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Ask HN: What medical datasets do you need?

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Re: Ask HN: What medical datasets do you need?

#43
Combined phenotype/genotype datasets. These are (with some good reason) very difficult for anyone outside the medical-research establishment to get access to, but the net result is that it creates market barriers supporting the existing big players.

Re: Ask HN: What medical datasets do you need?

#44
post #39

Costs of all the procedures for each hospital. Whatever people get charged.

Second this, have been trying to get my hands on this data for a while... NOT EASY :D

You are asking for the hospital master charge sheet. Impossible to get. I tried to get around this, and partially succeeded. Happy to share more details if needed.

Re: Ask HN: What medical datasets do you need?

#45
OP: You need more doctor data.

Given you have surgeon [x] what are odds of a successful surgery with [x]. THIS is the guarded secret -- yet the most valuable.

If you have medical data (or want to be a cofounder) please email me :ransom1538 at gmail.com -- a prototype: https://www.opendoctor.io to find out data to this very question.

Re: Ask HN: What medical datasets do you need?

#46
post #43

Combined phenotype/genotype datasets. These are (with some good reason) very difficult for anyone outside the medical-research establishment to get access to, but the net result is that it creates market barriers supporting the existing big players.

These are quite difficult to get (and very expensive to produce) even inside the medical-research establishment. Which big players are you referring to?

Re: Ask HN: What medical datasets do you need?

#47
post #39

Earlier quoted context omitted.

Second this, have been trying to get my hands on this data for a while... NOT EASY :D

You are asking for the hospital master charge sheet. Impossible to get. I tried to get around this, and partially succeeded. Happy to share more details if needed.

https://www.healthcarebluebook.com/

Re: Ask HN: What medical datasets do you need?

#49

Structured longitudinal patient data (diagnosis and procedure codes, lab data, step data from fitbits, etc), but with AI unstructured may become more useful as well. This is probably an opportunity in itself.

This. Inpatient daily notes with charge codes/ICD10.
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