we were autistic
#130I'm curious why people find the diagnosis to be so important. I can't at all imagine identifying with the sentiment, "Nothing is wrong with me, I’m just autistic," as one of the women in the article says. When I go to a party with my girlfriend, I want to come off well, if only for her sake, and I would like to have some interesting conversations, and maybe (very optimistically) to meet someone I can share an interes…