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Ask HN: What medical datasets do you need?

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Re: Ask HN: What medical datasets do you need?

#31

Post by jrowley »

JohnnyConatus wrote: post #17
jrowley wrote: post #12

Earlier quoted context omitted.

Pricing such as total cost of care, at a covered california region level is available here: http://costatlas.iha.org/ (I built this tool, so please be nice ;)

Do you mean hospital chargemaster data?

This data doesn't come from Chargemasters - it comes from claims data, aggregated and averaged over all members, so it is real data showing what the average cost per member is over a year.

Re: Ask HN: What medical datasets do you need?

#32

Post by neuromantik8086 »

StClaire wrote: post #16

Images. Brain scans. Mammograms. Eye scans. Patient history would help too. (I know there's HIPPA to comply with, but as much as we can get can help train better classifiers.)

Forgot about this:

https://github.com/NeuroTechX/awesome-bci#brain-databases

Re: Ask HN: What medical datasets do you need?

#33

Post by surgeryres »

Entangled wrote: post #28

Dermatology, eye conditions, blood cells, tissue, viruses, urine, saliva, everything that can allow an app to give you a first diagnose before heading to the doctor. I foresee in less than ten years we will have a doctor in our pockets. No, it won't cure us and it won't replace a doctor, but it will give us all the information we need to have a 99% certainty of our condition. -- Second batch for animals and their con…

One potential problem with this - the question of liability, and who is responsible for diagnostic accuracy? In this case, for some "Lab on a Chip" device providing a patient directly with diagnostic information without the vetting of a human doctor, liability would sit with the company.

IBM's Watson at MD Anderson Cancer center did not work out real well for them. In other words, using AI in the realm of medical diagnostics is very difficult.

Re: Ask HN: What medical datasets do you need?

#34

Post by [deleted] »

dikdik wrote: post #23
rafinha wrote: post #4

I'm not sure such thing exists: "large companies with lots of medical data". Medical data is often confidential and belong to hospitals.

I used to work for a medical lab and worked on a lot of projects that involved aggregating and cleaning medical data to sell. Often it would just go to pharma companies so they could target the best places to sell their drugs. Anyway, it's completely legal. You just have to scrub the data pretty thoroughly before you sell it.

[deleted]

Re: Ask HN: What medical datasets do you need?

#37

Post by fratlas »

Entangled wrote: post #28

Dermatology, eye conditions, blood cells, tissue, viruses, urine, saliva, everything that can allow an app to give you a first diagnose before heading to the doctor. I foresee in less than ten years we will have a doctor in our pockets. No, it won't cure us and it won't replace a doctor, but it will give us all the information we need to have a 99% certainty of our condition. -- Second batch for animals and their con…

While I think it'll happen eventually, medicine is not at all black and white.

Anecdotal, but I had a suspicious mole looked at, the doctor couldn't decide, got a second opinion from their colleague, he still was only 90% sure. And that's a relatively simple example. Doctors are some of the smartest/hard working people in society, and if they can still make mistakes, medical-grade AI is a long way off.

Re: Ask HN: What medical datasets do you need?

#40

Post by swalsh »

rafinha wrote: post #4

I'm not sure such thing exists: "large companies with lots of medical data". Medical data is often confidential and belong to hospitals.

I've worked in a large company that has "lots of medical data" which we used for analytics purposes. What we would do is "Anonymize" the data. Unfortunately that's a pretty herculean task.
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