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Parents Break Teen Out of Mayo Clinic

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Re: Parents Break Teen Out of Mayo Clinic

#91
post #22

As a HIPAA issue, the Mayo cannot defend itself here - it has no right to disclose any information on this patient’s stay or condition. Key quote, >“You’re only hearing one side,” cautioned Dr. Chris Feudtner, a professor of pediatrics, medical ethics and health policy at the University of Pennsylvania Perelman School of Medicine. They “broke her out” while she still had a feeding tube in place, and had only just “Th…

> If you’re getting a feeding tube and a trache, you’re likely sick as shit.

Or maybe you are being strongly sedated for some reason and are unable to breath and feed correctly by yourself.

Sedation is a famous infamous way to restrain and dominate a conflictive patient. Can be used for good reasons but opens a door to some abuses also. Being sedated when is not really necessary increases the probability of death by accidental suffocation.

Re: Parents Break Teen Out of Mayo Clinic

#92
post #2

There is a huge conflict of interest here. The hospital makes diagnosis, requests that the person lose their autonomy, gets control over that person, financially benefits from that control, and can use that control to hide any misdeeds or contrary evidence. There is also a profound disrespect for human autonomy. Hospitals disrespect autonomy for many people in many ways, with the most common being when birthing mothe…

However, guardianship or consevatorship (when the person is over 18,) imparts a fiduciary duty on the person/organization to provide for the needs of their ward. So the ability of Mayo to “financially benefit” could be subject to debate. They assume financial responsibility with the assumption of guardianship. In terms of Mayo, they are one of the best hospitals in the world, current situation notwithstanding. It isn…

> xcept Alfie was terminal and had a minimal chance of survival and the U.K. government still refused to allow him to leave the U.K.

Permission to take him abroad was denied by the UK courts, not the UK government.

Re: Parents Break Teen Out of Mayo Clinic

#93
post #74

This is one way to make a profit off the patient. I wonder if it would have happened if she had no insurance. Highly unlikely as the hospital wouldn't be able to milk the patient for money. A second issue is these social workers whose main goal seems to want to remove children from parents and break up families in general for what I can only say is their own sick amusement. This is a fucked up job that gives way too…

This is one way to make a profit off the patient. I wonder if it would have happened if she had no insurance. Highly unlikely as the hospital wouldn't be able to milk the patient for money. I have no idea how to find it, but your comment reminds me of some horrifying article about the addiction treatment industry leeching all the money they could from patients with good insurance without really getting them better, n…

They made a documentary about it as well: http://www.thebusinessofrecovery.com/phone/index.html

Hardly surprising. Every other medical specialty does the same and addiction treatment is essentially unregulated. Lots of suffering and misery to exploit here to make a ton of money for people with no morals (of which there are many).

Re: Parents Break Teen Out of Mayo Clinic

#94
post #2

There is a huge conflict of interest here. The hospital makes diagnosis, requests that the person lose their autonomy, gets control over that person, financially benefits from that control, and can use that control to hide any misdeeds or contrary evidence. There is also a profound disrespect for human autonomy. Hospitals disrespect autonomy for many people in many ways, with the most common being when birthing mothe…

Note that due to medical privacy law we can't hear the hospital's side of this. There may be something there and it's not unheard of for the parents to also be weird and controlling.

> financially benefits from that control

Yeah, this is a more fundamental problem with for-profit hospitals - money gets involved in treatment decisions.

Re: Parents Break Teen Out of Mayo Clinic

#95
The last paragraph is pretty damning. Apparantly the mother had an argument with a senior physician, then they labelled her as having mental issues, and tried to take her daughter...

But luckily everyone (the biological father, the court, the police) refused to play along.

Re: Parents Break Teen Out of Mayo Clinic

#96
post #94
post #2

There is a huge conflict of interest here. The hospital makes diagnosis, requests that the person lose their autonomy, gets control over that person, financially benefits from that control, and can use that control to hide any misdeeds or contrary evidence. There is also a profound disrespect for human autonomy. Hospitals disrespect autonomy for many people in many ways, with the most common being when birthing mothe…

Note that due to medical privacy law we can't hear the hospital's side of this. There may be something there and it's not unheard of for the parents to also be weird and controlling. > financially benefits from that control Yeah, this is a more fundamental problem with for-profit hospitals - money gets involved in treatment decisions.

I've seen this too, but I've found ego is much more of a problem. I've seen doctors get locked into a course of action and get fixated on it. At that point, facts don't matter. They HAVE to be right. The other staff fall into line, because they have an ongoing work relationship, and only a transient connection to the patient.

It's good that at least for now there is still choice in facilities in our country. This would have been a much different outcome otherwise.

Re: Parents Break Teen Out of Mayo Clinic

#98

To me this sounds very much like the superiority complex many doctors and hospitals take when it comes to patient care. They are the doctors. They are the hospital. How dare you disagree. As stated, hospitals are not prisons and unless someone is an absolutely, clear and present danger to themselves or others, that person should be allowed to walk out. Even still, the law should err on the side of the patient's wishe…

>> To me this sounds very much like the superiority complex many doctors and hospitals take when it comes to patient care. They are the doctors. They are the hospital. How dare you disagree.

This is academia in a nutshell. They're told they are superior due to the time/resources spent in advanced schooling and only respect the opinions of people who have letters after their name. It is endemic amongst MDs and PhDs alike.

Re: Parents Break Teen Out of Mayo Clinic

#99
post #49

Earlier quoted context omitted.

They stay in a reputable medical institution and get better after a debilitating aneurism?

That demonstrates an ignorance of what the medical profession is like in practice. People without family to watch them get terrible care. There are exceptions (ICU for example is usually pretty good), but any care that doesn't have someone watching/caring for them 24/7 is going to be bad. You NEED someone in the hospital watching out for you, unless you are in a unit where there is a permanent nurse on duty with you…

Had a recent experience where there was no continuity of care. Every nurse did something different, despite specialists assuring us that instructions were on file. Were the nurses even reading the chart/orders?

Definitely worried things would have been worse if we weren't both present and lucid.

Re: Parents Break Teen Out of Mayo Clinic

#100
post #94
post #2

There is a huge conflict of interest here. The hospital makes diagnosis, requests that the person lose their autonomy, gets control over that person, financially benefits from that control, and can use that control to hide any misdeeds or contrary evidence. There is also a profound disrespect for human autonomy. Hospitals disrespect autonomy for many people in many ways, with the most common being when birthing mothe…

Note that due to medical privacy law we can't hear the hospital's side of this. There may be something there and it's not unheard of for the parents to also be weird and controlling. > financially benefits from that control Yeah, this is a more fundamental problem with for-profit hospitals - money gets involved in treatment decisions.

The patient signed a release form, but the hospital still refused to answer the claims.

“Alyssa signed the form, but Plumbo declined to answer CNN's questions on the record.” https://amp.cnn.com/cnn/2018/08/13/health/mayo-clinic-escape...

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