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Ask HN: What medical datasets do you need?

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Re: Ask HN: What medical datasets do you need?

#11
post #3

How about pricing data?

In the states, that's always been whatever they feel like charging. I do know my doctor pull his prices out of the air.

I would love to know the prices patients out of pocket pay.

I have had doctors put me on addictive drugs, and then required me to show up for prearranged visits. I had one raise prices when I even asked about the price of the office visit. I learned to just show up, and pay the dude.

Yea--lost that respect years ago. At one time, I really respected the profession.

Re: Ask HN: What medical datasets do you need?

#15

Anything I can drill into on bipolar. Treatment, outcome and quality of life. I came across this https://blog.23andme.com/23andme-research/what-patients-say-... in 2013. Most studies are qualitative not quantitative and the data is not released.

+1

Re: Ask HN: What medical datasets do you need?

#17
post #12
post #3

How about pricing data?

Pricing such as total cost of care, at a covered california region level is available here: http://costatlas.iha.org/ (I built this tool, so please be nice ;)

Do you mean hospital chargemaster data?

Re: Ask HN: What medical datasets do you need?

#18
post #5

Any tagged data sets like CCD's with SNOMED/LOINC encoding. Basically anything that is serialized in HL7/FHIR for a large enough population longitudinally. It's the time oriented set of population data for a region, like a major health center over a period of five to ten years or better.

Yes this ^^

Sources like MIMIC are certainly interesting and valuable but it'd be great to get data longitudinal records, spanning years of coverage.

https://mimic.physionet.org/

Re: Ask HN: What medical datasets do you need?

#19
I'm the cofounder of a startup building a new EHR to help solve this problem (we just applied to YCS17).

We will use NLP and AI to provide structured data from unstructured medical data (encounter notes, etc...) stored in the EHR for both analysis and integration. For example, one of our partners right now wants to integrate directly into our EHR in order to run computer vision algorithms on top of uploaded eye exam images in order to help diagnose eye diseases. We give them access to the eye image and other patient data, including the encounter, diagnoses, etc. After they have trained their algorithms, we then allow them to hook directly into the encounter workflow to send alerts live to the doctors during the appointment. We want to be a platform to help other startups and researchers connect with medical data both for analysis and also to help make a meaningful impact directly to doctors' workflows and patient care.

We would love to help out and/or learn about any use-cases that others might have requiring medical data. If you would like medical data or would want to integrate directly into a doctors' workflow in their EHRs based on NLP/AI hooks, we would love to hear from you. You can reach out to me directly at ginn@stanford.edu

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