23andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.
23andMe meets FDA standards, adds back wellness reports
41–50 of 92 posts
Re: 23andMe meets FDA standards, adds back wellness reports
#42Re: 23andMe meets FDA standards, adds back wellness reports
#4323andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.
If everyone had that attitude we'd still be using horses to get from point A to point B. :)
Re: 23andMe meets FDA standards, adds back wellness reports
#4423andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.
If everyone had that attitude we'd still be using horses to get from point A to point B. :)
Re: 23andMe meets FDA standards, adds back wellness reports
#45Man, why is it so expensive? To test my wife and I would be nearly $400. I mean sure, it might help me be able to pre-treat any known trait based disease but still.. If all they are doing is running some DNA through a database, seems like the cost should getting lower, not higher.
Re: 23andMe meets FDA standards, adds back wellness reports
#4623andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.
We're still in the infancy of detecting disease through microbiome analysis, yet some foolish people still meet in person without signed contracts not to collect that information.
We're still in the infancy of analyzing video to detect mental state, yet people routinely go out into public without comprehensive agreements not to record or analyze their behavior.
I understand your concern about genetic information, as it's easy to understand the impact and the potential information gleaned. That said, the cost v.s. risks v.s. benefit of the 23andme service work for me - though I would not say that they should work for anyone else. It's good to think about potential future risks, but believing too much in the malevolence and competence of people from the future is often a mistake (see: lots of cold war policies).
Re: 23andMe meets FDA standards, adds back wellness reports
#4723andMe can do whatever they want with your data. It totally boggles my mind that someone would give a private company legal, full, and complete access to what makes you, you. We're still in the infancy of understanding what we can do with our genomes. Giving all our information over to an entity without a fiduciary responsibility to protecting your personal data is just idiotic.
It would be very unfortunate if this turns into Gattaca though.
Re: 23andMe meets FDA standards, adds back wellness reports
#48I hope this means we can finally upgrade our results to the latest chip, or that they restore some of the SNPs they dropped in the later chips that make these reports impossible to compute. I've been waiting to unlock the Alzheimer's results for ages, but it always tells me that "upgrading to the latest platform is unavailable".
I've made a 23andMe parser that can report on this. Actually, it covers quite a lot of their health results: https://github.com/cslarsen/dna-traits The test for Alzheimers is here: https://github.com/cslarsen/dna-traits/blob/master/py-dnatra... (the algorithm used to be patented, by the way). By closely reading the algorithm, you can probably find out yourself, given that 23andMe still lets you browse your genome. To…
Re: 23andMe meets FDA standards, adds back wellness reports
#49I wonder if this is why they finally got their approval: http://fusion.net/story/215204/law-enforcement-agencies-are-...
Re: 23andMe meets FDA standards, adds back wellness reports
#50Earlier quoted context omitted.
I remember reading somewhere that they share the DNA info with gov't agencies.
Probably. Unfortunately, this precludes someone who is privacy-conscious from using these products, as cool as they may seem. I can't imagine how the government would put this information to anything other than malicious use. SNP sequencing is the ultimate fingerprint, far more individually identifying than anything else as of yet. Imagine having 900,000+ criterion to cross reference to determine identity.