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23andMe meets FDA standards, adds back wellness reports

blog.23andme.com

41–50 of 92 posts

Re: 23andMe meets FDA standards, adds back wellness reports

#41
post #37

23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.

If everyone had that attitude we'd still be using horses to get from point A to point B. :)

Re: 23andMe meets FDA standards, adds back wellness reports

#43
post #41
post #37

23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.

If everyone had that attitude we'd still be using horses to get from point A to point B. :)

Yeah, but Ford didn't offer any pig who could dig up a compliant judge the ability to go spelunking through the dna of myself and all my relatives.

Re: 23andMe meets FDA standards, adds back wellness reports

#44
post #41
post #37

23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.

If everyone had that attitude we'd still be using horses to get from point A to point B. :)

I don't follow your analogy. How does technological advancement in transportation relate to the privacy and security of our own genomes?

Re: 23andMe meets FDA standards, adds back wellness reports

#45
post #25

Man, why is it so expensive? To test my wife and I would be nearly $400. I mean sure, it might help me be able to pre-treat any known trait based disease but still.. If all they are doing is running some DNA through a database, seems like the cost should getting lower, not higher.

I believe the $99 kits were sold as a loss leader to grow their database and establish themselves as a leader in the space. The actual cost to the company was/is much higher.

Re: 23andMe meets FDA standards, adds back wellness reports

#46
post #37

23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.

We're still in the infancy of diagnosing psychological state through word choice, yet uninformed people still talk to other people over chat.

We're still in the infancy of detecting disease through microbiome analysis, yet some foolish people still meet in person without signed contracts not to collect that information.

We're still in the infancy of analyzing video to detect mental state, yet people routinely go out into public without comprehensive agreements not to record or analyze their behavior.

I understand your concern about genetic information, as it's easy to understand the impact and the potential information gleaned. That said, the cost v.s. risks v.s. benefit of the 23andme service work for me - though I would not say that they should work for anyone else. It's good to think about potential future risks, but believing too much in the malevolence and competence of people from the future is often a mistake (see: lots of cold war policies).

Re: 23andMe meets FDA standards, adds back wellness reports

#47
post #37

23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.

I see it as helping myself future-proof myself. If I know I have inherent risks as I age, or worse, genetic mutations that could passed to my children, personally it's worth the possible data abuse to me.

It would be very unfortunate if this turns into Gattaca though.

Re: 23andMe meets FDA standards, adds back wellness reports

#48
post #40
post #5

I hope this means we can finally upgrade our results to the latest chip, or that they restore some of the SNPs they dropped in the later chips that make these reports impossible to compute. I've been waiting to unlock the Alzheimer's results for ages, but it always tells me that "upgrading to the latest platform is unavailable".

I've made a 23andMe parser that can report on this. Actually, it covers quite a lot of their health results: https://github.com/cslarsen/dna-traits The test for Alzheimers is here: https://github.com/cslarsen/dna-traits/blob/master/py-dnatra... (the algorithm used to be patented, by the way). By closely reading the algorithm, you can probably find out yourself, given that 23andMe still lets you browse your genome. To…

Woah. Quite interesting! Thank you. I've been increasingly interested in bioinformatics and your project seems quite nice. I will definitely give it a try.

Re: 23andMe meets FDA standards, adds back wellness reports

#50

Earlier quoted context omitted.

I remember reading somewhere that they share the DNA info with gov't agencies.

Probably. Unfortunately, this precludes someone who is privacy-conscious from using these products, as cool as they may seem. I can't imagine how the government would put this information to anything other than malicious use. SNP sequencing is the ultimate fingerprint, far more individually identifying than anything else as of yet. Imagine having 900,000+ criterion to cross reference to determine identity.

If the gov't really want a DNA sample from you is it that hard to obtain? I understand this allows them to do it en masse though.
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